[stylist] consternation! and befuddlement!<sp>

Frank Lordi timber_wolf899 at yahoo.com
Thu Mar 26 23:08:59 UTC 2009 

Pardon but i'm still hugely confused.     Blindness is not a sever disability?    I guess that boils down to what you mean by disability.


For me, can i function with my poor sight?  yes
has it been a major factor in making me who i am today?  yes
Have i adapted?  yes

If a surgeon offered me a safe ethical procedure to repair all damage and give me 20/20 vision, would i take it?  Good grief yes!


--- On Thu, 3/26/09, helene ryles <dreamavdb at googlemail.com> wrote:

> From: helene ryles <dreamavdb at googlemail.com>
> Subject: Re: [stylist] Does anyone want to be blind?
> To: "NFBnet Writer's Division Mailing List" <stylist at nfbnet.org>
> Date: Thursday, March 26, 2009, 11:43 AM
> Judith and Alan:
> Thanks for the advise. Dad was better then he was last
> year, but there
> is still a long way to go. I've accepted blindness.
> 
> Yes, I think doctor's have got it wrong. I think that
> they see
> blindness as something to be cured from (if possible)
> because their
> perseption of blindness is of a severe disability which it
> isn't. With
> the right kind of training a blind person only has a minor
> disability
> not a severe one.
> 
> Say take a child who is born with ROP who has EVERYTHING
> done to save
> what little vision they've got. They spend their
> childhood struggling
> with very severe sight loss but since the parents put such
> a lot of
> effort into saving that little sight, they want the child
> to be as
> 'normal' as possible which means no braille, no no
> cane. That kid is
> relying on their weakest sense. Then their retina detaches
> itself
> completely. They are no longer at the stage where braille
> can be
> learnt quite as easily. They are say in 11th grade and are
> supposed to
> be studying but now they have this problem of not being
> able use
> vision any more. Having to learn braille by touch. Having
> to learn
> long cane, all that on top of studying. If they fail then
> they might
> blame this on the sight lose, but that wouldn't be
> true. They failed
> because the family and their doctor clung too much on their
> sight. So
> once it went. Their whole way of life went too.
> 
> If Their parents hadn't done that. Hadn't spent so
> much time and
> effort at the eye doctors to make the child have better
> vision. Put
> all that effort into learning braille, long cane, daily
> living etc...
> They really wouldn't have needed to fail.
> 
> Of course a 3rd option could have been to have the best of
> both
> worlds. But that's another problem. The fact that so
> few low vision
> kids learn braille or other blind skills.
> 
> Helene.
> 
> On 26/03/2009, Judith Bron <jbron at optonline.net>
> wrote:
> > Perhaps we should be sending this thread to doctors. 
> As medical
> > professionals they are committed to saving as much
> sight as possible.
> > According to this thread some of their treatments and
> procedures are wrong.
> > Do any of us have the right to tell them not to do
> what they strive to do?
> > Judith
> > ----- Original Message -----
> > From: "James Canaday M.A. N6YR"
> <n6yr at sunflower.com>
> > To: "NFBnet Writer's Division Mailing
> List" <stylist at nfbnet.org>
> > Sent: Wednesday, March 25, 2009 10:29 PM
> > Subject: Re: [stylist] Does anyone want to be blind?
> >
> >
> >> yes,
> >> reading with my one squinty eye gave me headaches
> too.
> >> personally I think far far too often the educrats
> resort to "sight saving"
> >>
> >> techniques when they should push braille and other
> blindness methods and
> >> skills.
> >> jc
> >>
> >> Jim Canaday M.A.
> >> Lawrence, KS
> >>
> >> At 07:06 PM 3/25/2009, you wrote:
> >>>Jim: I can identify with that since I was glad
> to lose the rest of my
> >>>hearing for similar reasons. Being presurized
> into verbal
> >>>communication methods that I struggled with
> with powerful migrane
> >>>inducing hearing aids. Phew! I was glad when
> that was over.
> >>>
> >>>Helene
> >>>
> >>>On 26/03/2009, James Canaday M.A.  N6YR
> <n6yr at sunflower.com> wrote:
> >>> > once I became blind I was then taught
> braille and the audio reading
> >>> > methods.  that made reading much much
> more pleasurable and
> >>> > easier!  "sight saving" meant I
> was reading with my one squinty eye
> >>> > peering through jewelers' loop
> magnification lenses that came down in
> >>> > front of my glasses lense.  I would not
> have gone to college if I had
> >>> > not lost my sight at age thirteen.
> >>> > jc
> >>> >
> >>> > Jim Canaday M.A.
> >>> > Lawrence, KS
> >>> >
> >>> > At 06:38 PM 3/25/2009, you wrote:
> >>> >>I wasn't really thinking of people
> already blind although I've heard
> >>> >>of blind people saying that blindness
> was the best thing that happened
> >>> >>to them. Wasn't that a line at the
> end of one of Robert's thought
> >>> >>provokers?
> >>> >>
> >>> >>I was thinking more of sighted people
> with a disorder called BIID
> >>> >>where people want to be disabled:
> Usually amputee's but I've heard
> >>> >>some of them wanting to be deaf or
> blind.
> >>> >>
> >>> >>Also I know of someone who was born
> blind, regained his sight and is
> >>> >>now losing it again due to Glycoma and
> he says he is glad to be blind
> >>> >>as he says he was meant to be blind.
> >>> >>
> >>> >>As for me, I make deafblindness part
> of my lifestyle. It's been a
> >>> >>concious choice for me to fully
> embrace being a deafblind person and
> >>> >>move on. It's not easy to begin
> with, but once one fully adapts it's
> >>> >>no big deal. I believe that humans are
> a very adaptible species that
> >>> >>can manage perfectly well minus one or
> two senses. It's not the
> >>> >>tragedy that people make of it.
> It's no worse or better then being
> >>> >>sighted. Just differance and it's
> the differances that are hard at
> >>> >>first, not the blindness
> >>> >>
> >>> >>Helene
> >>> >>
> >>> >>On 25/03/2009, LoriStay at aol.com
> <LoriStay at aol.com> wrote:
> >>> >> > Not if they aren't there
> already.   What does wanting have to do
> >>> >> > with
> >>> >> > it?
> >>> >> > Lori
> >>> >> > In a message dated 3/24/09
> 8:15:48 PM, timber_wolf899 at yahoo.com
> >>> >> > writes:
> >>> >> >
> >>> >> >
> >>> >> >>
> >>> >> >> does anyone want to be
> blind?
> >>> >> >>
> >>> >> >>
> >>> >> >>
> >>> >> >
> >>> >> >
> >>> >> >
> >>> >> >
> >>> >> > **************
> >>> >> > Feeling the pinch at the grocery
> store?  Make dinner for $10 or
> >>> >> > less.
> (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)
> >>> >> >
> _______________________________________________
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