[Nfbk] FW: A Note of Appreciation
George Stokes
kd4ckt at bellsouth.net
Wed Sep 7 18:46:31 UTC 2011
From: Outreach Mailbox [mailto:outreachbox at vandapharma.com]
Sent: Wednesday, September 07, 2011 9:35 AM
To: kd4ckt at bellsouth.net
Subject: A Note of Appreciation
September
7, 2011
Dear George Stokes,
On behalf of Vanda and all of those who suffer from Non-24-Hour Sleep-Wake
Disorder (N24HSWD or Non-24) we thank you for participating in our sleep
survey. Because of your participation we have so far donated more than
$23,000 to various national and local organizations that support individuals
with blindness. We wish to especially thank those individuals who have
expressed interest in our ongoing clinical study.
The deadline to enroll patients is approaching and we are writing to you now
because we want your help to spread the word about this very important
research among your friends and colleagues who may be interested. Our
research is taking place at 25 locations in the US, and in France and
Germany. However, without enough participants, it will be challenging to
develop a treatment for Non-24.
If you know of anyone who may be interested in our research, please refer
them to 1-888-389-7033. As a reminder, we have set up a registry and a
survey that are available by phone and on the web. Below is the announcement
of our study with phone, email and web contact information and eligibility
criteria.
Your efforts are sincerely appreciated. Thank you for your ongoing support.
Sincerely,
The Vanda Outreach Team
P.S. A screen-reader friendly website (www.24sleepwake.com
<http://www.24sleepwake.com/> ) dedicated to Non-24 is now available. This
site contains News and Information, FAQs, and a forum to share your
experience with Non-24.
Announcement:
Do you ever feel like your sleep patterns are different than the rest of the
world? Do you sometimes feel the unwanted urge or need to fall asleep
during the day time when you need to be awake? Do you also find that you
feel just too wide awake to fall or stay asleep during the night time? If
you are blind, this could be due to a real sleep problem related to the lack
of light needed to keep your body's internal clock in sync with the day and
night cycle. If you or someone you know might be affected, please call
1-888-389-7033 or email <mailto:info at non24registry.com>
info at non24registry.com to learn about an ongoing clinical research study
that is evaluating a new investigational treatment for this type of sleep
problem. When calling or online at <http://www.non24registry.com/>
www.non24registry.com, you can also complete a short sleep survey. For each
completed survey, $25 will be donated to an organization that supports
individuals with blindness. You may be eligible to participate in the
clinical trial if you are between 18 and 75 years of age and are totally
blind. Volunteers will be compensated for their participation in the
clinical study and will receive study related medication, medical
evaluations, and transportation at no cost.
We respect your privacy.
If you no longer wish to receive promotional email from Vanda
Pharmaceuticals, please send an email to
<mailto:unsubscribe at vandapharmaceuticals.com>
unsubscribe at vandapharmaceuticals.com to let us know. Thank you.
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