[Ohio-talk] diabetes independence

[Barb Fohl]

Yes, you're certainly right about the cold giving you a lot of time to work 
on Dawn's situation.

I understood her to say in a special note to me that her plan not only fails 
to cover the pen because she has such a high dose, but it doesn't cover the 
vials.  She thinks she would need 5 vials (she didn't say how often) and 
they only cover 3.  Maybe she was confusing vials with pens, but that 
doesn't make sense either.  There are 5 pens in a box, and each pen would 
hold 3 of her shots.

     I was lucky.  The Ashtabula Clinic has a diabetes educator who had not 
worked with a totally blind person, either, but she was willing to try and 
did a very good job.  She knew about the Lantus pens.  We went through the 
process at least 3 times.  First she showed me how to use the pen.  Then we 
went through it again so I could take notes in my Braille Lite.  Then we did 
it a third time so I could see if my notes made sens.  She said that if I 
had trouble I could call her any time and gave me her cell phone number.  I 
commented that it wouldn't work for me to call her when I was using the pen 
because I take my shot just before I go to bed, and that's usually at 
midnight.  She said that didn't matter.  I had to make use of her offer at 
lease once, maybe twice.

I didn't mention that we had two sessions in person with the pen.  The first 
time, my insurance had just purchased 90 days worth of the vials.  The 
educator knew they wouldn't purchase the pens until I finished the vials, so 
I had to wait to order the pens until I was nearly done with the vials.  I 
said I was afraid I'd forget how to use the pen in 3 months time without 
being able to practice, so she set up another appointment nearer the time of 
my pen use.  That's when we did everything in depth.

At that time, they only had the optaaclick pens, not the solo star, so 
that's the one she helped me with.

Will Dawn be able to use either the count a dose or the other device for the 
other two medications, Apedia (which I can't spell), and another medication 
which Dawn couldn't spell and I can't remember!

I didn't forget about At Large but couldn't call in.  The Choral Society was 
sponsoring a recital, so I went to that, then stayed for the reception, 
followed by dinner out.  I hope I'll be able to make it next time.  The 4th 
Sunday, right?

Wanda wanted me to tell you that she doesn't have computer access right now 
because somebody vandalized hers.  She's going to order the pens.  I told 
her I didn't think our members would buy them, but maybe our sighted friends 
would.  She thinks we can sell them for $2 a piece.  Since I don't usually 
buy pens, I don't know how much they cost.  I get them at meetings and 
seminars where everybody gets a pen, and I save them so I'll have one for my 
signatures.

----- Original Message ----- 
From: "COLLEEN ROTH" <n8tnv at att.net>
To: <ohio-talk at nfbnet.org>
Sent: Sunday, January 26, 2014 7:57 AM
Subject: Re: [Ohio-talk] diabetes independence


> Hi Barb,
> Did you get a Waiver for the Insulin Pen? How many Units do you take?
> It might be helpful to remind Express Scrips of your Waiver.
> Colleen Roth
>
>
>
> ----- Original Message -----
> From: Barb Fohl <barbfohl at pobox.com>
> To: "ohio-talk" <ohio-talk at nfbnet.org>
> Date: Saturday, January 25, 2014 11:26 pm
> Subject: [Ohio-talk] diabetes independence
>
>>
>>
>> Dawn, I'm glad you live in Toledo where Colleen can help you.  I got a 
>> waiver from Express Scripts too, about a year ago.  I didn't think of 
>> suggesting that to you because I wasn't sure you could order from them. 
>> I get my prescriptions from them because I'm affiliated with the Ohio 
>> Public Employees Retirement System.  I hadn't heard of the other 
>> measuring device that Maryanne told us about, either.  I agree with her, 
>> though.  We should all reach out to each other, and I'm glad you asked us 
>> for help so Colleen would know to come to your assistance.
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