[blindkid] prosthetic eye

[DrV]

Hi Samantha,
Both my kids have one small non-functional eye & thus have conformers which 
are like big fat contacts/shells that are painted to look like very 
realistic looking eyes. They can stay in over a year. They got them when 
they were still little & we have had to build them up a few times. My boys 
are now 9 & 13. We only take them out on the rare occasion that there is a 
problem - I can't even remember when the last time happened. It can be hard 
to find someone really good at making ocular prosthetics, but once we did, 
it has never really been a battle with our kids. They actually find it more 
comfortable to have it in. I do believe that the social benefits that some 
have already put forth are most likely going to be worth the effort & cost. 
At least I believe that to be so in our case.
Best wishes,
Eric V

----- Original Message ----- 
From: "Samantha Parker" <sparkaspirit at yahoo.com>
To: " (for parents of blind children)NFBnet Blind Kid Mailing List" 
<blindkid at nfbnet.org>; <rholloway at gopbc.org>
Sent: Thursday, July 29, 2010 19:11
Subject: Re: [blindkid] prosthetic eye


Thanks for all the insights. Beverly has a rare case of the back of the eye 
being normal and healthy, and the front slowly deteriorating. She actually 
has much larger eyes than normal that bulge out. Her face is close to adult 
size and her eye sockets measured normal adult size. Her seeing eye is not 
"pretty" but it's what she's got. I do not think she would be able to wear 
anything over the top of it. Her removed eye has been replaced by a solid 
round piece that the muscles have been reattached to. She also has a clear 
over-sized contact lens in place over that while she heals. What we are 
wondering is if we need to get the actual painted lens or can we go 
without...

--- On Thu, 7/29/10, rholloway at gopbc.org <rholloway at gopbc.org> wrote:

From: rholloway at gopbc.org <rholloway at gopbc.org>
Subject: Re: [blindkid] prosthetic eye
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)" 
<blindkid at nfbnet.org>
Date: Thursday, July 29, 2010, 3:10 PM

Many children like yours (and our daughter) are indeed able to go days, 
weeks, or sometimes even months with them in, however some children (and 
adults) have to take them out at night.

It depends on how the person tolerates them. Discuss with your occularist 
(however that is spelled). Those sensitive to long wearing may have issues 
if they are not removed at night...
Sent on the Sprint® Now Network from my BlackBerry®

-----Original Message-----
From: SUSAN POLANSKY <sepolansky at verizon.net>
Sender: blindkid-bounces at nfbnet.org
Date: Thu, 29 Jul 2010 12:45:52
To: NFBnet Blind Kid Mailing List,\(for parents of blind 
children\)<blindkid at nfbnet.org>
Reply-To: "NFBnet Blind Kid Mailing List,
\(for parents of blind children\)" <blindkid at nfbnet.org>
Subject: Re: [blindkid] prosthetic eye

My son was born with bilateral anopthalmia, he has had prosthetics his 
entire
life. We know several youth who have had one eye removed and wear a
prosthetis in one side and a shell in the other so both sides appear the
same. It will probably be a battle at first but it should not be a daily
battle. The shell and or prosthetic do not need to be removed daily. My
son removes his once every 2 to 3 weeks to wash and re-insert, some do it 
more
often some less.
Susan T. Polansky




________________________________
From: Samantha Parker <sparkaspirit at yahoo.com>
To: blindkid at nfbnet.org
Sent: Thu, July 29, 2010 11:13:15 AM
Subject: [blindkid] prosthetic eye

Hello,
My 5 1/2 year old just had her right eye removed. The doctors have assumed 
we
would want to get a prosthetic eye but we have been discussing the pros and 
cons
and are wondering what others have done. Her other eye is not "normal" 
looking
either. And we have other daily battles including oral eating...we are not 
sure
as to whether a prosthetic is a necessary battle...

Thanks!
Blessings,
Sam





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