[NFB_of_Georgia] Fwd: [Nfbnet-members-list] Blind and low-vision adults needed for research study on precision medicine

[Dorothy Griffin]

Information For You.
---------- Forwarded message ---------
From: Blake, Lou Ann via NFBNet-Members-List <nfbnet-members-list at nfbnet.org
>
Date: Mon, May 2, 2022 at 1:02 PM
Subject: [Nfbnet-members-list] Blind and low-vision adults needed for
research study on precision medicine
To: nfbnet-members-list at nfbnet.org <nfbnet-members-list at nfbnet.org>


The below research participant solicitation is being provided for
informational purposes only. The National Federation of the Blind has no
involvement in this research, but we believe that it may contribute to our
research mission.

We invite you to participate in a study at Columbia University that
explores issues of trust in a type of medical research called “precision
medicine research.” This looks at a person’s genetics, environment, and lif
estyle. It can help physicians improve prevention and diagnosis of diseases
and develop new treatments.

You are invited because you are:

   - A deaf or hard of hearing adult
   - A blind or low vision adult
   - An adult with a mobility disability

Your views are valuable to us.

If you agree, you will be asked to join a 2-hour online focus group to
share your thoughts about precision medicine. You do NOT need to have prior
knowledge about precision medicine research to participate in this study.

The study will help us understand what deaf or hard of hearing adults,
blind or low vision adults and adults with mobility disabilities think
about how precision medicine researchers and research institutions can be
more responsive to the needs of persons with disabilities.

The focus group will be conducted using the online app *Zoom*. It will be
available in English, Spanish, and American Sign Language. CART Captioning
will be available, as needed. You choose the language that works best for
you. Focus group dates and times will be scheduled soon.

You are offered a $50 gift card for participating in our focus group.

If you are interested, please contact Research Assistant, Madeleine
Gibbons-Shapiro, at msg2217 at cumc.columbia.edu. You will be asked to
complete a short online survey about your background and convenient times
for participation. If you need any accommodations, please let us know.

If you have any questions, please contact the Principal Investigator, Dr.
Maya Sabatello, at ms4075 at cumc.columbia.edu.

Thank you in advance for your help.

Sincerely,

Maya Sabatello, LLB, PhD

Associate Professor of Medical Sciences

Co-Director, Precision Medicine: Ethics, Politics, and Culture Project

Department of Medicine and Department of Medical Humanities & Ethics

Columbia University





Lou Ann Blake, J.D.

Director of Research Programs, Blindness Initiatives

200 East Wells Street, Baltimore, MD 21230

410-659-9314, extension 2221 | lblake at nfb.org





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-- 
Dorothy Griffin - President
National Federation of the Blind of Georgia
dgriffin at nfbga.org
770-374-4832

The National Federation of the Blind knows that blindness is not the
characteristic that defines you or your future. Every day we raise the
expectations of blind people, because low expectations create obstacles
between blind people and our dreams. You can live the life you want;
blindness is not what holds you back.
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