[nfb-talk] Dining in the dark
Mike Freeman
k7uij at panix.com
Sun Apr 24 17:51:15 UTC 2011
Ray:
I thought that's what we *are* doing. As Joseph says, I simply contend that
"dining in the dark" events cannot be made to do what NFB proponents would
want them to. Why do something that fundamentally won't work? I don't get
what's so fascinating about these events anyway. But the fact that some of
them denigrate them doesn't mean we aren't proactive.
Mike
-----Original Message-----
From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
Behalf Of Ray Foret Jr
Sent: Sunday, April 24, 2011 5:39 AM
To: NFB Talk Mailing List
Subject: Re: [nfb-talk] Dining in the dark
Yep. Frankly, I get more than a little weir e of our always reacting to
what others do then complaining that the sighted don't understand us. High
time we got more pro-active don't you think? Happy easter.
Sincerely,
The Constantly Barefooted Ray!!!
Now a very proud and happy Mac user!!!
Skype name:
barefootedray
Facebook:
facebook.com/ray.foretjr.1
On Apr 24, 2011, at 7:18 AM, T. Joseph Carter wrote:
> We should manipulate every situation to our advantage. Nobody else is
going to do it for us, right? That is, at the core, what the NFB philosophy
is all about. The world won't adapt to us easily, and we cannot expect
otherwise. We must, therefore, reserve our efforts in that regard for those
situations when we cannot adapt ourselves.
>
> That is why technology access is a big deal for us, but any number of
other issues are not. We have the ability to adapt in those cases, even if
probably we should not have to. But we have no choice when technology
needed to interact with the modern world deliberately shuts us out.
>
> Why would silly events to showcase disability be different?
>
> Ray, you and others reading this will understand when I say that we are
called to be salt and light. That which does evil will be turned to good.
Each of us is called to participate in this, so why not turn an otherwise
potentially harmful thing like Dining in the Dark to a potential bridge in
understanding for the sighted world? I can think of no good reason.
>
> Happy Easter, all. *smile*
>
> Joseph
>
>
> On Sat, Apr 23, 2011 at 12:49:05AM -0500, Ray Foret Jr wrote:
>> Oh, I'm not sure it's utterly useless. That is, of course, if we
actively take control of the situation. Like I said in another post, it
could be useful to make our point; but, in order to make that so, we'd have
to manipulate the situation to our advantage.
>>
>>
>> Sincerely,
>> The Constantly Barefooted Ray!!!
>>
>> Now a very proud and happy Mac user!!!
>> Skype name:
>> barefootedray
>>
>> Facebook:
>> facebook.com/ray.foretjr.1
>>
>> On Apr 22, 2011, at 9:06 PM, T. Joseph Carter wrote:
>>
>>> Mike is convinced that these events do not and cannot lead to a greater
appreciation of blindness. I've argued on another list that it can be done
better, but Mike points out quite rightly that can be done better does not
necessarily translate to people actually doing it in such a way that the
sighties learn anything useful except perhaps by sheer trial and error.
>>>
>>> Joseph
>>>
>>> On Fri, Apr 22, 2011 at 07:56:34PM -0600, Jeanette Fortin wrote:
>>>> there are a few nfb chapters doing the dining in the dark thing as well
you know?
>>>> ----- Original Message ----- From: "Mike Freeman" <k7uij at panix.com>
>>>> To: <info at michaelhingson.com>; "'NFB Talk Mailing List'"
>>>> <nfb-talk at nfbnet.org>
>>>> Sent: Friday, April 22, 2011 7:45 PM
>>>> Subject: Re: [nfb-talk] observations about Foundation Fighting
>>>> Blindness
>>>>
>>>>
>>>> Oh my Lord! Is the RP Foundation fighting Blindness involved in
>>>> that Dining in the Dark nonsense? I fear me greatly there's no hope
for them then.
>>>>
>>>> Mike Freeman
>>>>
>>>>
>>>> -----Original Message-----
>>>> From: nfb-talk-bounces at nfbnet.org
>>>> [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Michael Hingson
>>>> Sent: Friday, April 22, 2011 6:23 PM
>>>> To: 'NFB Talk Mailing List'
>>>> Subject: [nfb-talk] observations about Foundation Fighting
>>>> Blindness
>>>>
>>>> All,
>>>>
>>>> First, note the subject line change. I think the issue here is
>>>> what is "fulfilling"? From the literature I have read from this
>>>> organization as well as from discussions I have had with staff
>>>> their idea of a "fulfilling life" does not contain the high
>>>> expectations I or many of us have. It all goes back to the philosophy
of blindness one chooses to have.
>>>>
>>>> If, for example, you think that it is amazing that a blind person
>>>> can cut their food and even find it, but think that because a blind
>>>> person does eat independently their life is in part fulfilling then
>>>> your view of the true nature of blindness differs from mine.
>>>> "Dining In The Dark" is a fundraising event the Foundation has
>>>> sponsored in various parts of the country. Putting a group of
>>>> sighted people under blindfold, then serving them food while making
>>>> statements like "this is what blind people face every day" cannot help
improve the public's view of the abilities of blind people.
>>>> Nevertheless this is the kind of thing the Foundation Fighting
>>>> Blindness does constantly.
>>>>
>>>> As, I think, Mike Freeman said, it is all in what you mean by
"fighting".
>>>> We in the NFB fight blindness every day. The blindness we fight is
>>>> that of people who let their eye sight get in the way of their
>>>> vision which has become blinded by prejudice and misinformation.
>>>> (See Thunder Dog when it is released).
>>>>
>>>> The tragedy of blindness is not the loss of eye sight unless we make it
so.
>>>> Any "tragedy" is only as serious as we allow it to be. Those who
>>>> lose their sight can move forward and have as full and productive a
>>>> life as before if they are willing to get the proper training.
>>>> There is nothing new here but, we need to keep saying it if we
>>>> expect the world to come around and believe that truth. It's marketing
pure and simple.
>>>>
>>>> Happy Easter.
>>>>
>>>>
>>>> Best,
>>>>
>>>>
>>>> Mike Hingson
>>>>
>>>> The Michael Hingson Group, INC.
>>>> "Speaking with Vision"
>>>> Michael Hingson, President
>>>> (415) 827-4084
>>>> info at michaelhingson.com
>>>> To learn more about my upcoming book, speaking topics and speaking
>>>> availability please visit www.michaelhingson.com Thunder Dog is now
>>>> available for early ordering on Amazon!!!
>>>> http://www.amazon.com/Thunder-Dog-Blind-Triumph-Ground/dp/140020304
>>>> X/ref=sr_
>>>> 1_3?s=books&ie=UTF8&qid=1289090352&sr=1-3
>>>>
>>>>
>>>> for info on the new KNFB Reader Mobile, visit:
>>>> http://knfbreader.michaelhingson.com
>>>>
>>>>
>>>> -----Original Message-----
>>>> From: nfb-talk-bounces at nfbnet.org
>>>> [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Mike Freeman
>>>> Sent: Friday, April 22, 2011 2:01 PM
>>>> To: NFB Talk Mailing List
>>>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report
>>>> fromChairmanGordon Gund
>>>>
>>>> The choice of the word "fighting". It's not the they're against
>>>> the blind leading fulfilled lives; they can't conceive of it.
>>>>
>>>> Mike Freeman
>>>> sent from my iPhone
>>>>
>>>>
>>>> On Apr 22, 2011, at 13:10, "John Heim" <john at johnheim.net> wrote:
>>>>
>>>>> I'm sure the Foundation Fighting Blindness is very much in favor
>>>>> of blind
>>>> people living rich and fullfilling lives. What makes you think they're
not?
>>>>>
>>>>> ----- Original Message ----- From: "James Aldrich"
>>>>> <jajkaldrich at gmail.com>
>>>>> To: "Jeanette Fortin" <jeanette at fortin-home.com>; "NFB Talk Mailing
List"
>>>> <nfb-talk at nfbnet.org>
>>>>> Sent: Friday, April 22, 2011 11:20 AM
>>>>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report
>>>> fromChairmanGordon Gund
>>>>>
>>>>>
>>>>>> Hello all!
>>>>>>
>>>>>> I greatly dislike how this organization the foundation fighting
>>>>>> blindness
>>>> reinforces how terrible it is to be blind! Yes! It is no picnic
>>>> at first when one loses vision I'm certain but we in the NFB are
>>>> here to show there is life after vision loss or there is life when
>>>> one is blind! We have a more positive message! Yes! I'm all for
>>>> preserving one's vision but if this isn't possible, I for one wish
>>>> to see someone continue to live a full and enriching life as much
>>>> as possible! There are many who can't cope but there are more who do
and they live quite well! At least, they have a life!
>>>> It is far better to be blind today than it was a hundred years ago
>>>> but even at that time, I'm certain some lived meaningful lives even
then!
>>>>>>
>>>>>> Jim
>>>>>>
>>>>>>
>>>>>> ----- Original Message ----- From: "Jeanette Fortin"
>>>> <jeanette at fortin-home.com>
>>>>>> To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
>>>>>> Sent: Thursday, April 21, 2011 4:03 PM
>>>>>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report from
>>>> ChairmanGordon Gund
>>>>>>
>>>>>>
>>>>>>> well let me say this, why not fight blindness? if there is a way
>>>>>>> some
>>>> people can regain their vision or if doctors can help folks to save
>>>> the vision they have, go for it.
>>>>>>> i got a call today from my cousin who works with hazzardess
>>>>>>> materials in
>>>> his job. he was hit in the face with some costic liquid last week
>>>> and lost his vision for a couple of days. Because he was rushed to
>>>> a special hospital and given specific treatment for his eyes which
>>>> were damaged by the costic liquid, the doctors are hopeful he will
>>>> regain all or most of his vision.
>>>>>>> from some folks way of thinking it appears they think it would
>>>>>>> be just
>>>> fine for him to have lost his vision and subsequently his job. it
>>>> gave him a true appreciation of those of us who have dealt with
>>>> vision loss for years and has made him grateful for whatever vision he
has.
>>>>>>> i think maybe the name of the organization, fighting blindness
>>>>>>> may
>>>> offend some folks, but if you understand how someone who had vision
>>>> and loses it feels maybe you would understand why the foundation is
>>>> trying to find ways to help folks either regain or not lose their
>>>> vision, jeanette
>>>>>>> ----- Original Message ----- From: "S Baker"
>>>>>>> <srbaker12 at hotmail.com>
>>>>>>> To: "ANFBchat" <nfb-talk at nfbnet.org>
>>>>>>> Sent: Thursday, April 21, 2011 3:31 PM
>>>>>>> Subject: [nfb-talk] FW: {Disarmed} FW: A personal report from
>>>>>>> Chairman
>>>> Gordon Gund
>>>>>>>
>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>> SRBaker
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>> From: srbaker12 at hotmail.com
>>>>>>>> To: nfb-talk at nfbnet.org
>>>>>>>> Subject: RE: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>>>> Chairman
>>>> Gordon Gund
>>>>>>>> Date: Thu, 21 Apr 2011 21:29:26 +0000
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>> This email solicits donations. It also has links to current
>>>>>>>> research to
>>>> correct blindness.There is nothing wrong with being blind, if that
>>>> is what you want. If there is technology that can reverse,cure me, I am
all for it.
>>>> There is an old saying "There are none so blind as those who will not
see".
>>>> Our eyes may not work but our brains do.
>>>>>>>> Steve
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>> SRBaker
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>> From: ladygloria at webband.com
>>>>>>>>> To: nfb-talk at nfbnet.org
>>>>>>>>> Date: Thu, 21 Apr 2011 14:19:37 -0700
>>>>>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>>>>> Chairman
>>>> Gordon Gund
>>>>>>>>>
>>>>>>>>> What in the heck is wrong with being blind!
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> Gloria Whipple
>>>>>>>>> Corresponding Secretary
>>>>>>>>> Inland Empire chapter
>>>>>>>>> nfb of WA
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> -----Original Message-----
>>>>>>>>> From: nfb-talk-bounces at nfbnet.org
>>>>>>>>> [mailto:nfb-talk-bounces at nfbnet.org]
>>>> On
>>>>>>>>> Behalf Of S Baker
>>>>>>>>> Sent: Thursday, April 21, 2011 14:14
>>>>>>>>> To: AMoLList
>>>>>>>>> Subject: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>>>>> Chairman
>>>> Gordon
>>>>>>>>> Gund
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> SRBaker
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>>>>> From: GGund at FightBlindness.org
>>>>>>>>> To: srbaker at charter.net
>>>>>>>>> Subject: A personal report from Chairman Gordon Gund
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> Like you, Steven, I follow the work of the Foundation Fighting
>>>> Blindness
>>>>>>>>> closely. As a donor, I want to know that my donations make a
>>>> difference.
>>>>>>>>>
>>>>>>>>> And believe me, they do. When I reflect on the last year and
>>>>>>>>> listen to
>>>> this
>>>>>>>>> video, I am reminded that we have more clinical trials for
>>>> sight-saving
>>>>>>>>> treatments underway than ever before. Clearly, hope and
>>>>>>>>> optimism are running high. Incredible strides have been made
>>>>>>>>> in the last few years,
>>>> and
>>>>>>>>> these remarkable advances would not have been made without
>>>>>>>>> your
>>>> support of
>>>>>>>>> the Foundation. They include:
>>>>>>>>>
>>>>>>>>> Vision Restored. We are continuing to build on remarkable
>>>>>>>>> gains in
>>>> gene
>>>>>>>>> therapy. As you may recall, in a Foundation-funded trial,
>>>>>>>>> 9-year-old
>>>> Corey
>>>>>>>>> Haas and 19 others received a gene therapy treatment and can now
see.
>>>> And
>>>>>>>>> as the trial has expanded, participants have shown sustained
>>>> improvement in
>>>>>>>>> vision. Building on this success, similar gene therapy
>>>>>>>>> treatments are moving into clinical trials for choroideremia,
>>>>>>>>> Stargardt disease and
>>>> Usher
>>>>>>>>> syndrome.
>>>>>>>>>
>>>>>>>>> Innovative Technology. The high-tech industry has a treatment
>>>>>>>>> I'm incredibly excited about-- the world's first commercially
>>>>>>>>> available artificial or "bionic" eye. Early funding from the
>>>>>>>>> Foundation was key
>>>> to
>>>>>>>>> getting this engineered retina off the ground. Building on the
>>>>>>>>> studies
>>>> we
>>>>>>>>> funded, the light-sensing, implantable "chip" has been tested
>>>>>>>>> in a
>>>> clinical
>>>>>>>>> trial in Europe with great results. In the study, people who
>>>>>>>>> were
>>>> profoundly
>>>>>>>>> blind experienced improved vision that could help them to be
>>>>>>>>> more independent. In fact, many can now see shapes and
>>>>>>>>> recognize large
>>>> letters.
>>>>>>>>>
>>>>>>>>> Groundbreaking Therapies. A research team funded by the
>>>>>>>>> Foundation
>>>> Fighting
>>>>>>>>> Blindness developed an innovative technique for correcting the
>>>>>>>>> disease-causing gene by using stem cells derived from a person's
skin.
>>>> While
>>>>>>>>> more work is needed to ensure safety, this advancement
>>>>>>>>> suggests that
>>>> doctors
>>>>>>>>> may someday be able to treat a patient's retinal disease using
>>>>>>>>> their
>>>> own
>>>>>>>>> skin cells.
>>>>>>>>> These few accomplishments barely begin to tell the story of
>>>>>>>>> all the
>>>> progress
>>>>>>>>> that's being made. And this is why words can never express my
>>>>>>>>> personal gratitude for your passionate and committed support.
>>>>>>>>>
>>>>>>>>> I hope you will take a few minutes to watch the video and see
>>>>>>>>> the
>>>> results of
>>>>>>>>> your support and the hope it has generated. But most
>>>>>>>>> importantly, I
>>>> hope you
>>>>>>>>> will see that research is progressing at a terrific rate. It's
>>>>>>>>> been a
>>>> long
>>>>>>>>> time coming, but we crossed a critical threshold when our
>>>>>>>>> researchers actually restored sight. It launched us into a new
>>>>>>>>> era when more and
>>>> more
>>>>>>>>> people will have their sight saved or restored every year. A
>>>>>>>>> lot of
>>>> work
>>>>>>>>> remains. But we'll get there by continuing to work together.
>>>>>>>>>
>>>>>>>>> The Foundation Fighting Blindness values the support you give
>>>>>>>>> us by donating, talking to your friends, and advocating for
>>>>>>>>> increased
>>>> research
>>>>>>>>> funding. As we continue our relentless pursuit to eradicate
>>>>>>>>> blindness,
>>>> we
>>>>>>>>> hope you will continue your steadfast support of our mission.
>>>>>>>>> Thanks
>>>> for
>>>>>>>>> envisioning a bright future for the millions affected by
>>>>>>>>> retinal degenerative diseases.
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> Sincerely,
>>>>>>>>>
>>>>>>>>> Gordon Gund
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> Check us out on:
>>>>>>>>>
>>>>>>>>> Tell a Friend | Subscribe | Change email address | Unsubscribe
>>>>>>>>> Foundation Fighting Blindness www.FightBlindness.org
>>>>>>>>> 7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
>>>>>>>>> 1-800-683-5555
>>>>>>>>>
>>>>>>>>> nonprofit software
>>>>>>>>> _______________________________________________
>>>>>>>>> nfb-talk mailing list
>>>>>>>>> nfb-talk at nfbnet.org
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>>>>>>>>> nfb-talk:
>>>>>>>>>
>>>> http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladyglori
>>>> a%40webba
>>>>>>>>> nd.com
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> _______________________________________________
>>>>>>>>> nfb-talk mailing list
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>>>>>
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