[Ohio-talk] being independent

Sat Jan 25 20:24:54 UTC 2014

Colleen, thank you for helping Dawn.  As I stated earlier, I also
found the Syringe Support.  It is a large screw attached to the place
you rest the syringe. and each time you turn it once it will measure 2
units.  It goes up to 100 units and is less expensive than the
Count-a-dose.  If someone needed an odd number of units we taught them
to only turn halfway.  Both are available from Maxiaids.  Is the rehab
teacher certified?  I was not certified and don't believe it is
necessary to be certified but if she is certified she should be aware
of these devices.  It is very sad when an agency that proports to work
with blind people doesn't have staff that know even very basic
information.

I apologize for discussing this on this listserv and am sorry if I
should have taken this off list.  I believe the quality of services we
receive from agencies should be a major concern to all NFB members.
It seems there is a wide range of quality of services throughout the
state.  Is anyone else concerned about this?

On 1/25/14, COLLEEN ROTH <n8tnv at att.net> wrote:
> Hi Marianne,
> Dawn asked me to answer this.
> She has a Rehabilitation Counselor who is not blind.
> She also has someone from the Sight Center who is not blind who is a Rehab
> Teacher.
> This lady is not well informed and does ridiculous workarounds for totally
> blind people.
> She is not interested in teaching reasonable Adaptive methods.
> From what I know from the Diabete-talk Listserv Count-a-dose from Prodigy is
> 50 units and there is nothing for 100 CC's.
> The Insulin Pen is not an option for Dawn unless she gets a Waiver from
> Express Scrips. Express Scrips does not allow them for her because she
> requires a higher Insulin dose and it is cheaper to provide it in Vial
> Form.
> Dawn is able to feel clicks so I think the Prodigy Count-a-dose will work
> for her.
> The Waiver will take quite a while because Express Scrips is changing some
> procedures.
> I was able to get a Waiver for Prodigy Meters and Strips for blind people
> using Express Scrips about 2 years ago.
> I will see if I can help Dawn get a Waiver from Express Scrips.
> We have one Diabetes Educator at one of our Hospitals who does not know
> anthing about working with a Totally Blind Person.
> She has worked with Visually Impaired Patients who have usable Vision.
> I will check on a Prodigy  Count-a-dose for Dawn.
> It would be quicker for her to order it herself.
> Colleen Roth, President
> At Large Chapter
>
>
> ----- Original Message -----
> From: Marianne Denning <marianne at denningweb.com>
> To: NFB of Ohio Announcement and Discussion List <ohio-talk at nfbnet.org>
> Date: Saturday, January 25, 2014 2:10 pm
> Subject: Re: [Ohio-talk] being independent
>
>>
>>
>> Dawn, is she a rehabilitation counselor or a rehabilitation teacher?
>> Diabetes is one of the leading causes of blindness so any rehab
>> teacher should be aware of the adaptive equipment available.  Send me
>> your number.  My email is Marianne at denningweb.com.  I will ask one of
>> my former colleagues about current insulin measuring devices to see if
>> there is one that will measure up to 100 units.  You might be able to
>> draw up 50 units twice but I would hate for that to be an option too.
>> I would not consider that option unless you have the okay from your
>> doctor or diabetic nurse.  I am definitely out of the loop when it
>> comes to adaptive equipment for diabetics.
>>
>> On 1/25/14, Dawn <dlanting at bex.net> wrote:
>> > No she is not blind  and the sight center here in Toledo is really no
>> > help
>> > the things she showed me  were not good  I don't mix insulin  one is
>> > fast
>> > acting  and the oyther one is long lasting  I shout myself  like five
>> > to
>> > six
>> > times a day   I wish we had better services here in Toledo I could tell
>> > you
>> > some stories heheheh  thanks maybe you should give me a callsometime
>> > thanks
>> > Dawn
>> >
>> > -----Original Message-----
>> > From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of
>> > Marianne
>> > Denning
>> > Sent: Saturday, January 25, 2014 1:33 PM
>> > To: NFB of Ohio Announcement and Discussion List
>> > Subject: Re: [Ohio-talk] being independent
>> >
>> > Dawn, your counselor is misinformed.  There should be a rehabilitation
>> > teacher at the center.  It is Prodigy count-a-dose and I very easily
>> > found
>> > it.  You can mix your insulin if needed.  You could at least draw up the
>> > 45
>> > units with it.  I would ask about an insulin pen for the 100 units.
>> > Don't
>> > give up.  Tell your counselor that is not a workable solution.  Shame
>> > on
>> > her/him for suggesting such a thing.
>> > Those type of answers only work if we allow them to work.  Is your
>> > counselor
>> > blind?
>> >
>> > On 1/25/14, Dawn <dlanting at bex.net> wrote:
>> >> Mary Ann thank you I have heard of this  I take two different insulins
>> >> I take one hundred units twice a day  and forty five units three times
>> >> a day I have heard of this count a dose  and have asked my counselor
>> >> from the sight center here in Toledo about it  just yesterday  all she
>> >> said is that she thought they stoped making it  she wanted me to jujst
>> >> get someone todraw up a lot of needles at a time  and that is what I
>> >> am doing now  hbut I don't treally like doing it this way  but I have
>> >> no choice  I have tried to join the lise  but I may not being doing
>> >> something right I hope I hear from them soon  thank you for you help
>> >> Dawn  I am in Toledo all ideas welcome
>> >>
>> >> -----Original Message-----
>> >> From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of
>> >> Marianne Denning
>> >> Sent: Saturday, January 25, 2014 11:46 AM
>> >> To: NFB of Ohio Announcement and Discussion List
>> >> Subject: Re: [Ohio-talk] being independent
>> >>
>> >> Dawn, I worked as a rehabilitation teacher and there was a product
>> >> called count-a-dose.  It is now Prodigy count-a-dose.  It uses 50 cc
>> > syringes.
>> >> LS&S sells it but I would guess Maxiaids, Independent Living Aids, and
>> >> possibly NFB Independence Market also sells it.
>> >> There is probably a rehabilitation teacher who works in your part of
>> >> Ohio who could demonstrate it before you spend money only to find it
>> >> won't work for you.  If you need help finding the nearest
>> >> rehabilitation teacher please let me know where you live and I will
>> >> see if I can help you with this.
>> >> There is also the option of insulin pens.  Dave's recommendation to
>> >> join the listserv for people with diabetes is also a great suggestion.
>> >> Yes, it is possible to measure your insulin independently.  It is very
>> >> important that you find a method that works for you.
>> >>
>> >> On 1/25/14, David Andrews <dandrews at visi.com> wrote:
>> >>> Are you on our diabetes-talk list I am sure they can help you with
>> >>> ideas.  To join either go to:
>> >>>
>> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> >>>
>> >>> or send e-mail to diabetes-talk-request at nfbnet.org and put the word
>> >>> subscribe on the subject line.
>> >>>
>> >>> Dave
>> >>>
>> >>> At 09:58 AM 1/25/2014, you wrote:
>> >>>>Being totally blind I cannot draw up my insulin  I hate depending  on
>> >>>>someone to draw up my medicine  and if that person can't get here to
>> >>>>do it  I am very concerned  that I am no getting the right amount I
>> >>>>just can't believe  there is not a way for blind diabetics  or for
>> >>>>that matter blind people can't safely  get their medicine  just a
>> >>>>note on how important  this is too mehope everyone has a happy warm
>> >>>>day Dawn
>> >>>
>> >>>
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>> >>> ingweb.com
>> >>>
>> >>
>> >>
>> >> —
>> >> Marianne Denning, TVI, MA
>> >> Teacher of students who are blind or visually impaired
>> >> (513) 607-6053
>> >>
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>> >
>> >
>> > —
>> > Marianne Denning, TVI, MA
>> > Teacher of students who are blind or visually impaired
>> > (513) 607-6053
>> >
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>>
>> —
>> Marianne Denning, TVI, MA
>> Teacher of students who are blind or visually impaired
>> (513) 607-6053
>>
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>
>

-- 
Marianne Denning, TVI, MA
Teacher of students who are blind or visually impaired
(513) 607-6053