[Ohio-talk] Disabilities and their portrayal

[COLLEEN ROTH]

Hi Paul,
Thanks for reminding me of what school she attended.
I do not know why but I was thinking she went to Wright State.
I have a friend who is an Alumnus of UD and has a daughty with Cry of the Cat Syndrome. I am not joking, this is really the name of the Syndrome. When the children are little they mew like a kitten, they do not cry.
They have very severe disabilities including CP, profound deafness, profound Mental Retardation and legal blindness.
They usually do not live a long life. Her daughter is 36 years old which is a miracle.
I am sure my friend will weigh in on this with UD.
I will not mention Kaiti's name to her.
Colleen Roth



----- Original Message -----
From: Paul Dressell <pmdbmd at fuse.net>
To: "NFB of Ohio Announcement and Discussion List" <ohio-talk at nfbnet.org>
Date: Thursday, January 30, 2014 1:34 pm
Subject: Re: [Ohio-talk] Disabilities and their portrayal

>
>
> Kaiti Shelton attends the University of Dayton and is active in our 
> Students' Division. Paul
> ----- Original Message ----- 
> From: "Kaiti Shelton" <kaiti.shelton at gmail.com>
> To: "NFB of Ohio Announcement and Discussion List" <ohio-talk at nfbnet.org>
> Sent: Thursday, January 30, 2014 11:21 AM
> Subject: [Ohio-talk] Disabilities and their portrayal
> 
> 
> > Hi all,
> >
> >
> >
> > I made quite a stir in my medical ethics class this morning.  We were 
> > asked
> > to consider an example from our book, which concerned a 10 year old boy 
> > who
> > was according to the book having all these horrible issues as a result of
> > CP.  Some of the things the book claimed about this boy were not
> > characteristics of CP at all, and it even claimed that CP was genetic 
> > itself
> > rather than caused by complications.  The question was, "Is it moral to 
> > kill
> > Johnny via lethal injection to end his pain and the suffering of his
> > parents?"  I wasn't going to say anything at first, but then I started
> > questioning things.  Is it moral to kill someone if you think they're in
> > pain, but they don't have the autonomy to tell you whether they are or 
> > not?
> > Is it moral to kill a child when his parents are making the request?  Is 
> > it
> > moral to make this decision without full and accurate knowledge of what 
> > the
> > condition really is?
> >
> >
> >
> > And you know what happened?  When I contradicted the book the professor 
> > was
> > first flustered, then when I started answering questions with the 
> > knowledge
> > I had he told me I was ahead of the curve, and proceeded with his lecture,
> > using the false information and pretenses the book provided.  I was 
> > shocked.
> > This is a class of pre-med majors (and me who is the only non-medical
> > specific person in the class), and it boggled me that this sort of stuff
> > would be fed to the next generation of doctors, dietitions, exercise
> > scientists, etc.  I know this is just an undergraduate class, but 
> > shouldn't
> > doctors always take a patient-centered approach, or a human-centered
> > approach for that matter?  And I'm reminded of "The Right to Live in the
> > World," and how what that speech says applies to this situation.  The
> > misinformation in my bioethics textbook only substantiates the claim that
> > people with disabilities lead miserable or terribly painful lives, and 
> > that
> > misninformation in the minds and hands of future doctors is a scary thing 
> > to
> > me.
> >
> >
> >
> > Anyway, just thought I'd continue discussion on this topic with others who
> > will get it.  I'm sorry if I ranted a little; I got a little passionate on
> > this issue.
> >
> >
> >
> > Kaiti Shelton
> >
> > University of Dayton---2016
> >
> > Music Therapy Major, Psychology Minor, Clarinet
> >
> > Ohio Association of Blind Students, President
> >
> > NFB Community Service Group, Service Project Committee Chair
> >
> > Sigma Alpha Iota-Delta Sigma
> >
> >
> >
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> 
> 
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