[Ohio-talk] Fw: Research on Blindness and Sleep - NFB of Ohio

Tue Jun 15 23:09:16 UTC 2010

fyi

jw

Dr. J. Webster Smith
President National Federation of the Blind of Ohio
P.O.BOX 458 Athens, Ohio, 45701-0458
Phone Number - 740-592-6326 
"Changing What it Means to be Blind"
----- Original Message ----- 
From: Christian Lavedan 
To: jwsmithnfb at verizon.net 
Sent: Tuesday, June 15, 2010 10:42 AM
Subject: Research on Blindness and Sleep - NFB of Ohio

Dear J.W. Smith

I am contacting you because I believe that some members of the NFB of Ohio may be interested in learning about our effort to better understand sleep problems in people who are totally blind. 

I am from Vanda Pharmaceuticals, a pharmaceutical company located in Rockville, MD. Vanda is developing a new investigational medicine to treat the complaint of the sleep/wake cycle experienced by some individuals with no light perception. For this reason, we are interested in learning more about people who have no light perception blindness and the problems they face with sleep or wakefulness. Below is an announcement about upcoming sleep studies that some totally blind individuals may be interested in.  

We gladly welcome the opportunity to talk to you about our plans and to learn more about you and your organization. We also would appreciate if you could pass this information along to other individuals in your organization and your community who may be interested by this research.  

Sincerely,

C. Lavedan

Announcing Upcoming Sleep Studies in Totally Blind Individuals

Are you blind with no light perception?

Do you have problems sleeping or trouble with daytime sleepiness?

Non-24-hour sleep wake disorder occurs in some individuals who are totally blind and lack the light sensitivity necessary to reset the "body clock".  This can lead to problems with sleep and/or daytime excessive sleepiness.

You can help researchers understand non-24-hour sleep wake disorder by taking a brief phone survey. In addition, you will have the opportunity to be informed of upcoming clinical studies recruiting in your area.

Survey Participants Need to:

·        be over 18 years of age

·        be blind with no light perception

·        have sleep problems and/or daytime sleepiness

Collected information will be kept strictly confidential. 

For each completed survey, a donation of $25 up to $50,000 will be made to the National Federation of the Blind.

If you want to participate in the survey, please call toll-free 1-877-708-1931, Monday-Friday between 9:00 AM and 5:00 PM ET

Christian Lavedan, Ph.D.

Head of Discovery

Vanda Pharmaceuticals

9605 Medical Center Drive Suite 300

Rockville, MD 20850, USA

Tel: 240.599.4500

Fax: 301.294.1900

www.vandapharma.com

****************************************************************************

This message, including its attachments, is company 

confidential and may contain proprietary information.

Any unauthorized distribution of this message is strictly prohibited

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