[blindkid] Sleep pattern for blind 5 month old

[Peter Donahue]

Good evening everyone,

    And don't let the specialist you consult assume that her sleep 
irregularities may be due to so-called Non-24 Disorder. This is a classic 
example of how the assumption being promoted by Vanda Pharmaceuticals that 
all totally blind individuals suffer from this condition could prevent this 
girl from receiving a proper diagnosis of her sleep disorder.

Peter Donahue


----- Original Message ----- 
From: "Deborah Kent Stein" <dkent5817 at att.net>
To: "Blind Kid Mailing List,(for parents of blind children)" 
<blindkid at nfbnet.org>
Sent: Tuesday, February 11, 2014 4:24 PM
Subject: Re: [blindkid] Sleep pattern for blind 5 month old


>
>
> Dear Alicia,
>
> It's important to remember that whether a child is blind or sighted, 
> babies' sleep patterns differ widely.  It might be a good idea to chart 
> your daughter's sleep patterns so you can get a clearer sense what is 
> going on. For instance, if she's waking a lot during the night, she may 
> sleep more during the day to catch up.  If you continue to be concerned, 
> you might think about consulting a pediatric sleep specialist.  A number 
> of hospitals have pediatric sleep clinics.
>
> Debbie
>
>
>
> -----Original Message----- 
> From: Alicia Trust
> Sent: Tuesday, February 11, 2014 1:13 PM
> To: Blind Kid Mailing List,(for parents of blind children)
> Subject: Re: [blindkid] Sleep pattern for blind 5 month old
>
> She has clinical bilateral anophthalmia. She has no other medical
> conditions. We are working with our county's early intervention program 
> and
> the Maryland School for the Blind. I also contacted MSB and they suggested
> giving her more stimulation during the day but not too much, obviously. 
> She
> will eat and play and 'talk" when she is awake.
> On Feb 11, 2014 3:37 PM, "Marianne Denning" <marianne at denningweb.com> 
> wrote:
>
>> Many blind children develop at a slower rate than their sighted peers.
>>  Does she interact with people and toys when she is awake?  What is
>> the cause of her blindness?  Are you involved with any agencies for
>> the blind that offer support for the family?
>>
>> On 2/11/14, Alicia Trust <aliciatrust08 at gmail.com> wrote:
>> > All,
>> >
>> > We have a blind baby girl who is 5 months old now. I hate to seem like
>> I'm
>> > complaining, but she seems to be sleeping a lot. We don't want to be
>> > missing signs of a problem. How much really is too much? I don't 
>> > remember
>> > our sighted daughter (now 4 years old) sleeping so much.
>> >
>> > Thanks,
>> > Alicia and Matt
>> > _______________________________________________
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>> >
>>
>>
>> --
>> Marianne Denning, TVI, MA
>> Teacher of students who are blind or visually impaired
>> (513) 607-6053
>>
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