[NFBWATLK] Our Vanda story.

[mjc59 at comcast.net]

Judy, I am glad that Kris got and accurate diagnosis and found appropriate treatment.

Marci

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------ Original Message ------

From:'NFB of Washington Talk Mailing List'List'
To:'NFB of Washington Talk Mailing List'List'
Cc:JudyJones
Sent: October 26, 2018 at 9:29 AM
Subject: Re: [NFBWATLK] Our Vanda story.

A deal has been cut somewhere, I'm almost sure. Judy -----Original Message----- From: NFBWATLK [mailto:nfbwatlk-bounces at nfbnet.org] On Behalf Of Dean Martineau via NFBWATLK Sent: Friday, October 26, 2018 9:24 AM To: 'NFB of Washington Talk Mailing List' Cc: Dean Martineau Subject: Re: [NFBWATLK] Our Vanda story. Vanda, and its drug Hetlioz, strongly exude what a law professor of mine called the SOR, (Smell of a rat.) Supposedly, some foundation covers the cost of the drug for those whose insurance companies approve it. I doubt any blind person pays the cost for this drug, because almost none could do so. It is absurdly expensive. Somehow, money is changing hands here, and getting into somebody's pocket, but the whole scheme doesn't make any sense to me. Thought-provoking reading: http://bahaiteachings.org -----Original Message----- From: NFBWATLK On Behalf Of Judy Jones via NFBWATLK Sent: Friday, October 26, 2018 11:34 AM To: 'NFB of Washington Talk Mailing List' Cc: Judy Jones Subje
ct: [NFBWATLK] Our Vanda story. A few years ago, Chris was diagnosed with Non-24, and did a lot of research to try to get insurance to buy the Vanda drug. He finally got an appointment with a neurologist in the area, who stated flatly that he would not prescribe Vanda's drug, Hetlioz, because of the unnecessary expense, when other drugs would fill the bill in being as affective. He saved us thousands of dollars by prescribing another drug, Rozerem. Chris only had to take it about six months, and is no longer bothered by non-24. This was back in, I believe, 2015. When Vanda came to our Idaho convention, I approached them about the drug, and the rep told me that the drug wouldn't really work, although it is a derivative of Vanda's drug. Well, that is not true, and I pointed out that we had already experienced for ourselves that Rozerem really works, and for a fraction of the cost, and asked why Vanda's was so expensive. I have been disappointed that NFB got on this band-wagon, when the
reare other alternatives out there. Also see link below. https://www.thestreet.com/story/11954365/1/vandas-sleep-disorder-drug-is-a-n ightmare.html Judy _______________________________________________ NFBWATLK mailing list NFBWATLK at nfbnet.org http://nfbnet.org/mailman/listinfo/nfbwatlk_nfbnet.org To unsubscribe, change your list options or get your account info for NFBWATLK: http://nfbnet.org/mailman/options/nfbwatlk_nfbnet.org/topdot%40gmail.com _______________________________________________ NFBWATLK mailing list NFBWATLK at nfbnet.org http://nfbnet.org/mailman/listinfo/nfbwatlk_nfbnet.org To unsubscribe, change your list options or get your account info for NFBWATLK: http://nfbnet.org/mailman/options/nfbwatlk_nfbnet.org/sonshines59%40gmail.co m _______________________________________________ NFBWATLK mailing list NFBWATLK at nfbnet.org http://nfbnet.org/mailman/listinfo/nfbwatlk_nfbnet.org To unsubscribe, change your list options or get your account info for NFBWATLK: http://nfbnet.org/
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