[Ohio-talk] being independent

COLLEEN ROTH n8tnv at att.net
Sat Jan 25 20:53:14 UTC 2014 

Hi Marianne,
I do not know if she is certified.
I do know that some of the people BSVI contracts with are not the best teachers in the world.
Due to some complications Dawn and I have not been able to get together.
We had planned to work on Braille and I am going to help her with some techniques in the kitchen.
The Rehab Teacher likes to teach people to use the Microwave. I guess she does some stuff on the stove but not as much as I would want to know.
Dawn and I have worked on braille before but we need to work on it some more.
Dawn has Diabetic Neuropathy so
I am going to use Jumbo Braille in the beginning.
She was having a great deal of trouble with using standard braille cells.
I think this will help. Her Neuropathy is rather significant but I do believe this should help.
Some of the workarounds for finding food would be OK but I personally understand why Dawn wants a better method.
I wouldn't want to have to remember that two rubber bands is for peas, three for carrots, etc.
The Vox Com would work but would be a little inconvenient.
I am going to suggest the Braille Pen. I am referring to the one with labels which talk.
Maybe BSVI can get that for Dawn.
Thanks for the info on the Syringe Support.
Colleen Roth, President;
At Large Chapter;
NFB of Ohio



----- Original Message -----
From: Marianne Denning <marianne at denningweb.com>
To: NFB of Ohio Announcement and Discussion List <ohio-talk at nfbnet.org>
Date: Saturday, January 25, 2014 3:25 pm
Subject: Re: [Ohio-talk] being independent

>
>
> Colleen, thank you for helping Dawn.  As I stated earlier, I also
> found the Syringe Support.  It is a large screw attached to the place
> you rest the syringe. and each time you turn it once it will measure 2
> units.  It goes up to 100 units and is less expensive than the
> Count-a-dose.  If someone needed an odd number of units we taught them
> to only turn halfway.  Both are available from Maxiaids.  Is the rehab
> teacher certified?  I was not certified and don't believe it is
> necessary to be certified but if she is certified she should be aware
> of these devices.  It is very sad when an agency that proports to work
> with blind people doesn't have staff that know even very basic
> information.
> 
> I apologize for discussing this on this listserv and am sorry if I
> should have taken this off list.  I believe the quality of services we
> receive from agencies should be a major concern to all NFB members.
> It seems there is a wide range of quality of services throughout the
> state.  Is anyone else concerned about this?
> 
> On 1/25/14, COLLEEN ROTH <n8tnv at att.net> wrote:
> > Hi Marianne,
> > Dawn asked me to answer this.
> > She has a Rehabilitation Counselor who is not blind.
> > She also has someone from the Sight Center who is not blind who is a Rehab
> > Teacher.
> > This lady is not well informed and does ridiculous workarounds for totally
> > blind people.
> > She is not interested in teaching reasonable Adaptive methods.
> > From what I know from the Diabete-talk Listserv Count-a-dose from Prodigy is
> > 50 units and there is nothing for 100 CC's.
> > The Insulin Pen is not an option for Dawn unless she gets a Waiver from
> > Express Scrips. Express Scrips does not allow them for her because she
> > requires a higher Insulin dose and it is cheaper to provide it in Vial
> > Form.
> > Dawn is able to feel clicks so I think the Prodigy Count-a-dose will work
> > for her.
> > The Waiver will take quite a while because Express Scrips is changing some
> > procedures.
> > I was able to get a Waiver for Prodigy Meters and Strips for blind people
> > using Express Scrips about 2 years ago.
> > I will see if I can help Dawn get a Waiver from Express Scrips.
> > We have one Diabetes Educator at one of our Hospitals who does not know
> > anthing about working with a Totally Blind Person.
> > She has worked with Visually Impaired Patients who have usable Vision.
> > I will check on a Prodigy  Count-a-dose for Dawn.
> > It would be quicker for her to order it herself.
> > Colleen Roth, President
> > At Large Chapter
> >
> >
> > ----- Original Message -----
> > From: Marianne Denning <marianne at denningweb.com>
> > To: NFB of Ohio Announcement and Discussion List <ohio-talk at nfbnet.org>
> > Date: Saturday, January 25, 2014 2:10 pm
> > Subject: Re: [Ohio-talk] being independent
> >
> >>
> >>
> >> Dawn, is she a rehabilitation counselor or a rehabilitation teacher?
> >> Diabetes is one of the leading causes of blindness so any rehab
> >> teacher should be aware of the adaptive equipment available.  Send me
> >> your number.  My email is Marianne at denningweb.com.  I will ask one of
> >> my former colleagues about current insulin measuring devices to see if
> >> there is one that will measure up to 100 units.  You might be able to
> >> draw up 50 units twice but I would hate for that to be an option too.
> >> I would not consider that option unless you have the okay from your
> >> doctor or diabetic nurse.  I am definitely out of the loop when it
> >> comes to adaptive equipment for diabetics.
> >>
> >> On 1/25/14, Dawn <dlanting at bex.net> wrote:
> >> > No she is not blind  and the sight center here in Toledo is really no
> >> > help
> >> > the things she showed me  were not good  I don't mix insulin  one is
> >> > fast
> >> > acting  and the oyther one is long lasting  I shout myself  like five
> >> > to
> >> > six
> >> > times a day   I wish we had better services here in Toledo I could tell
> >> > you
> >> > some stories heheheh  thanks maybe you should give me a callsometime
> >> > thanks
> >> > Dawn
> >> >
> >> > -----Original Message-----
> >> > From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of
> >> > Marianne
> >> > Denning
> >> > Sent: Saturday, January 25, 2014 1:33 PM
> >> > To: NFB of Ohio Announcement and Discussion List
> >> > Subject: Re: [Ohio-talk] being independent
> >> >
> >> > Dawn, your counselor is misinformed.  There should be a rehabilitation
> >> > teacher at the center.  It is Prodigy count-a-dose and I very easily
> >> > found
> >> > it.  You can mix your insulin if needed.  You could at least draw up the
> >> > 45
> >> > units with it.  I would ask about an insulin pen for the 100 units.
> >> > Don't
> >> > give up.  Tell your counselor that is not a workable solution.  Shame
> >> > on
> >> > her/him for suggesting such a thing.
> >> > Those type of answers only work if we allow them to work.  Is your
> >> > counselor
> >> > blind?
> >> >
> >> > On 1/25/14, Dawn <dlanting at bex.net> wrote:
> >> >> Mary Ann thank you I have heard of this  I take two different insulins
> >> >> I take one hundred units twice a day  and forty five units three times
> >> >> a day I have heard of this count a dose  and have asked my counselor
> >> >> from the sight center here in Toledo about it  just yesterday  all she
> >> >> said is that she thought they stoped making it  she wanted me to jujst
> >> >> get someone todraw up a lot of needles at a time  and that is what I
> >> >> am doing now  hbut I don't treally like doing it this way  but I have
> >> >> no choice  I have tried to join the lise  but I may not being doing
> >> >> something right I hope I hear from them soon  thank you for you help
> >> >> Dawn  I am in Toledo all ideas welcome
> >> >>
> >> >> -----Original Message-----
> >> >> From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of
> >> >> Marianne Denning
> >> >> Sent: Saturday, January 25, 2014 11:46 AM
> >> >> To: NFB of Ohio Announcement and Discussion List
> >> >> Subject: Re: [Ohio-talk] being independent
> >> >>
> >> >> Dawn, I worked as a rehabilitation teacher and there was a product
> >> >> called count-a-dose.  It is now Prodigy count-a-dose.  It uses 50 cc
> >> > syringes.
> >> >> LS&S sells it but I would guess Maxiaids, Independent Living Aids, and
> >> >> possibly NFB Independence Market also sells it.
> >> >> There is probably a rehabilitation teacher who works in your part of
> >> >> Ohio who could demonstrate it before you spend money only to find it
> >> >> won't work for you.  If you need help finding the nearest
> >> >> rehabilitation teacher please let me know where you live and I will
> >> >> see if I can help you with this.
> >> >> There is also the option of insulin pens.  Dave's recommendation to
> >> >> join the listserv for people with diabetes is also a great suggestion.
> >> >> Yes, it is possible to measure your insulin independently.  It is very
> >> >> important that you find a method that works for you.
> >> >>
> >> >> On 1/25/14, David Andrews <dandrews at visi.com> wrote:
> >> >>> Are you on our diabetes-talk list I am sure they can help you with
> >> >>> ideas.  To join either go to:
> >> >>>
> >> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> >>>
> >> >>> or send e-mail to diabetes-talk-request at nfbnet.org and put the word
> >> >>> subscribe on the subject line.
> >> >>>
> >> >>> Dave
> >> >>>
> >> >>> At 09:58 AM 1/25/2014, you wrote:
> >> >>>>Being totally blind I cannot draw up my insulin  I hate depending  on
> >> >>>>someone to draw up my medicine  and if that person can't get here to
> >> >>>>do it  I am very concerned  that I am no getting the right amount I
> >> >>>>just can't believe  there is not a way for blind diabetics  or for
> >> >>>>that matter blind people can't safely  get their medicine  just a
> >> >>>>note on how important  this is too mehope everyone has a happy warm
> >> >>>>day Dawn
> >> >>>
> >> >>>
> >> >>> _______________________________________________
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> >> >>> n
> >> >>> ingweb.com
> >> >>>
> >> >>
> >> >>
> >> >> —
> >> >> Marianne Denning, TVI, MA
> >> >> Teacher of students who are blind or visually impaired
> >> >> (513) 607-6053
> >> >>
> >> >> _______________________________________________
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> >> >> net
> >> >>
> >> >>
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> >> >>
> >> >
> >> >
> >> > —
> >> > Marianne Denning, TVI, MA
> >> > Teacher of students who are blind or visually impaired
> >> > (513) 607-6053
> >> >
> >> > _______________________________________________
> >> > Ohio-talk mailing list
> >> > Ohio-talk at nfbnet.org
> >> > http://nfbnet.org/mailman/listinfo/ohio-talk_nfbnet.org
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> >> >
> >> >
> >> > _______________________________________________
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> >> >
> >>
> >>
> >> —
> >> Marianne Denning, TVI, MA
> >> Teacher of students who are blind or visually impaired
> >> (513) 607-6053
> >>
> >> _______________________________________________
> >> Ohio-talk mailing list
> >> Ohio-talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/ohio-talk_nfbnet.org
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> >
> >
> 
> 
> — 
> Marianne Denning, TVI, MA
> Teacher of students who are blind or visually impaired
> (513) 607-6053
> 
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