[stylist] quiet

[Lynda Lambert]

Bridgit,
In my friend's experience it has been  progressive. It is carried in the 
genes. She had the gene, and her husband is a carrier of the gene. Their son 
has it; and her brother has it.  Her brother is totally blind from this 
disease, and my friend has been losing sight rapidly over the past few 
years.  It has been very gradual but steady for quite a few years for her. 
Yes, she has no central vision - she says there is a shape that occurs in 
the eye, and your vision surrounds that shape - different people have 
different shapes, according to her experience with it in her family.  Maybe 
for some people it eventually stops, but that has not been the case with 
Suzanne or her brother. I have known three people who have it. I met two of 
them at BVRS when I was a resident there in 2008. One was the psychologist 
who worked there, and the other was a fellow student. That is about all I 
know about it.

Lynda
----- Original Message ----- 
From: "Bridgit Pollpeter" <bpollpeter at hotmail.com>
To: "'Writer's Division Mailing List'" <stylist at nfbnet.org>
Sent: Wednesday, July 10, 2013 9:01 PM
Subject: Re: [stylist] quiet


> Sounds busy. I wish you luck.
>
> Does anyone here have Stargarts or know more about it? I had a good
> friend with Stargarts, and he told me it happens quickly but then stops.
> So you lose vision rapidly in a short amount of time but then it stops
> and you don't lose more. And it affects the central vision. My friend
> had 20/20 except for his central vision. But are there different types
> like RP, or did I misunderstand the condition?
>
> Bridgit
>
> -----Original Message-----
> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Lynda
> Lambert
> Sent: Wednesday, July 10, 2013 7:16 PM
> To: Writer's Division Mailing List
> Subject: Re: [stylist] quiet
>
>
> Thanks, Mary Jo. I will do that.  This is an enormous project  for two
> blind
> artists/writers to tackle.
> My partner in the project is a gallery owner, and a painter, and has had
>
> continual sight loss due to Stargardts Disease.
> Our target date for the opening of the first venue will be set the end
> of
> July - after that, we can then move on to begin the process of lining up
> the
> remaining venues where the show will travel to over a two year period.
> Not
> only are we creating all the work for the show; we are working with a
> videographer and a photographer to do the photos for the book and the
> video
> for the exhibition.  I will doing the fund raising for the project and
> will
> be writing all the text for the book and together we will both be doing
> all
> the promos and scheduling. You can imagine, this is on my plate every
> day
> for the next 3 years. We'll have the book ready for the opening show in
> the
> spring, so that gallery visitors can purchase it at the opening
> receptions
> and during the run of the show in each gallery and museum.  My rule of
> thumb
> has always been 'If the dream is too big, it is just right."  This one
> is
> REALLY too big. l o l
>
> Lynda
> ----- Original Message ----- 
> From: "Mary-Jo Lord" <mjfingerprints at comcast.net>
> To: "'Writer's Division Mailing List'" <stylist at nfbnet.org>
> Sent: Wednesday, July 10, 2013 7:43 PM
> Subject: Re: [stylist] quiet
>
>
>> Hi Linda,
>>
>> Your book sounds interesting. Keep us posted.
>>
>>
>> -----Original Message-----
>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Lynda
>> Lambert
>> Sent: Wednesday, July 10, 2013 1:07 PM
>> To: Writer's Division Mailing List
>> Subject: Re: [stylist] quiet
>>
>> it has been so quiet, I thought for a little while I was not getting
>> messages. Would love to hear about the convention and the writer's
>> meeting and the writing contest winners. Is that posted somewhere else
>
>> or will it be done here?
>>
>> I am currently working on the text that will be in a book that is
>> being created to accompany an exhibition next spring. Just in the
>> beginning stages presently. It will be a souvenier book with text and
>> photos of art works by
>> myself and my friend Suzanne Gibson, a blind painter. Between creating
> the
>> work for the show, and dealing with all the details of securing
> venues,
>> doing promos, and lots more, we are at it ever day.
>>
>> Lynda
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>
>
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