[NFBWATLK] Our Vanda story.

[Judy Jones]

A deal has been cut somewhere, I'm almost sure.

Judy


-----Original Message-----
From: NFBWATLK [mailto:nfbwatlk-bounces at nfbnet.org] On Behalf Of Dean
Martineau via NFBWATLK
Sent: Friday, October 26, 2018 9:24 AM
To: 'NFB of Washington Talk Mailing List'
Cc: Dean Martineau
Subject: Re: [NFBWATLK] Our Vanda story.

Vanda, and its drug Hetlioz, strongly exude what a law professor of mine
called the SOR, (Smell of a rat.) Supposedly, some foundation covers the
cost of the drug for those whose insurance companies approve it.  I doubt
any blind person pays the cost for this drug, because almost none could do
so.  It is absurdly expensive.  Somehow, money is changing hands here, and
getting into somebody's pocket, but the whole scheme doesn't make any sense
to me.  

Thought-provoking reading: http://bahaiteachings.org

-----Original Message-----
From: NFBWATLK <nfbwatlk-bounces at nfbnet.org> On Behalf Of Judy Jones via
NFBWATLK
Sent: Friday, October 26, 2018 11:34 AM
To: 'NFB of Washington Talk Mailing List' <nfbwatlk at nfbnet.org>
Cc: Judy Jones <sonshines59 at gmail.com>
Subject: [NFBWATLK] Our Vanda story.

A few years ago, Chris was diagnosed with Non-24, and did a lot of research
to try to get insurance to buy the Vanda drug.

 

He finally got an appointment with a neurologist in the area, who stated
flatly that he would not prescribe Vanda's drug, Hetlioz, because of the
unnecessary expense, when other drugs would fill the bill in being as
affective.  He saved us thousands of dollars by prescribing another drug,
Rozerem. Chris only had to take it about six months, and is no longer
bothered by non-24.  This was back in, I believe, 2015.  

 

When Vanda came to our Idaho convention, I approached them about the drug,
and the rep told me that the drug wouldn't really work, although it is a
derivative of Vanda's drug.  Well, that is not true, and I pointed out that
we had already experienced for ourselves that Rozerem really works, and for
a fraction of the cost, and asked why Vanda's was so expensive.

 

I have been disappointed that NFB got on this band-wagon, when there are
other alternatives out there.

 

Also see link below.

 

https://www.thestreet.com/story/11954365/1/vandas-sleep-disorder-drug-is-a-n
ightmare.html

 

Judy

 

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