[Ohio-talk] being independent

Sun Jan 26 01:15:32 UTC 2014

I think more of us should be like Colleen and share our abilities with
other members of NFB.  We need to pass it forward.  Unfortunately, the
state has decided to contract only with certified professionals.  Many
times that certification does not mean highly skilled.  I, personally,
don't believe you can teach braille if you aren't using it all of the
time.  I believe sighted TVIs and rehab teachers can teach braille but
they must use it outside of the workplace.  Would you want someone to
teach you math, English, science,...if they weren't passionate about
it and very knowledgeable about the subject?

On 1/25/14, COLLEEN ROTH <n8tnv at att.net> wrote:
> Hi Marianne,
> I do not know if she is certified.
> I do know that some of the people BSVI contracts with are not the best
> teachers in the world.
> Due to some complications Dawn and I have not been able to get together.
> We had planned to work on Braille and I am going to help her with some
> techniques in the kitchen.
> The Rehab Teacher likes to teach people to use the Microwave. I guess she
> does some stuff on the stove but not as much as I would want to know.
> Dawn and I have worked on braille before but we need to work on it some
> more.
> Dawn has Diabetic Neuropathy so
> I am going to use Jumbo Braille in the beginning.
> She was having a great deal of trouble with using standard braille cells.
> I think this will help. Her Neuropathy is rather significant but I do
> believe this should help.
> Some of the workarounds for finding food would be OK but I personally
> understand why Dawn wants a better method.
> I wouldn't want to have to remember that two rubber bands is for peas, three
> for carrots, etc.
> The Vox Com would work but would be a little inconvenient.
> I am going to suggest the Braille Pen. I am referring to the one with labels
> which talk.
> Maybe BSVI can get that for Dawn.
> Thanks for the info on the Syringe Support.
> Colleen Roth, President;
> At Large Chapter;
> NFB of Ohio
>
>
>
> ----- Original Message -----
> From: Marianne Denning <marianne at denningweb.com>
> To: NFB of Ohio Announcement and Discussion List <ohio-talk at nfbnet.org>
> Date: Saturday, January 25, 2014 3:25 pm
> Subject: Re: [Ohio-talk] being independent
>
>>
>>
>> Colleen, thank you for helping Dawn.  As I stated earlier, I also
>> found the Syringe Support.  It is a large screw attached to the place
>> you rest the syringe. and each time you turn it once it will measure 2
>> units.  It goes up to 100 units and is less expensive than the
>> Count-a-dose.  If someone needed an odd number of units we taught them
>> to only turn halfway.  Both are available from Maxiaids.  Is the rehab
>> teacher certified?  I was not certified and don't believe it is
>> necessary to be certified but if she is certified she should be aware
>> of these devices.  It is very sad when an agency that proports to work
>> with blind people doesn't have staff that know even very basic
>> information.
>>
>> I apologize for discussing this on this listserv and am sorry if I
>> should have taken this off list.  I believe the quality of services we
>> receive from agencies should be a major concern to all NFB members.
>> It seems there is a wide range of quality of services throughout the
>> state.  Is anyone else concerned about this?
>>
>> On 1/25/14, COLLEEN ROTH <n8tnv at att.net> wrote:
>> > Hi Marianne,
>> > Dawn asked me to answer this.
>> > She has a Rehabilitation Counselor who is not blind.
>> > She also has someone from the Sight Center who is not blind who is a
>> > Rehab
>> > Teacher.
>> > This lady is not well informed and does ridiculous workarounds for
>> > totally
>> > blind people.
>> > She is not interested in teaching reasonable Adaptive methods.
>> > From what I know from the Diabete-talk Listserv Count-a-dose from
>> > Prodigy is
>> > 50 units and there is nothing for 100 CC's.
>> > The Insulin Pen is not an option for Dawn unless she gets a Waiver from
>> > Express Scrips. Express Scrips does not allow them for her because she
>> > requires a higher Insulin dose and it is cheaper to provide it in Vial
>> > Form.
>> > Dawn is able to feel clicks so I think the Prodigy Count-a-dose will
>> > work
>> > for her.
>> > The Waiver will take quite a while because Express Scrips is changing
>> > some
>> > procedures.
>> > I was able to get a Waiver for Prodigy Meters and Strips for blind
>> > people
>> > using Express Scrips about 2 years ago.
>> > I will see if I can help Dawn get a Waiver from Express Scrips.
>> > We have one Diabetes Educator at one of our Hospitals who does not know
>> > anthing about working with a Totally Blind Person.
>> > She has worked with Visually Impaired Patients who have usable Vision.
>> > I will check on a Prodigy  Count-a-dose for Dawn.
>> > It would be quicker for her to order it herself.
>> > Colleen Roth, President
>> > At Large Chapter
>> >
>> >
>> > ----- Original Message -----
>> > From: Marianne Denning <marianne at denningweb.com>
>> > To: NFB of Ohio Announcement and Discussion List <ohio-talk at nfbnet.org>
>> > Date: Saturday, January 25, 2014 2:10 pm
>> > Subject: Re: [Ohio-talk] being independent
>> >
>> >>
>> >>
>> >> Dawn, is she a rehabilitation counselor or a rehabilitation teacher?
>> >> Diabetes is one of the leading causes of blindness so any rehab
>> >> teacher should be aware of the adaptive equipment available.  Send me
>> >> your number.  My email is Marianne at denningweb.com.  I will ask one of
>> >> my former colleagues about current insulin measuring devices to see if
>> >> there is one that will measure up to 100 units.  You might be able to
>> >> draw up 50 units twice but I would hate for that to be an option too.
>> >> I would not consider that option unless you have the okay from your
>> >> doctor or diabetic nurse.  I am definitely out of the loop when it
>> >> comes to adaptive equipment for diabetics.
>> >>
>> >> On 1/25/14, Dawn <dlanting at bex.net> wrote:
>> >> > No she is not blind  and the sight center here in Toledo is really
>> >> > no
>> >> > help
>> >> > the things she showed me  were not good  I don't mix insulin  one is
>> >> > fast
>> >> > acting  and the oyther one is long lasting  I shout myself  like
>> >> > five
>> >> > to
>> >> > six
>> >> > times a day   I wish we had better services here in Toledo I could
>> >> > tell
>> >> > you
>> >> > some stories heheheh  thanks maybe you should give me a callsometime
>> >> > thanks
>> >> > Dawn
>> >> >
>> >> > -----Original Message-----
>> >> > From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of
>> >> > Marianne
>> >> > Denning
>> >> > Sent: Saturday, January 25, 2014 1:33 PM
>> >> > To: NFB of Ohio Announcement and Discussion List
>> >> > Subject: Re: [Ohio-talk] being independent
>> >> >
>> >> > Dawn, your counselor is misinformed.  There should be a
>> >> > rehabilitation
>> >> > teacher at the center.  It is Prodigy count-a-dose and I very easily
>> >> > found
>> >> > it.  You can mix your insulin if needed.  You could at least draw up
>> >> > the
>> >> > 45
>> >> > units with it.  I would ask about an insulin pen for the 100 units.
>> >> > Don't
>> >> > give up.  Tell your counselor that is not a workable solution.
>> >> > Shame
>> >> > on
>> >> > her/him for suggesting such a thing.
>> >> > Those type of answers only work if we allow them to work.  Is your
>> >> > counselor
>> >> > blind?
>> >> >
>> >> > On 1/25/14, Dawn <dlanting at bex.net> wrote:
>> >> >> Mary Ann thank you I have heard of this  I take two different
>> >> >> insulins
>> >> >> I take one hundred units twice a day  and forty five units three
>> >> >> times
>> >> >> a day I have heard of this count a dose  and have asked my
>> >> >> counselor
>> >> >> from the sight center here in Toledo about it  just yesterday  all
>> >> >> she
>> >> >> said is that she thought they stoped making it  she wanted me to
>> >> >> jujst
>> >> >> get someone todraw up a lot of needles at a time  and that is what
>> >> >> I
>> >> >> am doing now  hbut I don't treally like doing it this way  but I
>> >> >> have
>> >> >> no choice  I have tried to join the lise  but I may not being doing
>> >> >> something right I hope I hear from them soon  thank you for you
>> >> >> help
>> >> >> Dawn  I am in Toledo all ideas welcome
>> >> >>
>> >> >> -----Original Message-----
>> >> >> From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of
>> >> >> Marianne Denning
>> >> >> Sent: Saturday, January 25, 2014 11:46 AM
>> >> >> To: NFB of Ohio Announcement and Discussion List
>> >> >> Subject: Re: [Ohio-talk] being independent
>> >> >>
>> >> >> Dawn, I worked as a rehabilitation teacher and there was a product
>> >> >> called count-a-dose.  It is now Prodigy count-a-dose.  It uses 50
>> >> >> cc
>> >> > syringes.
>> >> >> LS&S sells it but I would guess Maxiaids, Independent Living Aids,
>> >> >> and
>> >> >> possibly NFB Independence Market also sells it.
>> >> >> There is probably a rehabilitation teacher who works in your part
>> >> >> of
>> >> >> Ohio who could demonstrate it before you spend money only to find
>> >> >> it
>> >> >> won't work for you.  If you need help finding the nearest
>> >> >> rehabilitation teacher please let me know where you live and I will
>> >> >> see if I can help you with this.
>> >> >> There is also the option of insulin pens.  Dave's recommendation to
>> >> >> join the listserv for people with diabetes is also a great
>> >> >> suggestion.
>> >> >> Yes, it is possible to measure your insulin independently.  It is
>> >> >> very
>> >> >> important that you find a method that works for you.
>> >> >>
>> >> >> On 1/25/14, David Andrews <dandrews at visi.com> wrote:
>> >> >>> Are you on our diabetes-talk list I am sure they can help you with
>> >> >>> ideas.  To join either go to:
>> >> >>>
>> >> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> >> >>>
>> >> >>> or send e-mail to diabetes-talk-request at nfbnet.org and put the
>> >> >>> word
>> >> >>> subscribe on the subject line.
>> >> >>>
>> >> >>> Dave
>> >> >>>
>> >> >>> At 09:58 AM 1/25/2014, you wrote:
>> >> >>>>Being totally blind I cannot draw up my insulin  I hate depending
>> >> >>>> on
>> >> >>>>someone to draw up my medicine  and if that person can't get here
>> >> >>>> to
>> >> >>>>do it  I am very concerned  that I am no getting the right amount
>> >> >>>> I
>> >> >>>>just can't believe  there is not a way for blind diabetics  or for
>> >> >>>>that matter blind people can't safely  get their medicine  just a
>> >> >>>>note on how important  this is too mehope everyone has a happy
>> >> >>>> warm
>> >> >>>>day Dawn
>> >> >>>
>> >> >>>
>> >> >>> _______________________________________________
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>> >> >>> n
>> >> >>> ingweb.com
>> >> >>>
>> >> >>
>> >> >>
>> >> >> —
>> >> >> Marianne Denning, TVI, MA
>> >> >> Teacher of students who are blind or visually impaired
>> >> >> (513) 607-6053
>> >> >>
>> >> >> _______________________________________________
>> >> >> Ohio-talk mailing list
>> >> >> Ohio-talk at nfbnet.org
>> >> >> http://nfbnet.org/mailman/listinfo/ohio-talk_nfbnet.org
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>> >> >> for
>> >> >> Ohio-talk:
>> >> >> http://nfbnet.org/mailman/options/ohio-talk_nfbnet.org/dlanting%40bex.
>> >> >> net
>> >> >>
>> >> >>
>> >> >> _______________________________________________
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>> >> >> ingweb.com
>> >> >>
>> >> >
>> >> >
>> >> > —
>> >> > Marianne Denning, TVI, MA
>> >> > Teacher of students who are blind or visually impaired
>> >> > (513) 607-6053
>> >> >
>> >> > _______________________________________________
>> >> > Ohio-talk mailing list
>> >> > Ohio-talk at nfbnet.org
>> >> > http://nfbnet.org/mailman/listinfo/ohio-talk_nfbnet.org
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>> >> > for
>> >> > Ohio-talk:
>> >> > http://nfbnet.org/mailman/options/ohio-talk_nfbnet.org/dlanting%40bex.net
>> >> >
>> >> >
>> >> > _______________________________________________
>> >> > Ohio-talk mailing list
>> >> > Ohio-talk at nfbnet.org
>> >> > http://nfbnet.org/mailman/listinfo/ohio-talk_nfbnet.org
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>> >> > for
>> >> > Ohio-talk:
>> >> > http://nfbnet.org/mailman/options/ohio-talk_nfbnet.org/marianne%40denningweb.com
>> >> >
>> >>
>> >>
>> >> —
>> >> Marianne Denning, TVI, MA
>> >> Teacher of students who are blind or visually impaired
>> >> (513) 607-6053
>> >>
>> >> _______________________________________________
>> >> Ohio-talk mailing list
>> >> Ohio-talk at nfbnet.org
>> >> http://nfbnet.org/mailman/listinfo/ohio-talk_nfbnet.org
>> >> To unsubscribe, change your list options or get your account info for
>> >> Ohio-talk:
>> >> http://nfbnet.org/mailman/options/ohio-talk_nfbnet.org/n8tnv%40att.net
>> >
>> >
>>
>>
>> —
>> Marianne Denning, TVI, MA
>> Teacher of students who are blind or visually impaired
>> (513) 607-6053
>>
>> _______________________________________________
>> Ohio-talk mailing list
>> Ohio-talk at nfbnet.org
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>
>

-- 
Marianne Denning, TVI, MA
Teacher of students who are blind or visually impaired
(513) 607-6053