[blindkid] Arianna Update

Brandy with Discovery Toys branlw at sbcglobal.net
Fri Apr 17 23:43:08 UTC 2009


Hi, What wonder full news. That little girl is strong and will go far. The 
medical world is tough but it gives you strength from those challenges. 
Sending my prayers your way. Bran


"We all have our time machines. Some take us back, they're called memories. 
Some take us forward, they're called dreams."
Jeremy Irons

Brandy Wojcik
Discovery Toys Group Manager and Educational Consultant

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----- Original Message ----- 
From: "Debby B" <bwbddl at yahoo.com>
To: "NFBnet Blind Kid Mailing List,(for parents of blind children)" 
<blindkid at nfbnet.org>
Sent: Tuesday, April 14, 2009 4:50 PM
Subject: Re: [blindkid] Arianna Update


> Wonderful news! So glad to hear Ari is doing so well with her 
> recouperation!
>
> Debby
> bwbddl at yahoo.com
> www.nfbflorida.org/parents
>
> Please support Braille literacy and programs for our youth by sponsoring 
> me in
> the Motor City March for Independence! Better yet, join the team of the FL 
> Parents of Blind Children!
> http://www.marchforindependence.org/goto/debbyb
>
>
>
>
> ________________________________
> From: janice jordan <jjordan_pa at yahoo.com>
> To: Andrea Goad <dancetheatrenw at yahoo.com>; Bernie LaSarte 
> <blasarte at cdatribe-nsn.gov>; Blindkid.net <blindkid at nfbnet.org>; Cindy 
> Hayes <cyhayes at netw.com>; david moulton <dmoulton1 at optonline.net>; 
> djanson at bmc.portland.ihs.gov; Ganene <ganenejs at yahoo.com>; 
> gcarpenter at bmc.portland.ihs.gov; Georgie <gleightarrant at yahoo.com>; 
> jmuhs at sd41.k12.id.us; Joanne Peone <jpeone at cdatribe-nsn.gov>; josie lozeau 
> <turtle1317 at yahoo.com>; Kathye <kathryneankney at msn.com>; Leslie Woodfill 
> <leslie at northwestwishes.org>; Leta Campbell <lcampbell at cdatribe-nsn.gov>; 
> mbarinaga at bmc.portland.ihs.gov; Nathan <cougs02 at hotmail.com>; 
> njpeone at cdatribe-nsn.gov; plysenha at fhcrc.org; Randy Lord 
> <randalllord at gmail.com>; reachrap49 at yahoo.com; rgreen at uidaho.edu; Robert 
> Jaquiss <rjaquiss at earthlink.net>; shannah rust <shany_lee27 at hotmail.com>; 
> Sharon Howe <dmoulton at northcascades.net>; Tim Parks <parks_tim at yahoo.com>; 
> tina jordan <tjordan at cdatribe-nsn.gov>; jjjordan at cdatribe-nsn.gov;
> mhendrickx at bmc.portland.ihs.gov
> Sent: Monday, April 13, 2009 2:41:57 PM
> Subject: [blindkid] Arianna Update
>
> So far it looks like the surgery is all that is needed for immediate 
> treatment. No chemo or radiation in the immediated future!! Yea! 
> Pathology came back certain for Renal Cell Carcinoma (RCC) which, as I 
> mentioned earlier, is extremely rare in children and typically affects 
> those who are 50 to 70 years old. We are going to participate in clinical 
> research project since it so rare. Will benefit other children who find 
> themselves in same boat. Bone scan came out clean without evidence of 
> metasteses (spread of cancer) and we just got back from CT of the head 
> which haven't received results yet. We will have to follow up closely for 
> the next few months and will keep close watch of her remaining kidney to 
> make sure it is doing the job for two. It is looking like we will be going 
> home today (Ari is very excited about the prospect) and will continue 
> recuperating at home. I want to thank everyone who was with us 
> (physically, in spirit, with prayers and
> with love) during this ordeal. She is such an amazing little girl and I am 
> blessed to be a part of her life and to have such wonderful friends and 
> family to share her with. Thank you all again.  Janice
>
>
>
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