[nfb-talk] A little concerned about this new drug aimed at totally blind population

[Mike Freeman]

As long as we keep things civil and don't discuss the situation to death,
there's no problem in discussing on-list. But I have no problems discussing
off-list, either.

But don't worry; I think an awful lot of medical studies are flawed so
Vanda's work isn't unique in that department in my book.

Just know that, as a physics major, I tend to believe that any study with
less than, say, three hundred thousand subjects, is suspect. So I have
problems with many medical and/or sociological studies. (grin)

Mike


-----Original Message-----
From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Loren
Wakefield
Sent: Saturday, February 01, 2014 6:14 PM
To: 'NFB Talk Mailing List'
Subject: Re: [nfb-talk] A little concerned about this new drug aimed at
totally blind population

Mike,  

Since I can't disagree with you onlist, will you write me offlist and I will
tell you some things I know personally.  


Loren 


-----Original Message-----
From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Mike
Freeman
Sent: Saturday, February 01, 2014 6:26 PM
To: 'NFB Talk Mailing List'
Subject: Re: [nfb-talk] A little concerned about this new drug aimed at
totally blind population

For SF fans, I wonder how the humanoids in Isaac Asimov's famous story
"nightfall" did viz. non-24? You will remember that they lived on the planet
Kalgash in whose skies six suns shown such that there was true darkness only
once every two thousand (or was it six thousand) years.

Mike


-----Original Message-----
From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Karen Rose
Sent: Saturday, February 01, 2014 4:22 PM
To: NFB Talk Mailing List
Cc: NFB Talk Mailing List
Subject: Re: [nfb-talk] A little concerned about this new drug aimed at
totally blind population

Have you seen any studies that attempt to understand why some totally blind
people have this condition and others do not. I have been totally blind
since birth and have never had any problem whatsoever sleeping. Smile.
However I have eight fully cited client who seems to exhibit all of the sock
of this condition. Karen

Sent from my iPhone

> On Feb 1, 2014, at 4:01 PM, Michael Bullis <bullis.michael at gmail.com>
wrote:
> 
> I have been following the studies on this subject for almost 40 years 
> now. It is a real and valid problem for some people who have little or 
> no light perception. There have been many studies and much validation.
> Although I think the advertisements are a bit stupid, the problem they 
> are trying to solve, and it would appear, that the drug they're trying 
> to use, does work.
> 
> Sent from my iPhone
> 
>> On Feb 1, 2014, at 6:39 PM, Mike Freeman <k7uij at panix.com> wrote:
>> 
>> Steve:
>> 
>> Obviously, I agree with you on all counts.
>> 
>> In addition, while at the national Center, I heard a number of ads 
>> pushing hetlioz and I found it amusing that they start out with a 
>> supposedly blind person saying: "You can't see me because this is 
>> radio. I can't see you because I'm totally blind." AS if he wasn't 
>> also
on the radio!
>> 
>> While not denying that some may find the drug helpful, I must say 
>> that, like you, I do not think nearly enough work has been done using 
>> controls and I'd bet good money that no pluscebo-controlled, 
>> double-blind studies have been done.
>> 
>> Mike Freeman
>> 
>> 
>> -----Original Message-----
>> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of 
>> Steve Jacobson
>> Sent: Saturday, February 01, 2014 2:24 PM
>> To: NFB Talk Mailing List
>> Subject: Re: [nfb-talk] A little concerned about this new drug aimed 
>> at totally blind population
>> 
>> Hi,
>> 
>> I have also been uneasy about all of this, but I recognize I don't 
>> know all there is to know about all this.  Because One is blind and 
>> doesn't seem to

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