[blindkid] Sleep pattern for blind 5 month old

[Marianne Denning]

I would hope this diagnosis would never be made for a baby or young child.

On 2/11/14, Peter Donahue <pdonahue2 at satx.rr.com> wrote:
> Good evening everyone,
>
>     And don't let the specialist you consult assume that her sleep
> irregularities may be due to so-called Non-24 Disorder. This is a classic
> example of how the assumption being promoted by Vanda Pharmaceuticals that
> all totally blind individuals suffer from this condition could prevent this
>
> girl from receiving a proper diagnosis of her sleep disorder.
>
> Peter Donahue
>
>
> ----- Original Message -----
> From: "Deborah Kent Stein" <dkent5817 at att.net>
> To: "Blind Kid Mailing List,(for parents of blind children)"
> <blindkid at nfbnet.org>
> Sent: Tuesday, February 11, 2014 4:24 PM
> Subject: Re: [blindkid] Sleep pattern for blind 5 month old
>
>
>>
>>
>> Dear Alicia,
>>
>> It's important to remember that whether a child is blind or sighted,
>> babies' sleep patterns differ widely.  It might be a good idea to chart
>> your daughter's sleep patterns so you can get a clearer sense what is
>> going on. For instance, if she's waking a lot during the night, she may
>> sleep more during the day to catch up.  If you continue to be concerned,
>> you might think about consulting a pediatric sleep specialist.  A number
>> of hospitals have pediatric sleep clinics.
>>
>> Debbie
>>
>>
>>
>> -----Original Message-----
>> From: Alicia Trust
>> Sent: Tuesday, February 11, 2014 1:13 PM
>> To: Blind Kid Mailing List,(for parents of blind children)
>> Subject: Re: [blindkid] Sleep pattern for blind 5 month old
>>
>> She has clinical bilateral anophthalmia. She has no other medical
>> conditions. We are working with our county's early intervention program
>> and
>> the Maryland School for the Blind. I also contacted MSB and they
>> suggested
>> giving her more stimulation during the day but not too much, obviously.
>> She
>> will eat and play and 'talk" when she is awake.
>> On Feb 11, 2014 3:37 PM, "Marianne Denning" <marianne at denningweb.com>
>> wrote:
>>
>>> Many blind children develop at a slower rate than their sighted peers.
>>>  Does she interact with people and toys when she is awake?  What is
>>> the cause of her blindness?  Are you involved with any agencies for
>>> the blind that offer support for the family?
>>>
>>> On 2/11/14, Alicia Trust <aliciatrust08 at gmail.com> wrote:
>>> > All,
>>> >
>>> > We have a blind baby girl who is 5 months old now. I hate to seem like
>>> I'm
>>> > complaining, but she seems to be sleeping a lot. We don't want to be
>>> > missing signs of a problem. How much really is too much? I don't
>>> > remember
>>> > our sighted daughter (now 4 years old) sleeping so much.
>>> >
>>> > Thanks,
>>> > Alicia and Matt
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>>>
>>>
>>> --
>>> Marianne Denning, TVI, MA
>>> Teacher of students who are blind or visually impaired
>>> (513) 607-6053
>>>
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-- 
Marianne Denning, TVI, MA
Teacher of students who are blind or visually impaired
(513) 607-6053