[Ohio-talk] being independent

Sun Jan 26 12:54:13 UTC 2014

Hi Barb,
Dawn needs to take 100 Cc's of Insulin and the Count-a-dose only goes to 50 Cc's.
Marianne mentioned a product which goes to 100 Cc's.
Dawn is now on Diabetes-talk.
The Diabetes Educator for St. Vincent's Hospital has had very little experience working with a Totally blind person.
I was the first totally blind person she worked with so I know her experience is very limited.
Dawn's Medical Plan does not cover a pen for her at this time because she uses such a high dose of Insulin.
I am going to see if we can get a change to Express Scrips Formulary to allow for this.
Well since it will be so cold this week I should have lots of time to work on this project.
Colleen

----- Original Message -----
From: Barb Fohl <barbfohl at pobox.com>
To: "NFB of Ohio Announcement and Discussion List" <ohio-talk at nfbnet.org>
Date: Saturday, January 25, 2014 10:53 pm
Subject: Re: [Ohio-talk] being independent

>
>
> No, they didn't discontinue the count a dose, they just changed 
> manufacturers.  There was a nice article about the Connt a Dose in Diabetes 
> Forcast, a magazine that is put on digital cartridge by NLS.  Just contact 
> the Ohio Library and ask them to start sending it to you.  That's how I 
> heard about the Count a Dose.
> 
> Apparently, the original manufacturer couldn't get it to meet FDA 
> regulations, so they were going to discontinue it because they thought there 
> was no market for it.  Then someone from our Organization contacted Prodigy 
> Products and asked them to help.  They ironed out the FDA bugs and it is now 
> on the market again.
> 
> I haven't seen a Count a Dose, but it was described as a holder for as many 
> as two insulin vials.  The holder has raised dots (not braille) so you can 
> distinguish which bottle is which without being able to read the print label 
> or make your own braille ones.  You put the syringe in the bottle and turn a 
> dial, and it clicks once for every unit of insulin
> 
> If you want to order the Count a Dose sight unseen, you could call Alan 
> Medical at 1800-333-1412.  They sell Prodigy Products.  If you want to find 
> out if anyone closed to you sells it, call Prodigy Diabetes Products at 
> 1800-366-5901.  If you decide to order the Count a Dose without seeing it 
> first, then you could ask the diabetes educator closest to you to help you 
> learn to use it.
> 
> Unfortunately, I can't help you with your computer problems; I need help 
> with just about everything I do on the computer myself, but if you call our 
> national office and ask for help with getting on the DAN List Serve (or any 
> other diabetes information) they will help you.
> 
> By the way, you're doctor's office should know if there are insulin pens for 
> the insulin you take.  If there are, you won't even need the count a dose. 
> I take Lantus insulin, and there is a pen for that called Solo Star which is 
> completely accessible for a totally blind person.  Your diabetes educator 
> could help you learn to use the pen, too.
> 
> ----- Original Message ----- 
> From: "Dawn" <dlanting at bex.net>
> To: "'Ationfb of Ohio Announcement and Discussion List'" <ohio-talk at nfbnet.org>
> Sent: Saturday, January 25, 2014 12:33 PM
> Subject: Re: [Ohio-talk] being independent
> 
> 
> > Mary Ann thank you I have heard of this  I take two different insulins  I
> > take one hundred units twice a day  and forty five units three times a day
> > I have heard of this count a dose  and have asked my counselor from the
> > sight center here in Toledo about it  just yesterday  all she said is that
> > she thought they stoped making it  she wanted me to jujst get someone 
> > todraw
> > up a lot of needles at a time  and that is what I am doing now  hbut I 
> > don't
> > treally like doing it this way  but I have no choice  I have tried to join
> > the lise  but I may not being doing something right I hope I hear from 
> > them
> > soon  thank you for you help Dawn  I am in Toledo all ideas welcome
> >
> > -----Original Message-----
> > From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of 
> > Marianne
> > Denning
> > Sent: Saturday, January 25, 2014 11:46 AM
> > To: NFB of Ohio Announcement and Discussion List
> > Subject: Re: [Ohio-talk] being independent
> >
> > Dawn, I worked as a rehabilitation teacher and there was a product called
> > count-a-dose.  It is now Prodigy count-a-dose.  It uses 50 cc syringes.
> > LS&S sells it but I would guess Maxiaids, Independent Living Aids, and
> > possibly NFB Independence Market also sells it.
> > There is probably a rehabilitation teacher who works in your part of Ohio
> > who could demonstrate it before you spend money only to find it won't work
> > for you.  If you need help finding the nearest rehabilitation teacher 
> > please
> > let me know where you live and I will see if I can help you with this.
> > There is also the option of insulin pens.  Dave's recommendation to join 
> > the
> > listserv for people with diabetes is also a great suggestion.  Yes, it is
> > possible to measure your insulin independently.  It is very important that
> > you find a method that works for you.
> >
> > On 1/25/14, David Andrews <dandrews at visi.com> wrote:
> >> Are you on our diabetes-talk list I am sure they can help you with
> >> ideas.  To join either go to:
> >>
> >> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>
> >> or send e-mail to diabetes-talk-request at nfbnet.org and put the word
> >> subscribe on the subject line.
> >>
> >> Dave
> >>
> >> At 09:58 AM 1/25/2014, you wrote:
> >>>Being totally blind I cannot draw up my insulin  I hate depending  on
> >>>someone to draw up my medicine  and if that person can't get here to
> >>>do it  I am very concerned  that I am no getting the right amount I
> >>>just can't believe  there is not a way for blind diabetics  or for
> >>>that matter blind people can't safely  get their medicine  just a note
> >>>on how important  this is too mehope everyone has a happy warm day
> >>>Dawn
> >>
> >>
> >> _______________________________________________
> >> Ohio-talk mailing list
> >> Ohio-talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/ohio-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Ohio-talk:
> >> http://nfbnet.org/mailman/options/ohio-talk_nfbnet.org/marianne%40denn
> >> ingweb.com
> >>
> >
> >
> > —
> > Marianne Denning, TVI, MA
> > Teacher of students who are blind or visually impaired
> > (513) 607-6053
> >
> > _______________________________________________
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> >
> >
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> 
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