[Pibe-division] early intervention question infant with ROP stae One eligible for ei vision therapy

[Kim Cunningham]

Sara,
I am the parent of a child with ROP also. Our pediatric opthalmologist (and team) has discovered a "cure" for ROP. From my understanding it is a single injection into the eye at the onset of the disease. This disease can progress from stage one to plus disease, so they should keep a very close watch on her. The doctors are at the end of the research and while they are performing this procedure at some hospitals, I'm not sure if it is available everyone. I would suggest you have the family contact:
 
Dr. Helen Mintz-Hittner
713-559-5200
Houston, Texas
 
Regards,
Kim Cunningham
President, Texas Parents of Blind Children
kim at tpobc.org
 
 


________________________________
From: Sara Rooz <sararooz at gmail.com>
To: vision at lists.pdx.edu; pibe-division at nfbnet.org 
Sent: Wednesday, February 1, 2012 10:03 AM
Subject: [Pibe-division] early intervention question infant with ROP stae One eligible for ei vision therapy


Hello: 
I am trying to assist a parent who has an infant who was born 1 pounds 14 ounces and diagnosed with ROP stage One. Firstly, should this infant be routinely seen by a pediatric ophthalmologist who understands rop? Since I am blind myself due to ROP, I always to use an ophthalmologist who understands the possible complication of ROP. Secondly, at six months of age is this infant entitled for early intervention services including early intervention for vision? I would like to assist the parent as much as possible. Any information is greatly appreciated. The family lives in Brooklyn , New York . 
Sara Rooz
Certified Teacher of the Blind and Visually Impaired in New York
Independent Related Service Provider Vision Education Services in New York City
Email: sararooz at gmail.com
 
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