[blindkid] Arianna Update

[Debby B]

Wonderful news! So glad to hear Ari is doing so well with her recouperation!

 Debby 
bwbddl at yahoo.com
www.nfbflorida.org/parents

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the Motor City March for Independence! Better yet, join the team of the FL Parents of Blind Children!
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________________________________
From: janice jordan <jjordan_pa at yahoo.com>
To: Andrea Goad <dancetheatrenw at yahoo.com>; Bernie LaSarte <blasarte at cdatribe-nsn.gov>; Blindkid.net <blindkid at nfbnet.org>; Cindy Hayes <cyhayes at netw.com>; david moulton <dmoulton1 at optonline.net>; djanson at bmc.portland.ihs.gov; Ganene <ganenejs at yahoo.com>; gcarpenter at bmc.portland.ihs.gov; Georgie <gleightarrant at yahoo.com>; jmuhs at sd41.k12.id.us; Joanne Peone <jpeone at cdatribe-nsn.gov>; josie lozeau <turtle1317 at yahoo.com>; Kathye <kathryneankney at msn.com>; Leslie Woodfill <leslie at northwestwishes.org>; Leta Campbell <lcampbell at cdatribe-nsn.gov>; mbarinaga at bmc.portland.ihs.gov; Nathan <cougs02 at hotmail.com>; njpeone at cdatribe-nsn.gov; plysenha at fhcrc.org; Randy Lord <randalllord at gmail.com>; reachrap49 at yahoo.com; rgreen at uidaho.edu; Robert Jaquiss <rjaquiss at earthlink.net>; shannah rust <shany_lee27 at hotmail.com>; Sharon Howe <dmoulton at northcascades.net>; Tim Parks <parks_tim at yahoo.com>; tina jordan <tjordan at cdatribe-nsn.gov>; jjjordan at cdatribe-nsn.gov;
 mhendrickx at bmc.portland.ihs.gov
Sent: Monday, April 13, 2009 2:41:57 PM
Subject: [blindkid] Arianna Update

So far it looks like the surgery is all that is needed for immediate treatment. No chemo or radiation in the immediated future!! Yea!  Pathology came back certain for Renal Cell Carcinoma (RCC) which, as I mentioned earlier, is extremely rare in children and typically affects those who are 50 to 70 years old. We are going to participate in clinical research project since it so rare. Will benefit other children who find themselves in same boat. Bone scan came out clean without evidence of metasteses (spread of cancer) and we just got back from CT of the head which haven't received results yet. We will have to follow up closely for the next few months and will keep close watch of her remaining kidney to make sure it is doing the job for two. It is looking like we will be going home today (Ari is very excited about the prospect) and will continue recuperating at home. I want to thank everyone who was with us (physically, in spirit, with prayers and
with love) during this ordeal. She is such an amazing little girl and I am blessed to be a part of her life and to have such wonderful friends and family to share her with. Thank you all again.  Janice  


      
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