[NHLakesChapter] Randy Pierce's Facebook post text

[Scott Joffre]

Hey everyone, I hope all is well and you’re all doing all right. It was really nice seeing you guys in the chapter meeting. Here is a link to my YouTube channel, if anyone is interested in checking it out. There are some big things coming pretty soon 🎉 and for anyone who has any video suggestions or questions for me regarding things I’ve reviewed or things you want me to review feel free to leave a comment on one of my videos or message me privately. Thank you all for the love and support and for following me along my journey. Here’s the link below.

https://youtube.com/@theblindstriker?si=_sOQ2KMXlvk19lDk
Scott Joffre Visual Aid Product Tester
Phone 6036300870
Email scottyjoffre at gmail.com

> On Dec 13, 2025, at 12:04 PM, Dolllady1 via NHLakesChapter <nhlakeschapter at nfbnet.org> wrote:
> 
> Thank you Andrew. 
> Merry Christmas🌲
> 
> Sent from my iPad
> 
>>> On Dec 13, 2025, at 11:33 AM, Andrew via NHLakesChapter <nhlakeschapter at nfbnet.org> wrote:
>>> 
>> 
>> Here’s the text from Randy’s facebook post:
>>  
>> Good Saturday morning, everyone. This is a longer life update.
>> After a week here at Mass General Hospital, they will be discharging me later today to head home with Tracy and an aggressive outpatient follow-up plan.
>> Unfortunately, we have not yet resolved my situation, but we have  learned a considerable amount and have established a clear outpatient strategy to continue
>> that work and carefully coordinate how and when to advance treatments in ways that can truly be meaningful and effective.
>> Candidly, this is a mixed bag of news.
>> Let me start with three significant positives.
>> First, my sleep continues to be pretty solid, with every expectation that this will continue and bring long-term, increasing benefits across every aspect
>> of my life.
>> Second, we have seemingly minimized or mitigated the migraine challenges to the point that I may return to the infrequent level I experienced before this
>> condition began. We will see how that holds up as I transition back home, but there is a reasonably high degree of confidence on this front.
>> Finally, and perhaps most positively, there is a deep comfort in being able to return home. I am really looking forward to being there with Tracy, Swirl,
>> and Nama.
>> All of those genuinely good and hopeful points aside, there are still some significant concerns.
>> I can expect frequent episodes of syncope, meaning I may become lightheaded and potentially black out multiple times a day, even with minimal exertion.
>> The good news is that this tends to present as a sliding scale, giving me warning to get to a safe place and reduce activity before things escalate. Even
>> so, this makes traveling anywhere difficult, including navigating within my own home.
>> In addition, my vestibular system is not functioning well. This means I can become vertiginous and sufficiently off balance to fall erratically and dangerously,
>> often with little to no warning. This is a very significant risk, especially as a 6’4”, blind guy. While this is not occurring at the extreme level of
>> the days when I was asked to remain in a wheelchair full time, it is happening often enough that I must be exceedingly cautious. This will have a meaningful
>> impact until we are able to address it more fully.
>> As test results continue to come in and studies are completed, the plan will become clearer. In the meantime, the team has asked for a short window of
>> patience while we pursue an aggressive outpatient approach. This will involve frequent trips into Boston. Tracy and I will be evaluating how I travel and
>> navigate, and for now that will likely mean using a travel wheelchair outside the home, simply because we cannot yet ensure my safety with walking alone.
>> This does not mean I should expect to be relegated to a wheelchair long term. It does  mean that, for the short term and outside my home, this is the safest
>> choice. I am conflicted about it, but I am also resolved. Safety matters, and I want to make the right decisions, even when they are uncomfortable.
>> Appointments are already lining up, including as early as the coming week, which is pretty remarkable.
>> Am I nervous and concerned? Absolutely.
>> Do I still have the same level of hope and optimism as when we first began this journey here at Mass General? Yes, I honestly do.
>> This is a complex situation, and it is not surprising that it takes time. The team is being deliberate and precise, focused on finding the root cause rather
>> than simply applying a temporary fix that might mask the real issue and allow it to worsen.
>> I suspect many of you may have questions. To be candid, I have plenty myself, and I am still doing a lot of processing. I ask for a bit of grace and patience
>> right now. You are welcome to ask, but I likely will not be putting effort into answering questions just yet, as I continue to sort through my own understanding
>> and mindset. Perhaps starting next week we can dig into that more.
>> What I do know, without question, is how incredibly kind, supportive, and encouraging so many of you have been. Please trust me when I say I appreciate
>> it more than most of you will ever know.
>> I expect to head home mid to late afternoon today, and I will likely be radio silent until Monday.
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