[Ohio-talk] being independent

Sat Jan 25 20:10:05 UTC 2014

Hi Marianne,
Dawn asked me to answer this.
She has a Rehabilitation Counselor who is not blind.
She also has someone from the Sight Center who is not blind who is a Rehab Teacher.
This lady is not well informed and does ridiculous workarounds for totally blind people.
She is not interested in teaching reasonable Adaptive methods.
>From what I know from the Diabete-talk Listserv Count-a-dose from Prodigy is 50 units and there is nothing for 100 CC's.
The Insulin Pen is not an option for Dawn unless she gets a Waiver from Express Scrips. Express Scrips does not allow them for her because she requires a higher Insulin dose and it is cheaper to provide it in Vial Form.
Dawn is able to feel clicks so I think the Prodigy Count-a-dose will work for her.
The Waiver will take quite a while because Express Scrips is changing some procedures.
I was able to get a Waiver for Prodigy Meters and Strips for blind people using Express Scrips about 2 years ago.
I will see if I can help Dawn get a Waiver from Express Scrips.
We have one Diabetes Educator at one of our Hospitals who does not know anthing about working with a Totally Blind Person.
She has worked with Visually Impaired Patients who have usable Vision.
I will check on a Prodigy  Count-a-dose for Dawn.
It would be quicker for her to order it herself.
Colleen Roth, President
At Large Chapter


----- Original Message -----
From: Marianne Denning <marianne at denningweb.com>
To: NFB of Ohio Announcement and Discussion List <ohio-talk at nfbnet.org>
Date: Saturday, January 25, 2014 2:10 pm
Subject: Re: [Ohio-talk] being independent

>
>
> Dawn, is she a rehabilitation counselor or a rehabilitation teacher?
> Diabetes is one of the leading causes of blindness so any rehab
> teacher should be aware of the adaptive equipment available.  Send me
> your number.  My email is Marianne at denningweb.com.  I will ask one of
> my former colleagues about current insulin measuring devices to see if
> there is one that will measure up to 100 units.  You might be able to
> draw up 50 units twice but I would hate for that to be an option too.
> I would not consider that option unless you have the okay from your
> doctor or diabetic nurse.  I am definitely out of the loop when it
> comes to adaptive equipment for diabetics.
> 
> On 1/25/14, Dawn <dlanting at bex.net> wrote:
> > No she is not blind  and the sight center here in Toledo is really no help
> > the things she showed me  were not good  I don't mix insulin  one is fast
> > acting  and the oyther one is long lasting  I shout myself  like five to
> > six
> > times a day   I wish we had better services here in Toledo I could tell you
> > some stories heheheh  thanks maybe you should give me a callsometime thanks
> > Dawn
> >
> > -----Original Message-----
> > From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of Marianne
> > Denning
> > Sent: Saturday, January 25, 2014 1:33 PM
> > To: NFB of Ohio Announcement and Discussion List
> > Subject: Re: [Ohio-talk] being independent
> >
> > Dawn, your counselor is misinformed.  There should be a rehabilitation
> > teacher at the center.  It is Prodigy count-a-dose and I very easily found
> > it.  You can mix your insulin if needed.  You could at least draw up the 45
> > units with it.  I would ask about an insulin pen for the 100 units.  Don't
> > give up.  Tell your counselor that is not a workable solution.  Shame on
> > her/him for suggesting such a thing.
> > Those type of answers only work if we allow them to work.  Is your
> > counselor
> > blind?
> >
> > On 1/25/14, Dawn <dlanting at bex.net> wrote:
> >> Mary Ann thank you I have heard of this  I take two different insulins
> >> I take one hundred units twice a day  and forty five units three times
> >> a day I have heard of this count a dose  and have asked my counselor
> >> from the sight center here in Toledo about it  just yesterday  all she
> >> said is that she thought they stoped making it  she wanted me to jujst
> >> get someone todraw up a lot of needles at a time  and that is what I
> >> am doing now  hbut I don't treally like doing it this way  but I have
> >> no choice  I have tried to join the lise  but I may not being doing
> >> something right I hope I hear from them soon  thank you for you help
> >> Dawn  I am in Toledo all ideas welcome
> >>
> >> -----Original Message-----
> >> From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of
> >> Marianne Denning
> >> Sent: Saturday, January 25, 2014 11:46 AM
> >> To: NFB of Ohio Announcement and Discussion List
> >> Subject: Re: [Ohio-talk] being independent
> >>
> >> Dawn, I worked as a rehabilitation teacher and there was a product
> >> called count-a-dose.  It is now Prodigy count-a-dose.  It uses 50 cc
> > syringes.
> >> LS&S sells it but I would guess Maxiaids, Independent Living Aids, and
> >> possibly NFB Independence Market also sells it.
> >> There is probably a rehabilitation teacher who works in your part of
> >> Ohio who could demonstrate it before you spend money only to find it
> >> won't work for you.  If you need help finding the nearest
> >> rehabilitation teacher please let me know where you live and I will
> >> see if I can help you with this.
> >> There is also the option of insulin pens.  Dave's recommendation to
> >> join the listserv for people with diabetes is also a great suggestion.
> >> Yes, it is possible to measure your insulin independently.  It is very
> >> important that you find a method that works for you.
> >>
> >> On 1/25/14, David Andrews <dandrews at visi.com> wrote:
> >>> Are you on our diabetes-talk list I am sure they can help you with
> >>> ideas.  To join either go to:
> >>>
> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>
> >>> or send e-mail to diabetes-talk-request at nfbnet.org and put the word
> >>> subscribe on the subject line.
> >>>
> >>> Dave
> >>>
> >>> At 09:58 AM 1/25/2014, you wrote:
> >>>>Being totally blind I cannot draw up my insulin  I hate depending  on
> >>>>someone to draw up my medicine  and if that person can't get here to
> >>>>do it  I am very concerned  that I am no getting the right amount I
> >>>>just can't believe  there is not a way for blind diabetics  or for
> >>>>that matter blind people can't safely  get their medicine  just a
> >>>>note on how important  this is too mehope everyone has a happy warm
> >>>>day Dawn
> >>>
> >>>
> >>> _______________________________________________
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> >>> n
> >>> ingweb.com
> >>>
> >>
> >>
> >> —
> >> Marianne Denning, TVI, MA
> >> Teacher of students who are blind or visually impaired
> >> (513) 607-6053
> >>
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> >> net
> >>
> >>
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> >>
> >
> >
> > —
> > Marianne Denning, TVI, MA
> > Teacher of students who are blind or visually impaired
> > (513) 607-6053
> >
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> >
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> 
> 
> — 
> Marianne Denning, TVI, MA
> Teacher of students who are blind or visually impaired
> (513) 607-6053
> 
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