[NHLakesChapter] Randy Pierce's Facebook post text

Sun Dec 14 14:35:47 UTC 2025

Thank you for sharing Scott!
I look forward to learning more, have a nice Sunday.
Kindly,
Melissa

On Sat, Dec 13, 2025 at 12:43 PM Scott Joffre via NHLakesChapter <
nhlakeschapter at nfbnet.org> wrote:

> Hey everyone, I hope all is well and you’re all doing all right. It was
> really nice seeing you guys in the chapter meeting. Here is a link to my
> YouTube channel, if anyone is interested in checking it out. There are some
> big things coming pretty soon 🎉 and for anyone who has any video
> suggestions or questions for me regarding things I’ve reviewed or things
> you want me to review feel free to leave a comment on one of my videos or
> message me privately. Thank you all for the love and support and for
> following me along my journey. Here’s the link below.
>
> https://youtube.com/@theblindstriker?si=_sOQ2KMXlvk19lDk
> Scott Joffre Visual Aid Product Tester
> Phone 6036300870
> Email scottyjoffre at gmail.com
>
> On Dec 13, 2025, at 12:04 PM, Dolllady1 via NHLakesChapter <
> nhlakeschapter at nfbnet.org> wrote:
>
> Thank you Andrew.
>
> Merry Christmas🌲
>
> Sent from my iPad
>
> On Dec 13, 2025, at 11:33 AM, Andrew via NHLakesChapter <
> nhlakeschapter at nfbnet.org> wrote:
>
> 
>
> Here’s the text from Randy’s facebook post:
>
>
>
> Good Saturday morning, everyone. This is a longer life update.
>
> After a week here at Mass General Hospital, they will be discharging me
> later today to head home with Tracy and an aggressive outpatient follow-up
> plan.
>
> Unfortunately, we have not yet resolved my situation, but we have  learned
> a considerable amount and have established a clear outpatient strategy to
> continue
>
> that work and carefully coordinate how and when to advance treatments in
> ways that can truly be meaningful and effective.
>
> Candidly, this is a mixed bag of news.
>
> Let me start with three significant positives.
>
> First, my sleep continues to be pretty solid, with every expectation that
> this will continue and bring long-term, increasing benefits across every
> aspect
>
> of my life.
>
> Second, we have seemingly minimized or mitigated the migraine challenges
> to the point that I may return to the infrequent level I experienced before
> this
>
> condition began. We will see how that holds up as I transition back home,
> but there is a reasonably high degree of confidence on this front.
>
> Finally, and perhaps most positively, there is a deep comfort in being
> able to return home. I am really looking forward to being there with Tracy,
> Swirl,
>
> and Nama.
>
> All of those genuinely good and hopeful points aside, there are still some
> significant concerns.
>
> I can expect frequent episodes of syncope, meaning I may become
> lightheaded and potentially black out multiple times a day, even with
> minimal exertion.
>
> The good news is that this tends to present as a sliding scale, giving me
> warning to get to a safe place and reduce activity before things escalate.
> Even
>
> so, this makes traveling anywhere difficult, including navigating within
> my own home.
>
> In addition, my vestibular system is not functioning well. This means I
> can become vertiginous and sufficiently off balance to fall erratically and
> dangerously,
>
> often with little to no warning. This is a very significant risk,
> especially as a 6’4”, blind guy. While this is not occurring at the extreme
> level of
>
> the days when I was asked to remain in a wheelchair full time, it is
> happening often enough that I must be exceedingly cautious. This will have
> a meaningful
>
> impact until we are able to address it more fully.
>
> As test results continue to come in and studies are completed, the plan
> will become clearer. In the meantime, the team has asked for a short window
> of
>
> patience while we pursue an aggressive outpatient approach. This will
> involve frequent trips into Boston. Tracy and I will be evaluating how I
> travel and
>
> navigate, and for now that will likely mean using a travel wheelchair
> outside the home, simply because we cannot yet ensure my safety with
> walking alone.
>
> This does not mean I should expect to be relegated to a wheelchair long
> term. It does  mean that, for the short term and outside my home, this is
> the safest
>
> choice. I am conflicted about it, but I am also resolved. Safety matters,
> and I want to make the right decisions, even when they are uncomfortable.
>
> Appointments are already lining up, including as early as the coming week,
> which is pretty remarkable.
>
> Am I nervous and concerned? Absolutely.
>
> Do I still have the same level of hope and optimism as when we first began
> this journey here at Mass General? Yes, I honestly do.
>
> This is a complex situation, and it is not surprising that it takes time.
> The team is being deliberate and precise, focused on finding the root cause
> rather
>
> than simply applying a temporary fix that might mask the real issue and
> allow it to worsen.
>
> I suspect many of you may have questions. To be candid, I have plenty
> myself, and I am still doing a lot of processing. I ask for a bit of grace
> and patience
>
> right now. You are welcome to ask, but I likely will not be putting effort
> into answering questions just yet, as I continue to sort through my own
> understanding
>
> and mindset. Perhaps starting next week we can dig into that more.
>
> What I do know, without question, is how incredibly kind, supportive, and
> encouraging so many of you have been. Please trust me when I say I
> appreciate
>
> it more than most of you will ever know.
>
> I expect to head home mid to late afternoon today, and I will likely be
> radio silent until Monday.
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