[Nfbv-announce] Non-24-Hour Sleep-Wake Disorder

[Fredric Schroeder]

From: Annie Gallagher [mailto:Annie.Gallagher at vandapharma.com] 
Sent: Friday, January 13, 2012 2:31 PM



 

On behalf of Vanda and all of those who suffer from Non-24-Hour Sleep-Wake
Disorder (Non-24) we thank you for participating in our sleep survey. With
your participation so far we have donated more than $30,000 to various
national and local organizations that support individuals with blindness. We
wish to especially thank those individuals who have expressed interest in
our ongoing clinical study. 

 

The deadline to enroll patients is approaching and we need your help to
spread the word about this very important research among your friends and
colleagues who may be interested.  Our research is taking place at 23
locations in the US, and in France and Germany. However, without enough
participants, it will be challenging to develop a treatment for Non-24. 

 

If you know of anyone who may be interested in our research, please refer
them to 1-888-389-7033.  Below is the announcement of our study with phone,
email and web contact information and eligibility criteria. 

 

Your efforts are sincerely appreciated. Thank you for your ongoing support.


 

Sincerely,

The Vanda Outreach Team

 

 

 

For more on Non-24 visit  <http://www.24sleepwake.com> www.24sleepwake.com,
follow us on Twitter  <http://twitter.com/#!/24SleepWake> @24SleepWake or "
<https://www.facebook.com/pages/24SleepWake/269350616423191?ref=nf&sk=wall>
Like" us on Facebook!

 

 




 

Announcement:

Do you ever feel like your sleep patterns are different than the rest of the
world?  Do you sometimes feel the unwanted urge or need to fall asleep
during the day time when you need to be awake?  Do you also find that you
feel just too wide awake to fall or stay asleep during the night time?  If
you are blind, this could be due to a real sleep problem related to the lack
of light needed to keep your body's internal clock in sync with the day and
night cycle.  If you or someone you know might be affected, please call
1-888-389-7033 or email  <mailto:info at non24registry.com>
info at non24registry.com to learn about an ongoing clinical research study
that is evaluating a new investigational treatment for this type of sleep
problem. When calling or online at  <http://www.non24registry.com/>
www.non24registry.com, you can also complete a short sleep survey.  For each
completed survey, $25 will be donated to an organization that supports
individuals with blindness. You may be eligible to participate in the
clinical trial if you are between 18 and 75 years of age and are totally
blind. Volunteers will be compensated for their participation in the
clinical study and will receive study related medication, medical
evaluations, and transportation at no cost.