[Nfbc-info] Mentor for the parent of a blind student with ONH in Southern CA?

DrV icdx1111 at gmail.com
Sun Sep 30 00:45:37 UTC 2018


My understanding is that unfortunately the NOPBC in CA is not particularly
active.
I suggest you contact:
Carlton Cook Walker , President
National Organization of Parents of Blind Children
NOPBCpres at gmail.com  -  (717) 658-9894
-----

On Sat, Sep 29, 2018 at 5:17 PM Christopher Sabine, ONH Consulting via
NFBC-Info <nfbc-info at nfbnet.org> wrote:

> Erica.
>
> Thanks so much for your very thorough and comprehensive email.
>
> Unfortunately, the mother cannot attend state convention and has myriad
> other personal issues that she is dealing with. I am familiar with NOBPC
> and plan to write an article in "future Reflections" in the coming months
> on my own experience learning to read Braille. The child has other mental
> and physical health conditions and the mother has a pending application for
> Regional Center Services in Orange County, among everything else that she
> is dealing with.
>
> Do you know if the NOPBC Chapter in CA is active? Ohio had a chapter for
> some time but it folded due to lack of support.
>
>
> Very Best,
>
> Chris
> -----Original Message-----
> From: NFBC-Info [mailto:nfbc-info-bounces at nfbnet.org] On Behalf Of DrV
> via NFBC-Info
> Sent: Saturday, September 29, 2018 6:04 PM
> To: NFB of California List
> Cc: DrV
> Subject: Re: [Nfbc-info] Mentor for the parent of a blind student with ONH
> in Southern CA?
>
> Hi Christopher,
>
> I suggest she connect with NOPBC directly. Everyone’s situation is so very
> different.
>
> Below are a couple direct NOPBC links for her to explore.
>
> I think the best forum for her to start reaching out to connect with
> parents & caring VI professionals with a broad spectrum of situations &
> experiences is the NOPBC Facebook group. The group is very active with
> daily posts & is incredibly supportive & helpful. I think that using that
> venue she will find the most helpful & functional advice that she can apply
> to her specific situation. There are quite a few parents/families in the
> group who live in California, but may not be that well connected with the
> local NFB – I met one such family at an out of state beach this summer!
>
> I also strongly recommend that she sign up to received Future Reflections
> which is has many inspiring stories, articles, & perspectives.
>
> I can’t over-recommend that she be encouraged to attend next year’s NFB
> Convention in Vegas – not that far away from Orange County – LOTS of
> parents & great talks & seminars & experiences for parents & kids of all
> ages (if finances are an impeding issue, perhaps she could apply for a
> scholarship/sponsorship).
>
> In the spring there is the CTEBVI Conference for TVIs, transcribers, &
> parents with a wide variety of great workshop topics & tons of
> braille-focused resources & one of the best exhibit halls. The whole
> conference has great stuff for parents, but they have parent strand & in
> recent years there has been a whole day parent workshop. It flips between
> Northern & Southern CA every other year.
>
> I’ll echo Tim’s invitation & suggestion she attend the California State
> Convention in a few weeks – it’s pretty local for her. I have to work
> Friday morning, but will be there for the rest of the convention & am
> certainly happy to talk to any parent who attends.
>
>
>
> NOPBC Facebook Page: www.facebook.com/groups/331066810353777/
>
> NOPBC Webpage: https://nopbc.org
>
> NOPBC Listserv: www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>
> NOPBC Future Reflection Magazine:https://nfb.org/future-reflections
>
> NFB of California State Convention: www.nfbcal.org/convention
>
> CTEBVI Conference www.ctebvi.org/workshops.html
>
>
>
> All the best,
>
> Eric Vasiliauskas
>
>
>
> On Fri, Sep 28, 2018 at 12:10 PM Tim Elder via NFBC-Info <
> nfbc-info at nfbnet.org> wrote:
>
> > Chris,
> >
> > She should come to our convention on October 25-28 in Los Angeles.
> > http://www.nfbcal.org/convention/
> >
> > ON Saturday, October 27, at 12:30 PM, we have an expert panel of IDEA and
> > special dedication topics that are specifically targeted at parents.  It
> > would be a great opportunity for her to meet other parents and learn
> about
> > the basic concepts and legal rights.  We could better assess her
> situation
> > and connect her with a mentor if she comes to the convention.
> >
> > Regards,
> >
> > Tim
> >
> > -----Original Message-----
> > From: NFBC-Info <nfbc-info-bounces at nfbnet.org> On Behalf Of Christopher
> > Sabine, ONH Consulting via NFBC-Info
> > Sent: Wednesday, September 26, 2018 5:28 PM
> > To: 'NFB of California List' <nfbc-info at nfbnet.org>
> > Cc: Christopher Sabine, ONH Consulting <info at onhconsulting.com>
> > Subject: [Nfbc-info] Mentor for the parent of a blind student with ONH in
> > Southern CA?
> >
> > Hello.
> >
> >
> >
> > My name is Christopher Sabine, and I am Secretary of the Federation
> Chapter
> > in Cincinnati, Ohio. I've joined the California list for employment
> related
> > reasons in the past and have posted here previously.
> >
> >
> >
> > I am a consultant for families of children with Optic Nerve Hypoplasia. I
> > am
> > writing because I am potentially about to start working with the mother
> of
> > a
> > child with ONH and total Blindness in Orange County, CA (Huntington
> Beach).
> > The parent is dealing with a lot of personal issues and having difficulty
> > with the TVI at the child's local school formulating an IEP. Do you know
> > where I can determine if NOBPC has a Chapter there and if there is a
> parent
> > who is in a position (personally / professionally) to work with this
> > family?
> > Specifically, I am looking for a parent mentor / advocate who can
> > facilitate
> > IEP meetings for this family and physically attend IEP meetings / serve
> as
> > a
> > coach / voice of reason for this parent as needed. The real issue is that
> > the child needs access to braille instruction. I suspect there may also
> be
> > developmental differences involved that the local educational agency /
> > school district is not in a position to recognize.
> >
> >
> >
> > Any information or referrals would be greatly appreciated.
> >
> >
> >
> > Thanks Much,
> >
> >
> >
> > Chris
> >
> > _______________________________________________
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> > <
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> >
> >
> >
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