[blindkid] 5year old with low vision (again)

Doreen Franklin doreenproverbs3 at bellsouth.net
Sat May 12 19:30:55 UTC 2012

Jill ... go to the link below ... mom in NJ won Braille for her son after 3+ yr fight for Braille. Hank also has albinism and nystagmus. 


From: Jill Fass <jillfass at gmail.com>
To: blindkid at nfbnet.org 
Sent: Saturday, May 12, 2012 1:35 PM
Subject: [blindkid] 5year old with low vision (again)

I had sent this to from my work email by accident!!! This is my correct email

Hi All!

I am new to this blind kid thing so I hope I am doing this right.

I have a 5 year old boy with albinism. He has low vision. His vision
is about 20/200.  Outside in the sun much worse. What can an O and M
person do for my child. It seem like since my son has sight our state
Commission (not for) the blind does not do much for my son. He has not
had any O and M services since he was 3. They were in the backyard for
maybe 20 minutes and said he is fine. Then she has him at his
preschool and said he is fine. Call when he goes to elem. school. I
feel stupid, is my son missing something?

Also, can anyone give any insight on Low Vision evals. I want my son
to have a cctv and a monocular for kindergarten. Are there specific
questions I should ask? When should he start keyboarding? They will
not give him Braille because he has too much sight for that. He does
seem ok with large print. Then again he is only 5. He has nystagmus so
I know reading will become a problem when he is older. I am sorry with
so many question..

Mrs. Jill Fass

Hamilton, NJ

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