[NHLakesChapter] Randy Pierce's Facebook post text

[Dolllady1]

Thank you Andrew. 
Merry Christmas🌲

Sent from my iPad

> On Dec 13, 2025, at 11:33 AM, Andrew via NHLakesChapter <nhlakeschapter at nfbnet.org> wrote:
> 
> 
> Here’s the text from Randy’s facebook post:
>  
> Good Saturday morning, everyone. This is a longer life update.
> After a week here at Mass General Hospital, they will be discharging me later today to head home with Tracy and an aggressive outpatient follow-up plan.
> Unfortunately, we have not yet resolved my situation, but we have  learned a considerable amount and have established a clear outpatient strategy to continue
> that work and carefully coordinate how and when to advance treatments in ways that can truly be meaningful and effective.
> Candidly, this is a mixed bag of news.
> Let me start with three significant positives.
> First, my sleep continues to be pretty solid, with every expectation that this will continue and bring long-term, increasing benefits across every aspect
> of my life.
> Second, we have seemingly minimized or mitigated the migraine challenges to the point that I may return to the infrequent level I experienced before this
> condition began. We will see how that holds up as I transition back home, but there is a reasonably high degree of confidence on this front.
> Finally, and perhaps most positively, there is a deep comfort in being able to return home. I am really looking forward to being there with Tracy, Swirl,
> and Nama.
> All of those genuinely good and hopeful points aside, there are still some significant concerns.
> I can expect frequent episodes of syncope, meaning I may become lightheaded and potentially black out multiple times a day, even with minimal exertion.
> The good news is that this tends to present as a sliding scale, giving me warning to get to a safe place and reduce activity before things escalate. Even
> so, this makes traveling anywhere difficult, including navigating within my own home.
> In addition, my vestibular system is not functioning well. This means I can become vertiginous and sufficiently off balance to fall erratically and dangerously,
> often with little to no warning. This is a very significant risk, especially as a 6’4”, blind guy. While this is not occurring at the extreme level of
> the days when I was asked to remain in a wheelchair full time, it is happening often enough that I must be exceedingly cautious. This will have a meaningful
> impact until we are able to address it more fully.
> As test results continue to come in and studies are completed, the plan will become clearer. In the meantime, the team has asked for a short window of
> patience while we pursue an aggressive outpatient approach. This will involve frequent trips into Boston. Tracy and I will be evaluating how I travel and
> navigate, and for now that will likely mean using a travel wheelchair outside the home, simply because we cannot yet ensure my safety with walking alone.
> This does not mean I should expect to be relegated to a wheelchair long term. It does  mean that, for the short term and outside my home, this is the safest
> choice. I am conflicted about it, but I am also resolved. Safety matters, and I want to make the right decisions, even when they are uncomfortable.
> Appointments are already lining up, including as early as the coming week, which is pretty remarkable.
> Am I nervous and concerned? Absolutely.
> Do I still have the same level of hope and optimism as when we first began this journey here at Mass General? Yes, I honestly do.
> This is a complex situation, and it is not surprising that it takes time. The team is being deliberate and precise, focused on finding the root cause rather
> than simply applying a temporary fix that might mask the real issue and allow it to worsen.
> I suspect many of you may have questions. To be candid, I have plenty myself, and I am still doing a lot of processing. I ask for a bit of grace and patience
> right now. You are welcome to ask, but I likely will not be putting effort into answering questions just yet, as I continue to sort through my own understanding
> and mindset. Perhaps starting next week we can dig into that more.
> What I do know, without question, is how incredibly kind, supportive, and encouraging so many of you have been. Please trust me when I say I appreciate
> it more than most of you will ever know.
> I expect to head home mid to late afternoon today, and I will likely be radio silent until Monday.
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