[nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund

T. Joseph Carter carter.tjoseph at gmail.com
Mon Apr 25 20:54:12 UTC 2011 

Likewise Terry, as I have said before on this issue, if I could take 
a magic pill to fix my acuity, I would probably not bother.  Now if I 
could take a magic pill to fix light sensitivity, I would, even if it 
fixed my acuity in the process.  The acuity isn't a big deal to me 
anymore, but headaches are not fun.

Joseph

On Mon, Apr 25, 2011 at 03:11:00PM -0400, Powers, Terry (NIH/OD/DEAS) [E] wrote:
>I have low partial sight and any day would rather keep what I have than take the risk of loosing what little I have.  I any day would rather be blind and be heald of my epelepsi.  The epelepsi has taken a tole on my memory and caused me to hold a lower paying job than if I just had my blindness and other health problems.
>
>Terry Powers
>
>
>-----Original Message-----
>From: Jeanette Fortin [mailto:jeanette at fortin-home.com]
>Sent: Saturday, April 23, 2011 12:15 AM
>To: NFB Talk Mailing List
>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund
>
>there is no way i'd pass up the opportunity  to regain my vision, but i am content to live with what i have.  i do not feel this is a contradiction.
>most blind folks i know would love to see, but are content not seeing, i cannot imagine turning my back on the opportunity to see.
>----- Original Message -----
>From: "Constance Canode" <satin-bear at sbcglobal.net>
>To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
>Sent: Friday, April 22, 2011 8:51 PM
>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund
>
>
>> If someone came up to me today and said they could give me full sight,
>> I would tell them unequivocally to get lost.  I am a well-adjusted
>> person and I have lived my life in a happy and secure manner, I work,
>> own a home and am happily married.  I have done everything I want to
>> do as a blind person, travel, shop, etc.  The part of the brain that
>> knows how to see has never worked on those of us who have never seen
>> anything and it would be a tremendous aadjustment, the same as a
>> sighted person losing their vision all at once.  Besides, they are not
>> restoring what you have never had...sight. What a shock it would be to
>> see a car coming towards you or your own face.  I have always joked
>> that my face would probably be a disappointment, another reason that
>> makeup has always been a priority for me.
>> At 03:45 PM 4/22/2011, you wrote:
>>>I'm  uncertain as to what you mean.  I said I'd rather not be blind.
>>>Are you saying you prefer to be blind?
>>>
>>>----- Original Message ----- From: "Gloria Whipple"
>>><ladygloria at webband.com>
>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>Sent: Friday, April 22, 2011 3:25 PM
>>>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom
>>>ChairmanGordon Gund
>>>
>>>
>>>>To each his own!
>>>>
>>>>
>>>>Gloria Whipple
>>>>Corresponding Secretary
>>>>Inland Empire chapter
>>>>nfb of WA
>>>>
>>>>
>>>>-----Original Message-----
>>>>From: nfb-talk-bounces at nfbnet.org
>>>>[mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of John Heim
>>>>Sent: Friday, April 22, 2011 12:54
>>>>To: NFB Talk Mailing List
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom
>>>>ChairmanGordon Gund
>>>>
>>>>Yes, Gloria, call me crazy but I'd prefer not to be blind.  Thanks
>>>>for caring though.
>>>>
>>>>
>>>>
>>>>----- Original Message ----- From: "Gloria Whipple"
>>>><ladygloria at webband.com>
>>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>Sent: Friday, April 22, 2011 11:11 AM
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom
>>>>ChairmanGordon Gund
>>>>
>>>>
>>>>>Bull. Are you in that category? I feel for you if you are.
>>>>>
>>>>>Sure it would be nice if sight could be given to those who want it,
>>>>>but it isn't the end of the world!
>>>>>
>>>>>
>>>>>Gloria Whipple
>>>>>Corresponding Secretary
>>>>>Inland Empire chapter
>>>>>nfb of WA
>>>>>
>>>>>
>>>>>-----Original Message-----
>>>>>From: nfb-talk-bounces at nfbnet.org
>>>>>[mailto:nfb-talk-bounces at nfbnet.org]
>>>>>On
>>>>>Behalf Of John Heim
>>>>>Sent: Friday, April 22, 2011 07:02
>>>>>To: NFB Talk Mailing List
>>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>ChairmanGordon Gund
>>>>>
>>>>>A lot of people don't like being blind. In fact, I would say that
>>>>>most people who are blind would prefer not to be blind.
>>>>>
>>>>>----- Original Message ----- From: "Gloria Whipple"
>>>>><ladygloria at webband.com>
>>>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>>Sent: Thursday, April 21, 2011 4:19 PM
>>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>ChairmanGordon
>>>>>
>>>>>Gund
>>>>>
>>>>>
>>>>>>What in the heck is wrong with being blind!
>>>>>>
>>>>>>
>>>>>>Gloria Whipple
>>>>>>Corresponding Secretary
>>>>>>Inland Empire chapter
>>>>>>nfb of WA
>>>>>>
>>>>>>
>>>>>>-----Original Message-----
>>>>>>From: nfb-talk-bounces at nfbnet.org
>>>>>>[mailto:nfb-talk-bounces at nfbnet.org]
>>>>>>On
>>>>>>Behalf Of S Baker
>>>>>>Sent: Thursday, April 21, 2011 14:14
>>>>>>To: AMoLList
>>>>>>Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman
>>>>>>Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>SRBaker
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>>From: GGund at FightBlindness.org
>>>>>>To: srbaker at charter.net
>>>>>>Subject: A personal report from Chairman Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Like you, Steven, I follow the work of the Foundation Fighting
>>>>>>Blindness closely. As a donor, I want to know that my donations
>>>>>>make a difference.
>>>>>>
>>>>>>And believe me, they do.  When I reflect on the last year and
>>>>>>listen to this video, I am reminded that we have more clinical
>>>>>>trials for sight-saving treatments underway than ever before.
>>>>>>Clearly, hope and optimism are running high.  Incredible strides
>>>>>>have been made in the last few years, and these remarkable advances
>>>>>>would not have been made without your support of the Foundation.
>>>>>>They include:
>>>>>>
>>>>>>Vision Restored.  We are continuing to build on remarkable gains in
>>>>>>gene therapy.  As you may recall, in a Foundation-funded trial,
>>>>>>9-year-old Corey Haas and 19 others received a gene therapy
>>>>>>treatment and can now see.
>>>>>>And
>>>>>>as the trial has expanded, participants have shown sustained
>>>>>>improvement in vision.  Building on this success, similar gene
>>>>>>therapy treatments are moving into clinical trials for
>>>>>>choroideremia, Stargardt disease and Usher syndrome.
>>>>>>
>>>>>>Innovative Technology.  The high-tech industry has a treatment I'm
>>>>>>incredibly excited about-- the world's first commercially available
>>>>>>artificial or "bionic" eye. Early funding from the Foundation was
>>>>>>key to getting this engineered retina off the ground.  Building on
>>>>>>the studies we funded, the light-sensing, implantable "chip" has
>>>>>>been tested in a clinical trial in Europe with great results. In
>>>>>>the study, people who were profoundly blind experienced improved
>>>>>>vision that could help them to be more independent.  In fact, many
>>>>>>can now see shapes and recognize large letters.
>>>>>>
>>>>>>Groundbreaking Therapies.  A research team funded by the Foundation
>>>>>>Fighting Blindness developed an innovative technique for correcting
>>>>>>the disease-causing gene by using stem cells derived from a
>>>>>>person's skin.
>>>>>>While
>>>>>>more work is needed to ensure safety, this advancement suggests
>>>>>>that doctors may someday be able to treat a patient's retinal
>>>>>>disease using their own skin cells.
>>>>>>These few accomplishments barely begin to tell the story of all the
>>>>>>progress that's being made.  And this is why words can never
>>>>>>express my personal gratitude for your passionate and committed
>>>>>>support.
>>>>>>
>>>>>>I hope you will take a few minutes to watch the video and see the
>>>>>>results of your support and the hope it has generated. But most
>>>>>>importantly, I hope you will see that research is progressing at a
>>>>>>terrific rate.  It's been a long time coming, but we crossed a
>>>>>>critical threshold when our researchers actually restored sight. It
>>>>>>launched us into a new era when more and more people will have
>>>>>>their sight saved or restored every year.  A lot of work remains.
>>>>>>But we'll get there by continuing to work together.
>>>>>>
>>>>>>The Foundation Fighting Blindness values the support you give us by
>>>>>>donating, talking to your friends, and advocating for increased
>>>>>>research funding.  As we continue our relentless pursuit to
>>>>>>eradicate blindness, we hope you will continue your steadfast
>>>>>>support of our mission. Thanks for envisioning a bright future for
>>>>>>the millions affected by retinal degenerative diseases.
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Sincerely,
>>>>>>
>>>>>>Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Check us out on:
>>>>>>
>>>>>>Tell a Friend  |  Subscribe  |  Change email address  |
>>>>>>Unsubscribe Foundation Fighting Blindness www.FightBlindness.org
>>>>>>7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
>>>>>>1-800-683-5555
>>>>>>
>>>>>>nonprofit software
>>>>>>_______________________________________________
>>>>>>nfb-talk mailing list
>>>>>>nfb-talk at nfbnet.org
>>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>>To unsubscribe, change your list options or get your account info
>>>>>>for
>>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria%
>>>>40webba
>>>>>>nd.com
>>>>>>
>>>>>>
>>>>>>_______________________________________________
>>>>>>nfb-talk mailing list
>>>>>>nfb-talk at nfbnet.org
>>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>>To unsubscribe, change your list options or get your account info
>>>>>>for
>>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/john%40john
>>>>heim.ne
>>>>>t
>>>>>
>>>>>
>>>>>_______________________________________________
>>>>>nfb-talk mailing list
>>>>>nfb-talk at nfbnet.org
>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>To unsubscribe, change your list options or get your account info
>>>>>for
>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria%
>>>>40webba
>>>>>nd.com
>>>>>
>>>>>
>>>>>_______________________________________________
>>>>>nfb-talk mailing list
>>>>>nfb-talk at nfbnet.org
>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>To unsubscribe, change your list options or get your account info
>>>>>for
>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/john%40john
>>>>heim.ne
>>>>t
>>>>
>>>>
>>>>_______________________________________________
>>>>nfb-talk mailing list
>>>>nfb-talk at nfbnet.org
>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>To unsubscribe, change your list options or get your account info for
>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria%
>>>>40webba
>>>>nd.com
>>>>
>>>>
>>>>_______________________________________________
>>>>nfb-talk mailing list
>>>>nfb-talk at nfbnet.org
>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>To unsubscribe, change your list options or get your account info for
>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/john%40john
>>>>heim.net
>>>
>>>
>>>_______________________________________________
>>>nfb-talk mailing list
>>>nfb-talk at nfbnet.org
>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>To unsubscribe, change your list options or get your account info for
>>>nfb-talk:
>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/satin-bear%4
>>>0sbcglobal.net
>>
>>
>>
>> _______________________________________________
>> nfb-talk mailing list
>> nfb-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> nfb-talk:
>> http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/jeanette%40f
>> ortin-home.com
>
>
>_______________________________________________
>nfb-talk mailing list
>nfb-talk at nfbnet.org
>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>To unsubscribe, change your list options or get your account info for nfb-talk:
>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/terry.powers%40nih.gov
>
>_______________________________________________
>nfb-talk mailing list
>nfb-talk at nfbnet.org
>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>To unsubscribe, change your list options or get your account info for nfb-talk:
>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/carter.tjoseph%40gmail.com

More information about the nFB-Talk mailing list