[nfb-talk] Dining in the dark
John Heim
john at johnheim.net
Sun Apr 24 22:21:11 UTC 2011
Wow, that is an excellent point, Ray. I'll admit I was hesitant to serve as
a waiter during Dining in the Dark. But now I see it as an opportunity. And,
I feel each of us has the responsibility to seize opportunities like this
when they come along.
I'm going to make sure the people I serve don't sit there and complain about
how hard it is to feed yourself if you can't see. I went blind very
gradually so maybe it was something I learned over an extended period of
time. But I honestly don't think feeding yourself is particularly difficult
if you can't see. And I don't intend to let the people I serve pretend it
is.
I think to some degree, the diners are going to make it out to be worse than
it is in order to show us blind people how brave we are. They are just
trying to be complimentary. The problem is that it can be a bit patronizing.
I just won't let them get away with that.
----- Original Message -----
From: "Ray Foret Jr" <rforetjr at att.net>
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Sent: Sunday, April 24, 2011 7:39 AM
Subject: Re: [nfb-talk] Dining in the dark
> Yep. Frankly, I get more than a little weir e of our always reacting to
> what others do then complaining that the sighted don't understand us.
> High time we got more pro-active don't you think? Happy easter.
>
>
> Sincerely,
> The Constantly Barefooted Ray!!!
>
> Now a very proud and happy Mac user!!!
> Skype name:
> barefootedray
>
> Facebook:
> facebook.com/ray.foretjr.1
>
> On Apr 24, 2011, at 7:18 AM, T. Joseph Carter wrote:
>
>> We should manipulate every situation to our advantage. Nobody else is
>> going to do it for us, right? That is, at the core, what the NFB
>> philosophy is all about. The world won't adapt to us easily, and we
>> cannot expect otherwise. We must, therefore, reserve our efforts in that
>> regard for those situations when we cannot adapt ourselves.
>>
>> That is why technology access is a big deal for us, but any number of
>> other issues are not. We have the ability to adapt in those cases, even
>> if probably we should not have to. But we have no choice when technology
>> needed to interact with the modern world deliberately shuts us out.
>>
>> Why would silly events to showcase disability be different?
>>
>> Ray, you and others reading this will understand when I say that we are
>> called to be salt and light. That which does evil will be turned to
>> good. Each of us is called to participate in this, so why not turn an
>> otherwise potentially harmful thing like Dining in the Dark to a
>> potential bridge in understanding for the sighted world? I can think of
>> no good reason.
>>
>> Happy Easter, all. *smile*
>>
>> Joseph
>>
>>
>> On Sat, Apr 23, 2011 at 12:49:05AM -0500, Ray Foret Jr wrote:
>>> Oh, I'm not sure it's utterly useless. That is, of course, if we
>>> actively take control of the situation. Like I said in another post, it
>>> could be useful to make our point; but, in order to make that so, we'd
>>> have to manipulate the situation to our advantage.
>>>
>>>
>>> Sincerely,
>>> The Constantly Barefooted Ray!!!
>>>
>>> Now a very proud and happy Mac user!!!
>>> Skype name:
>>> barefootedray
>>>
>>> Facebook:
>>> facebook.com/ray.foretjr.1
>>>
>>> On Apr 22, 2011, at 9:06 PM, T. Joseph Carter wrote:
>>>
>>>> Mike is convinced that these events do not and cannot lead to a greater
>>>> appreciation of blindness. I've argued on another list that it can be
>>>> done better, but Mike points out quite rightly that can be done better
>>>> does not necessarily translate to people actually doing it in such a
>>>> way that the sighties learn anything useful except perhaps by sheer
>>>> trial and error.
>>>>
>>>> Joseph
>>>>
>>>> On Fri, Apr 22, 2011 at 07:56:34PM -0600, Jeanette Fortin wrote:
>>>>> there are a few nfb chapters doing the dining in the dark thing as
>>>>> well you know?
>>>>> ----- Original Message ----- From: "Mike Freeman" <k7uij at panix.com>
>>>>> To: <info at michaelhingson.com>; "'NFB Talk Mailing List'"
>>>>> <nfb-talk at nfbnet.org>
>>>>> Sent: Friday, April 22, 2011 7:45 PM
>>>>> Subject: Re: [nfb-talk] observations about Foundation Fighting
>>>>> Blindness
>>>>>
>>>>>
>>>>> Oh my Lord! Is the RP Foundation fighting Blindness involved in that
>>>>> Dining
>>>>> in the Dark nonsense? I fear me greatly there's no hope for them
>>>>> then.
>>>>>
>>>>> Mike Freeman
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org]
>>>>> On
>>>>> Behalf Of Michael Hingson
>>>>> Sent: Friday, April 22, 2011 6:23 PM
>>>>> To: 'NFB Talk Mailing List'
>>>>> Subject: [nfb-talk] observations about Foundation Fighting Blindness
>>>>>
>>>>> All,
>>>>>
>>>>> First, note the subject line change. I think the issue here is what
>>>>> is
>>>>> "fulfilling"? From the literature I have read from this organization
>>>>> as
>>>>> well as from discussions I have had with staff their idea of a
>>>>> "fulfilling
>>>>> life" does not contain the high expectations I or many of us have. It
>>>>> all
>>>>> goes back to the philosophy of blindness one chooses to have.
>>>>>
>>>>> If, for example, you think that it is amazing that a blind person can
>>>>> cut
>>>>> their food and even find it, but think that because a blind person
>>>>> does eat
>>>>> independently their life is in part fulfilling then your view of the
>>>>> true
>>>>> nature of blindness differs from mine. "Dining In The Dark" is a
>>>>> fundraising event the Foundation has sponsored in various parts of the
>>>>> country. Putting a group of sighted people under blindfold, then
>>>>> serving
>>>>> them food while making statements like "this is what blind people face
>>>>> every
>>>>> day" cannot help improve the public's view of the abilities of blind
>>>>> people.
>>>>> Nevertheless this is the kind of thing the Foundation Fighting
>>>>> Blindness
>>>>> does constantly.
>>>>>
>>>>> As, I think, Mike Freeman said, it is all in what you mean by
>>>>> "fighting".
>>>>> We in the NFB fight blindness every day. The blindness we fight is
>>>>> that of
>>>>> people who let their eye sight get in the way of their vision which
>>>>> has
>>>>> become blinded by prejudice and misinformation. (See Thunder Dog when
>>>>> it is
>>>>> released).
>>>>>
>>>>> The tragedy of blindness is not the loss of eye sight unless we make
>>>>> it so.
>>>>> Any "tragedy" is only as serious as we allow it to be. Those who lose
>>>>> their
>>>>> sight can move forward and have as full and productive a life as
>>>>> before if
>>>>> they are willing to get the proper training. There is nothing new
>>>>> here but,
>>>>> we need to keep saying it if we expect the world to come around and
>>>>> believe
>>>>> that truth. It's marketing pure and simple.
>>>>>
>>>>> Happy Easter.
>>>>>
>>>>>
>>>>> Best,
>>>>>
>>>>>
>>>>> Mike Hingson
>>>>>
>>>>> The Michael Hingson Group, INC.
>>>>> "Speaking with Vision"
>>>>> Michael Hingson, President
>>>>> (415) 827-4084
>>>>> info at michaelhingson.com
>>>>> To learn more about my upcoming book, speaking topics and speaking
>>>>> availability please visit www.michaelhingson.com Thunder Dog is now
>>>>> available for early ordering on Amazon!!!
>>>>> http://www.amazon.com/Thunder-Dog-Blind-Triumph-Ground/dp/140020304X/ref=sr_
>>>>> 1_3?s=books&ie=UTF8&qid=1289090352&sr=1-3
>>>>>
>>>>>
>>>>> for info on the new KNFB Reader Mobile, visit:
>>>>> http://knfbreader.michaelhingson.com
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org]
>>>>> On
>>>>> Behalf Of Mike Freeman
>>>>> Sent: Friday, April 22, 2011 2:01 PM
>>>>> To: NFB Talk Mailing List
>>>>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report
>>>>> fromChairmanGordon Gund
>>>>>
>>>>> The choice of the word "fighting". It's not the they're against the
>>>>> blind
>>>>> leading fulfilled lives; they can't conceive of it.
>>>>>
>>>>> Mike Freeman
>>>>> sent from my iPhone
>>>>>
>>>>>
>>>>> On Apr 22, 2011, at 13:10, "John Heim" <john at johnheim.net> wrote:
>>>>>
>>>>>> I'm sure the Foundation Fighting Blindness is very much in favor of
>>>>>> blind
>>>>> people living rich and fullfilling lives. What makes you think they're
>>>>> not?
>>>>>>
>>>>>> ----- Original Message ----- From: "James Aldrich"
>>>>>> <jajkaldrich at gmail.com>
>>>>>> To: "Jeanette Fortin" <jeanette at fortin-home.com>; "NFB Talk Mailing
>>>>>> List"
>>>>> <nfb-talk at nfbnet.org>
>>>>>> Sent: Friday, April 22, 2011 11:20 AM
>>>>>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report
>>>>> fromChairmanGordon Gund
>>>>>>
>>>>>>
>>>>>>> Hello all!
>>>>>>>
>>>>>>> I greatly dislike how this organization the foundation fighting
>>>>>>> blindness
>>>>> reinforces how terrible it is to be blind! Yes! It is no picnic at
>>>>> first
>>>>> when one loses vision I'm certain but we in the NFB are here to show
>>>>> there
>>>>> is life after vision loss or there is life when one is blind! We have
>>>>> a
>>>>> more positive message! Yes! I'm all for preserving one's vision but
>>>>> if
>>>>> this isn't possible, I for one wish to see someone continue to live a
>>>>> full
>>>>> and enriching life as much as possible! There are many who can't cope
>>>>> but
>>>>> there are more who do and they live quite well! At least, they have a
>>>>> life!
>>>>> It is far better to be blind today than it was a hundred years ago but
>>>>> even
>>>>> at that time, I'm certain some lived meaningful lives even then!
>>>>>>>
>>>>>>> Jim
>>>>>>>
>>>>>>>
>>>>>>> ----- Original Message ----- From: "Jeanette Fortin"
>>>>> <jeanette at fortin-home.com>
>>>>>>> To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
>>>>>>> Sent: Thursday, April 21, 2011 4:03 PM
>>>>>>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report from
>>>>> ChairmanGordon Gund
>>>>>>>
>>>>>>>
>>>>>>>> well let me say this, why not fight blindness? if there is a way
>>>>>>>> some
>>>>> people can regain their vision or if doctors can help folks to save
>>>>> the
>>>>> vision they have, go for it.
>>>>>>>> i got a call today from my cousin who works with hazzardess
>>>>>>>> materials in
>>>>> his job. he was hit in the face with some costic liquid last week and
>>>>> lost
>>>>> his vision for a couple of days. Because he was rushed to a special
>>>>> hospital and given specific treatment for his eyes which were damaged
>>>>> by the
>>>>> costic liquid, the doctors are hopeful he will regain all or most of
>>>>> his
>>>>> vision.
>>>>>>>> from some folks way of thinking it appears they think it would be
>>>>>>>> just
>>>>> fine for him to have lost his vision and subsequently his job. it
>>>>> gave him
>>>>> a true appreciation of those of us who have dealt with vision loss for
>>>>> years
>>>>> and has made him grateful for whatever vision he has.
>>>>>>>> i think maybe the name of the organization, fighting blindness may
>>>>> offend some folks, but if you understand how someone who had vision
>>>>> and
>>>>> loses it feels maybe you would understand why the foundation is trying
>>>>> to
>>>>> find ways to help folks either regain or not lose their vision,
>>>>> jeanette
>>>>>>>> ----- Original Message ----- From: "S Baker"
>>>>>>>> <srbaker12 at hotmail.com>
>>>>>>>> To: "ANFBchat" <nfb-talk at nfbnet.org>
>>>>>>>> Sent: Thursday, April 21, 2011 3:31 PM
>>>>>>>> Subject: [nfb-talk] FW: {Disarmed} FW: A personal report from
>>>>>>>> Chairman
>>>>> Gordon Gund
>>>>>>>>
>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> SRBaker
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> From: srbaker12 at hotmail.com
>>>>>>>>> To: nfb-talk at nfbnet.org
>>>>>>>>> Subject: RE: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>>>>> Chairman
>>>>> Gordon Gund
>>>>>>>>> Date: Thu, 21 Apr 2011 21:29:26 +0000
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> This email solicits donations. It also has links to current
>>>>>>>>> research to
>>>>> correct blindness.There is nothing wrong with being blind, if that is
>>>>> what
>>>>> you want. If there is technology that can reverse,cure me, I am all
>>>>> for it.
>>>>> There is an old saying "There are none so blind as those who will not
>>>>> see".
>>>>> Our eyes may not work but our brains do.
>>>>>>>>> Steve
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>> SRBaker
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>
>>>>>>>>>> From: ladygloria at webband.com
>>>>>>>>>> To: nfb-talk at nfbnet.org
>>>>>>>>>> Date: Thu, 21 Apr 2011 14:19:37 -0700
>>>>>>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>>>>>> Chairman
>>>>> Gordon Gund
>>>>>>>>>>
>>>>>>>>>> What in the heck is wrong with being blind!
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> Gloria Whipple
>>>>>>>>>> Corresponding Secretary
>>>>>>>>>> Inland Empire chapter
>>>>>>>>>> nfb of WA
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> -----Original Message-----
>>>>>>>>>> From: nfb-talk-bounces at nfbnet.org
>>>>>>>>>> [mailto:nfb-talk-bounces at nfbnet.org]
>>>>> On
>>>>>>>>>> Behalf Of S Baker
>>>>>>>>>> Sent: Thursday, April 21, 2011 14:14
>>>>>>>>>> To: AMoLList
>>>>>>>>>> Subject: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>>>>>> Chairman
>>>>> Gordon
>>>>>>>>>> Gund
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> SRBaker
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>>>>>> From: GGund at FightBlindness.org
>>>>>>>>>> To: srbaker at charter.net
>>>>>>>>>> Subject: A personal report from Chairman Gordon Gund
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> Like you, Steven, I follow the work of the Foundation Fighting
>>>>> Blindness
>>>>>>>>>> closely. As a donor, I want to know that my donations make a
>>>>> difference.
>>>>>>>>>>
>>>>>>>>>> And believe me, they do. When I reflect on the last year and
>>>>>>>>>> listen to
>>>>> this
>>>>>>>>>> video, I am reminded that we have more clinical trials for
>>>>> sight-saving
>>>>>>>>>> treatments underway than ever before. Clearly, hope and optimism
>>>>>>>>>> are running high. Incredible strides have been made in the last
>>>>>>>>>> few years,
>>>>> and
>>>>>>>>>> these remarkable advances would not have been made without your
>>>>> support of
>>>>>>>>>> the Foundation. They include:
>>>>>>>>>>
>>>>>>>>>> Vision Restored. We are continuing to build on remarkable gains
>>>>>>>>>> in
>>>>> gene
>>>>>>>>>> therapy. As you may recall, in a Foundation-funded trial,
>>>>>>>>>> 9-year-old
>>>>> Corey
>>>>>>>>>> Haas and 19 others received a gene therapy treatment and can now
>>>>>>>>>> see.
>>>>> And
>>>>>>>>>> as the trial has expanded, participants have shown sustained
>>>>> improvement in
>>>>>>>>>> vision. Building on this success, similar gene therapy treatments
>>>>>>>>>> are moving into clinical trials for choroideremia, Stargardt
>>>>>>>>>> disease and
>>>>> Usher
>>>>>>>>>> syndrome.
>>>>>>>>>>
>>>>>>>>>> Innovative Technology. The high-tech industry has a treatment I'm
>>>>>>>>>> incredibly excited about-- the world's first commercially
>>>>>>>>>> available artificial or "bionic" eye. Early funding from the
>>>>>>>>>> Foundation was key
>>>>> to
>>>>>>>>>> getting this engineered retina off the ground. Building on the
>>>>>>>>>> studies
>>>>> we
>>>>>>>>>> funded, the light-sensing, implantable "chip" has been tested in
>>>>>>>>>> a
>>>>> clinical
>>>>>>>>>> trial in Europe with great results. In the study, people who were
>>>>> profoundly
>>>>>>>>>> blind experienced improved vision that could help them to be more
>>>>>>>>>> independent. In fact, many can now see shapes and recognize large
>>>>> letters.
>>>>>>>>>>
>>>>>>>>>> Groundbreaking Therapies. A research team funded by the
>>>>>>>>>> Foundation
>>>>> Fighting
>>>>>>>>>> Blindness developed an innovative technique for correcting the
>>>>>>>>>> disease-causing gene by using stem cells derived from a person's
>>>>>>>>>> skin.
>>>>> While
>>>>>>>>>> more work is needed to ensure safety, this advancement suggests
>>>>>>>>>> that
>>>>> doctors
>>>>>>>>>> may someday be able to treat a patient's retinal disease using
>>>>>>>>>> their
>>>>> own
>>>>>>>>>> skin cells.
>>>>>>>>>> These few accomplishments barely begin to tell the story of all
>>>>>>>>>> the
>>>>> progress
>>>>>>>>>> that's being made. And this is why words can never express my
>>>>>>>>>> personal gratitude for your passionate and committed support.
>>>>>>>>>>
>>>>>>>>>> I hope you will take a few minutes to watch the video and see the
>>>>> results of
>>>>>>>>>> your support and the hope it has generated. But most importantly,
>>>>>>>>>> I
>>>>> hope you
>>>>>>>>>> will see that research is progressing at a terrific rate. It's
>>>>>>>>>> been a
>>>>> long
>>>>>>>>>> time coming, but we crossed a critical threshold when our
>>>>>>>>>> researchers actually restored sight. It launched us into a new
>>>>>>>>>> era
>>>>>>>>>> when more and
>>>>> more
>>>>>>>>>> people will have their sight saved or restored every year. A lot
>>>>>>>>>> of
>>>>> work
>>>>>>>>>> remains. But we'll get there by continuing to work together.
>>>>>>>>>>
>>>>>>>>>> The Foundation Fighting Blindness values the support you give us
>>>>>>>>>> by donating, talking to your friends, and advocating for
>>>>>>>>>> increased
>>>>> research
>>>>>>>>>> funding. As we continue our relentless pursuit to eradicate
>>>>>>>>>> blindness,
>>>>> we
>>>>>>>>>> hope you will continue your steadfast support of our mission.
>>>>>>>>>> Thanks
>>>>> for
>>>>>>>>>> envisioning a bright future for the millions affected by retinal
>>>>>>>>>> degenerative diseases.
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> Sincerely,
>>>>>>>>>>
>>>>>>>>>> Gordon Gund
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> Check us out on:
>>>>>>>>>>
>>>>>>>>>> Tell a Friend | Subscribe | Change email address | Unsubscribe
>>>>>>>>>> Foundation Fighting Blindness www.FightBlindness.org
>>>>>>>>>> 7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
>>>>>>>>>> 1-800-683-5555
>>>>>>>>>>
>>>>>>>>>> nonprofit software
>>>>>>>>>> _______________________________________________
>>>>>>>>>> nfb-talk mailing list
>>>>>>>>>> nfb-talk at nfbnet.org
>>>>>>>>>> http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>>>>>> To unsubscribe, change your list options or get your account info
>>>>>>>>>> for
>>>>>>>>>> nfb-talk:
>>>>>>>>>>
>>>>> http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria%40webba
>>>>>>>>>> nd.com
>>>>>>>>>>
>>>>>>>>>>
>>>>>>>>>> _______________________________________________
>>>>>>>>>> nfb-talk mailing list
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>>>>> nfb-talk:
>>>>>>>>>>
>>>>> http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/srbaker12%40hotmai
>>>>> l.com
>>>>>>>>>
>>>>>>>>> _______________________________________________
>>>>>>>>> nfb-talk mailing list
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>>>>> home.com
>>>>>>>>
>>>>>>>>
>>>>>>>> _______________________________________________
>>>>>>>> nfb-talk mailing list
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>>>>> l.com
>>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>> _______________________________________________
>>>>>>> nfb-talk mailing list
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>>>>> http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/john%40johnheim.ne
>>>>> t
>>>>>>
>>>>>>
>>>>>> _______________________________________________
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