[nfbmi-talk] Newbie...

fred olver goodfolks at charter.net
Sun Oct 25 17:56:55 CDT 2009


Ray,

You will find much support on this list and others like it. I, myself am 
originally from Michigan and now live in Missouri. I will, suggest a website 
to you, because I wrote a book for folks loosing their vision, I hope you 
find it of use.

It is http://www.dealingwithvisionloss.com

Also, I guess you have been to the NFB website, if not, do a search or go to 
http://www.nfb.org

Fred Olver

----- Original Message ----- 
From: "Raymond Juliano" <rayj1941 at gmail.com>
To: <nfbmi-talk at nfbnet.org>
Sent: Sunday, October 25, 2009 4:21 PM
Subject: [nfbmi-talk] Newbie...


> Hello,
>
> I am new to this site and to the possibility of total blindness.  Two 
> years
> ago I sustained a CRVO of my left eye which has left me legally blind in 
> my
> left eye.  I recently visited the Mayo Clinic where a retinal specialist
> took photos of my right eye and determined that I had atherosclerotic
> changes in my right eye that may result in the same thing happening in my
> good right eye in the future.  I am taking blood thinners...low dose 
> aspirin
> and fish oil to keep my blood thin to hopefully prevent that in my good
> right eye.  I have had numerous eye operations and procedures in my left 
> eye
> over the past two years and am scheduled to have a silicone oil bubble
> placed in my left eye on Dec. 3rd. for 6-12 mos. or indefinitely depending
> on how I tolerate it to control the bleeds that I've been having in my 
> left
> eye which keep me from seeing anything at all out of my left eye.  The 
> CRVO
> has gone from non ischemic to ischemic and has resulted in neovascular
> glaucoma for which I am also being treated.
>
> I decided to get involved in the NFB now to prepare for what might happen
> with my good right eye in the future.  At this time there is no known long
> term cure or treatment for CRVO short of a stem cell retinal implant, 
> which
> my doctor thinks may be a possibility yet in my lifetime, but I am not 
> that
> optimistic, and am doubtful if my vision will ever return to what it was
> prior to the CRVO.  I plan on learning braille as well since I love to 
> read,
> write, play chess, and do so many other things that require sight, but I 
> am
> not willing to give them up if I can learn to deal with potential
> blindness.  I am 68 years of age and the thought of losing all of my 
> vision
> is almost impossible to deal with at this point in time, but I need to
> prepare for that possibilitiy.  Any correspondence from anyone would be 
> very
> much appreciated.  Thank you.
>
> Sincerely,
> Ray Juliano
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