[Nfbk] FW: Follow Up to Phone call: Information regarding clinical trial for blind individuals with non 24 hour sleep wake disorder

Cathy cathyj at iglou.com
Sun Dec 19 21:49:12 UTC 2010


-----Original Message-----
From: Brooke Davis [mailto:Brooke.Davis at vandapharma.com]
Sent: Thursday, December 16, 2010 11:14 AM
To: cathyj at iglou.com
Subject: Follow Up to Phone call: Information regarding clinical trial for
blind individuals with non 24 hour sleep wake disorder


Dear Cathy,



It was very nice to talk to you on the phone today. Thank you for offering
to distribute information about the study we are conducting, which is
testing an experimental treatment for individuals who are blind and suffer
from a sleep disorder known as Non-24 Hour Sleep Wake Disorder, to members
of the NFB of Kentucky. I have copied and pasted the study announcement to
the end of this email. I have also attached an information packet about the
disorder to this email. Please feel free to distribute this information to
anyone who would be interested in this trial.





Below is some additional information about the trial that you can send
around as well:

  a.. The site will arrange and cover the cost for all transportation to and
from the site for participants and guardians. Any other requests for travel
arrangements (ie. guide dogs, hotel) will be accommodated.
  b.. There is compensation for participation in the trial.
  c.. Please note that it is possible that some people may report having
some light perception, but also have sleep issues (e.g.  trouble falling
asleep, trouble staying asleep, daytime sleepiness, etc.); we would
encourage these people to call the 1800 number on the announcement, as it is
still possible that they could qualify for the trial.




 We really appreciate you helping us spread the word about this clinical
trial.  If you have any questions or concerns, please don't hesitate to
contact me by phone at 240-599-4535 or by email at
brooke.davis at vandapharma.com. Thanks for all your help.



STUDY ANNOUNCEMENT:

Clinical Research Study Recruitment



Blind individuals with no light perception needed.



A local doctor is conducting research to evaluate a new investigational
treatment for insomnia and daytime sleepiness in individuals who are totally
blind.



Individuals may qualify who:

. are between 18 and 75 years of age

. are blind with no light perception

. have trouble sleeping at night or experience daytime sleepiness



Participants will be compensated for their time and effort and will receive
study medication and study-related medical evaluation at no cost.





For more information

Call 1-888-389-7033

M-F 9:00 AM to 5:00 PM ET





Kind Regards,



Brooke Davis

Senior CRA

Vanda Pharmaceuticals Inc.

9605 Medical Center Drive, Suite 300

Rockville, MD 20850

P: 240-599-4535




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