[nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund

Powers, Terry (NIH/OD/DEAS) [E] Terry.Powers at nih.gov
Mon Apr 25 19:11:00 UTC 2011 

I have low partial sight and any day would rather keep what I have than take the risk of loosing what little I have.  I any day would rather be blind and be heald of my epelepsi.  The epelepsi has taken a tole on my memory and caused me to hold a lower paying job than if I just had my blindness and other health problems.  

Terry Powers
 

-----Original Message-----
From: Jeanette Fortin [mailto:jeanette at fortin-home.com] 
Sent: Saturday, April 23, 2011 12:15 AM
To: NFB Talk Mailing List
Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund

there is no way i'd pass up the opportunity  to regain my vision, but i am content to live with what i have.  i do not feel this is a contradiction. 
most blind folks i know would love to see, but are content not seeing, i cannot imagine turning my back on the opportunity to see.
----- Original Message -----
From: "Constance Canode" <satin-bear at sbcglobal.net>
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Sent: Friday, April 22, 2011 8:51 PM
Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund


> If someone came up to me today and said they could give me full sight, 
> I would tell them unequivocally to get lost.  I am a well-adjusted 
> person and I have lived my life in a happy and secure manner, I work, 
> own a home and am happily married.  I have done everything I want to 
> do as a blind person, travel, shop, etc.  The part of the brain that 
> knows how to see has never worked on those of us who have never seen 
> anything and it would be a tremendous aadjustment, the same as a 
> sighted person losing their vision all at once.  Besides, they are not 
> restoring what you have never had...sight. What a shock it would be to 
> see a car coming towards you or your own face.  I have always joked 
> that my face would probably be a disappointment, another reason that 
> makeup has always been a priority for me.
> At 03:45 PM 4/22/2011, you wrote:
>>I'm  uncertain as to what you mean.  I said I'd rather not be blind. 
>>Are you saying you prefer to be blind?
>>
>>----- Original Message ----- From: "Gloria Whipple" 
>><ladygloria at webband.com>
>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>Sent: Friday, April 22, 2011 3:25 PM
>>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom 
>>ChairmanGordon Gund
>>
>>
>>>To each his own!
>>>
>>>
>>>Gloria Whipple
>>>Corresponding Secretary
>>>Inland Empire chapter
>>>nfb of WA
>>>
>>>
>>>-----Original Message-----
>>>From: nfb-talk-bounces at nfbnet.org 
>>>[mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of John Heim
>>>Sent: Friday, April 22, 2011 12:54
>>>To: NFB Talk Mailing List
>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
>>>ChairmanGordon Gund
>>>
>>>Yes, Gloria, call me crazy but I'd prefer not to be blind.  Thanks 
>>>for caring though.
>>>
>>>
>>>
>>>----- Original Message ----- From: "Gloria Whipple" 
>>><ladygloria at webband.com>
>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>Sent: Friday, April 22, 2011 11:11 AM
>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
>>>ChairmanGordon Gund
>>>
>>>
>>>>Bull. Are you in that category? I feel for you if you are.
>>>>
>>>>Sure it would be nice if sight could be given to those who want it, 
>>>>but it isn't the end of the world!
>>>>
>>>>
>>>>Gloria Whipple
>>>>Corresponding Secretary
>>>>Inland Empire chapter
>>>>nfb of WA
>>>>
>>>>
>>>>-----Original Message-----
>>>>From: nfb-talk-bounces at nfbnet.org 
>>>>[mailto:nfb-talk-bounces at nfbnet.org]
>>>>On
>>>>Behalf Of John Heim
>>>>Sent: Friday, April 22, 2011 07:02
>>>>To: NFB Talk Mailing List
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from 
>>>>ChairmanGordon Gund
>>>>
>>>>A lot of people don't like being blind. In fact, I would say that 
>>>>most people who are blind would prefer not to be blind.
>>>>
>>>>----- Original Message ----- From: "Gloria Whipple" 
>>>><ladygloria at webband.com>
>>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>Sent: Thursday, April 21, 2011 4:19 PM
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from 
>>>>ChairmanGordon
>>>>
>>>>Gund
>>>>
>>>>
>>>>>What in the heck is wrong with being blind!
>>>>>
>>>>>
>>>>>Gloria Whipple
>>>>>Corresponding Secretary
>>>>>Inland Empire chapter
>>>>>nfb of WA
>>>>>
>>>>>
>>>>>-----Original Message-----
>>>>>From: nfb-talk-bounces at nfbnet.org 
>>>>>[mailto:nfb-talk-bounces at nfbnet.org]
>>>>>On
>>>>>Behalf Of S Baker
>>>>>Sent: Thursday, April 21, 2011 14:14
>>>>>To: AMoLList
>>>>>Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman 
>>>>>Gordon Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>SRBaker
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>From: GGund at FightBlindness.org
>>>>>To: srbaker at charter.net
>>>>>Subject: A personal report from Chairman Gordon Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Like you, Steven, I follow the work of the Foundation Fighting 
>>>>>Blindness closely. As a donor, I want to know that my donations 
>>>>>make a difference.
>>>>>
>>>>>And believe me, they do.  When I reflect on the last year and 
>>>>>listen to this video, I am reminded that we have more clinical 
>>>>>trials for sight-saving treatments underway than ever before.  
>>>>>Clearly, hope and optimism are running high.  Incredible strides 
>>>>>have been made in the last few years, and these remarkable advances 
>>>>>would not have been made without your support of the Foundation. 
>>>>>They include:
>>>>>
>>>>>Vision Restored.  We are continuing to build on remarkable gains in 
>>>>>gene therapy.  As you may recall, in a Foundation-funded trial, 
>>>>>9-year-old Corey Haas and 19 others received a gene therapy 
>>>>>treatment and can now see.
>>>>>And
>>>>>as the trial has expanded, participants have shown sustained 
>>>>>improvement in vision.  Building on this success, similar gene 
>>>>>therapy treatments are moving into clinical trials for 
>>>>>choroideremia, Stargardt disease and Usher syndrome.
>>>>>
>>>>>Innovative Technology.  The high-tech industry has a treatment I'm 
>>>>>incredibly excited about-- the world's first commercially available 
>>>>>artificial or "bionic" eye. Early funding from the Foundation was 
>>>>>key to getting this engineered retina off the ground.  Building on 
>>>>>the studies we funded, the light-sensing, implantable "chip" has 
>>>>>been tested in a clinical trial in Europe with great results. In 
>>>>>the study, people who were profoundly blind experienced improved 
>>>>>vision that could help them to be more independent.  In fact, many 
>>>>>can now see shapes and recognize large letters.
>>>>>
>>>>>Groundbreaking Therapies.  A research team funded by the Foundation 
>>>>>Fighting Blindness developed an innovative technique for correcting 
>>>>>the disease-causing gene by using stem cells derived from a 
>>>>>person's skin.
>>>>>While
>>>>>more work is needed to ensure safety, this advancement suggests 
>>>>>that doctors may someday be able to treat a patient's retinal 
>>>>>disease using their own skin cells.
>>>>>These few accomplishments barely begin to tell the story of all the 
>>>>>progress that's being made.  And this is why words can never 
>>>>>express my personal gratitude for your passionate and committed 
>>>>>support.
>>>>>
>>>>>I hope you will take a few minutes to watch the video and see the 
>>>>>results of your support and the hope it has generated. But most 
>>>>>importantly, I hope you will see that research is progressing at a 
>>>>>terrific rate.  It's been a long time coming, but we crossed a 
>>>>>critical threshold when our researchers actually restored sight. It 
>>>>>launched us into a new era when more and more people will have 
>>>>>their sight saved or restored every year.  A lot of work remains.  
>>>>>But we'll get there by continuing to work together.
>>>>>
>>>>>The Foundation Fighting Blindness values the support you give us by 
>>>>>donating, talking to your friends, and advocating for increased 
>>>>>research funding.  As we continue our relentless pursuit to 
>>>>>eradicate blindness, we hope you will continue your steadfast 
>>>>>support of our mission. Thanks for envisioning a bright future for 
>>>>>the millions affected by retinal degenerative diseases.
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Sincerely,
>>>>>
>>>>>Gordon Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>Check us out on:
>>>>>
>>>>>Tell a Friend  |  Subscribe  |  Change email address  |  
>>>>>Unsubscribe Foundation Fighting Blindness www.FightBlindness.org
>>>>>7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
>>>>>1-800-683-5555
>>>>>
>>>>>nonprofit software
>>>>>_______________________________________________
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>>>40webba
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>>>>>
>>>>>
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>>>heim.ne
>>>>t
>>>>
>>>>
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>>>40webba
>>>>nd.com
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>>>>
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>>
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>>0sbcglobal.net
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