[blindkid] repeating - Kathy

Sun Jun 21 12:45:16 UTC 2009

our 9 year old also has peters and uses lots of echolalia.  However, she is also autistic.  I would recommend testing for autism not only because of your daughter's language issues but the other behaviors you described.  We waited until Sydney was older to get the "official" autism diagnosis for a number of reasons.  Now, we wonder what kind of difference the specific "autism" intervention would have made when she was younger.  

FYI, in our area it has been extremely difficult not only to test for, but also to find someone who will treat Sydney for autism outside the state blind school.  The austim community repeatedly tells us that they don't have the appropriate tests or materials to treat Sydney due to the lack of vision.

let me know if you need any resources and I'd be happy to help,

Susan 

> Date: Sun, 21 Jun 2009 04:56:15 -0700
> From: burgawicki at yahoo.com
> To: blindkid at nfbnet.org
> Subject: Re: [blindkid] repeating - Kathy
> 
> Thank you!
> 
> 
> 
> 
> ________________________________
> From: "kbugsmum at aol.com" <kbugsmum at aol.com>
> To: blindkid at nfbnet.org
> Sent: Saturday, June 20, 2009 3:23:40 PM
> Subject: Re: [blindkid] repeating - Kathy
> 
> My daughter did this a lot when she was younger. It began to slowly taper off when she was between 3 and 4. She started a regular ed preschool at 3 so I don't know if that helped or if it was just something she had to grow out of. She is now 7 and speaks perfectly well. Hang in there!
> 
> 
> -----Original Message-----
> From: Kathy B <burgawicki at yahoo.com>
> Sent: Wed, Jun 17, 2009 9:26 pm
> Subject: Re: [blindkid] repeating - Kathy
> 
> 
> 
> She was born with Peter's Anomaly.
> 
> 
> 
> 
> ________________________________
> From: Shayla Lovett <shayla_lovett at yahoo.com>
> To: "NFBnet Blind Kid Mailing List, (for parents of blind children)" 
> <blindkid at nfbnet.org>
> Sent: Wednesday, June 17, 2009 8:27:21 AM
> Subject: Re: [blindkid] repeating - Kathy
> 
> Though echolalia is not necessarily a blindness trait, it is very common and 
> very hard to break in ONH kids. What causes you daughter's blindness?
> 
> 
> 
> 
> ________________________________
> From: "cconley at fuse.net" <cconley at fuse.net>
> To: "NFBnet Blind Kid Mailing List, (for parents of blind children)" 
> <blindkid at nfbnet.org>
> Sent: Tuesday, June 16, 2009 10:12:45 AM
> Subject: Re: [blindkid] repeating
> 
> The repetitive conversation is not necessarily a 'blindness trait'. Yes, some 
> blind kids do repeat things, but not usually to that extent. Have you considered 
> having her tested for autism?
> 
> ---- Kathy B <burgawicki at yahoo.com> wrote: 
> > Hi All-
> > 
> > My 3.5 yr old totally blind daughter is always repeating everything. For 
> example, if I ask her to go to her chair she will say, "go to my chair, go to my 
> chair" repeatedly until she makes it to her chair. Also, everything has to be 
> named a certain way. For example, if you ask her to go to the door, she won't 
> go until you say go to the front door. If I say scoop with your spoon, she 
> won't do it until I say metal spoon. She will repeat what she wants you to say 
> until you say it. Have any of you ever had this problem, and how do you make it 
> stop?!?
> > 
> > Thanks
> > Kathy
> > 
> > 
> > 
> > 
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