[blindkid] blindkid Digest, Vol 123, Issue 9

Lynda Zwinger lyndaz918 at gmail.com
Sun Jul 13 01:54:35 UTC 2014


From your subject line, I infer you are receiving the list messages in digest form. 

If you switch to individual messages, you should be able to respond to individual messages. 

I think as to the serious issues, Holly Miller's response leaves nothing to be added. 

Warmly,
Lynda

Lynda Zwinger


> On Jul 12, 2014, at 4:01 PM, Lalena Fayre via blindkid <blindkid at nfbnet.org> wrote:
> 
> First I have to admit, I'm struggling with how to reply to individual
> messages that posted on this list. So any tips on how to do that is great!
> 
> At first I was going to let most of the well-intended messages slide by. I
> didn't want to explain in detail why many of the suggestions and thoughts
> are just wrong. Worse some of the responses were just so inaccurate about
> how the national organization responds. But with Barbara's response in
> particular (and many of you who sent me private messages) I just have to
> respond more.
> 
> So my son has no visual acuity. He is totally blind. He was adopted at the
> age of 5. At that time he had a development level of a 3-6 month old
> children. We knew of his blindness and due to my ex being blind, our
> experience in NFB, my ex working at CCB, attending multiple conventions,
> etc, I had few fears of his blindness and didn't have the misconception
> that blindness would hold him back in any way.
> 
> I agree that for some families it is very possible for a school district to
> discriminate against blind children and even more so against multiple
> handicap children who are also blind. This hasn't been the case with my
> son. He is in a Braille enriched environment. I wouldn't allow him to be
> otherwise.  I wanted my son to "play" with the Perkins brailler. I wanted
> him to use the old Library of Congress tape recorders. I wanted him to have
> a cane. So I am not going to jump on the NFB bandwagon that of course the
> educational system is against blind children and keeping them illiterate.
> And honestly that has nothing at all to do with my original post.
> 
> My post is about the programs of the NOPBC and the NFB. My post is about
> the shadow the MAJORITY of multiple handicap blind children are kept in by
> the very advocacy group that should be shining a light on them. As multiple
> people have stated, the MAJORITY of blind children now have multiple
> handicaps yet as I said the majority of programs, conference seminars,
> conference child care, etc. is geared toward fully functioning blind
> children. I'm not saying that there is no benefit to the general seminars.
> But I can't tell you how frustrating it is to sit in a seminar about your
> child going to college, or increasing age appropriate independent travel,
> etc.. I might as well sit there and cry feeling as if no one understands
> what it's like to have an 11 year old who is developmentally 3. Where are
> seminars on long-term care for your child? Finding places where your
> heavily disabled child can have independence? Things along those lines.
> 
> And I hear the response - the NOPBC is a volunteer group, start your own
> group, start your own activities, etc. But talk about victim blaming. I
> throw my hands up in exasperation because how in the world can I find time
> to do that when I need to provide 24-hour care for my child? How can I
> start another branch of NOPBC when I'm dealing with life as a parent to a
> 11 year old who is developmentally 3?
> 
> I love my son and I advocate for my son like no one's business. I have
> barked up many trees and been the squeakiest wheel possible, and it's
> worked. There are strides that have been made but the social isolation is
> what kills me the most. It is that need to belong and feel as if I have
> people in my corner who understand what it's like on a daily basis.
> 
> I don't want the stares or the "tsk tsk" response when I ask for 1:1
> assistance for my son to participate in activities to the best of his
> ability. I don't want someone to tell me that I should have my son in a
> quiet corner when he needs it but basically be ignored the rest of the
> time. I don't want the stares when I go to a NFB or NOPBC convention. I
> don't want my son to be looked down upon because he isn't a fully
> independent blind child. I don't want to hear the gasps when I ask if he
> can have 1:1 supervision and hand-over-hand assistance. I don't want to be
> lectured as if it's my attitude or lack of Foundation philosophy that is
> the problem. I don't want to be treated as if I'm just another "sighty"
> parent who doesn't understand blindness and thinks that blind people should
> be coddled.
> 
> All of these things are wrong. Totally wrong. But based upon past
> experience and reading the organization's materials, the problem isn't that
> there is a blind spot (forgive the pun) in the organization, it's that
> there is a problem with me.
> 
> I feel empowered that I'm not alone. That I'm not the only parent of a
> multi-disable blind child who has felt this scorn. And I don't think the
> solution is to just leave and make your own organization, I think the
> solution is for the national office to focus on issues of multiple
> disabilities and blindness.
> 
> I'm sure I've angered some of you. Seemed like a ranting lunatic but well,
> I'm human and I hope that my rant might just dislodge this notion that I'm
> not educated on philosophy, unaware that this is a volunteer organization,
> or haven't read enough books yet.
> 
> Peace and love.
> 
> 
>> On Thu, Jul 10, 2014 at 5:00 AM, <blindkid-request at nfbnet.org> wrote:
>> 
>> Send blindkid mailing list submissions to
>>        blindkid at nfbnet.org
>> 
>> To subscribe or unsubscribe via the World Wide Web, visit
>>        http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>>        blindkid-request at nfbnet.org
>> 
>> You can reach the person managing the list at
>>        blindkid-owner at nfbnet.org
>> 
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of blindkid digest..."
>> 
>> 
>> Today's Topics:
>> 
>>   1. Re: More than just blindness (Bernadette Jacobs)
>>   2. Re: More than just blindness (Barbara Hammel)
>>   3. Re: More than just blindness (Penny Duffy)
>>   4. Re: More than just blindness (Robert Jaquiss)
>>   5. Re: More than just blindness (Bernadette Jacobs)
>>   6. Re: More than just blindness (Barbara HAMMEL)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Wed, 09 Jul 2014 09:46:04 -0400
>> From: Bernadette Jacobs <bernienfb75 at gmail.com>
>> To: Ashley Bramlett <bookwormahb at earthlink.net>, "Blind Kid Mailing
>>        List,   \(for parents of blind children\)" <blindkid at nfbnet.org>
>> Subject: Re: [blindkid] More than just blindness
>> Message-ID: <53BD479C.4080904 at gmail.com>
>> Content-Type: text/plain; charset=ISO-8859-1; format=flowed
>> 
>> Dear Blind Parent!!!
>> 
>> I have no idea who you are.  But if only you knew how I feel your
>> pain!!!  I feel your pain to the very depth of my very soul!!! Can't
>> very well keep myself a secret though.  Everyone here who knows me is
>> going to know who's the culprit for these words here, so I might just as
>> well let it all out now!!
>> 
>> My husband and I, too, have a blind, autistic, non-verbal son with
>> multiple delays whom we adopted from China.  We also have an
>> eleven-year-old daughter who was adopted from Thailand.  Seeing this
>> post, I simply can't hold back any longer. The world waits in line for
>> whenever it's their turn to take our daughter for an an afternoon, day,
>> weekend, week, or whatever.  Yet, when we bring both our children
>> somewhere, she's welcome with open arms.  As for our son, nobody ever
>> breathes a word.  But, the implication speaks louder than words ever
>> will.  I can pick out the people, in fact. "Too bad we can't find some
>> place for the family dog..."  Believe me, Darling.  Nobody knows your
>> pain better than my husband and I. It's never what they say, because
>> they try as hard as they might to be discrete.  Believe me!!  It's what
>> they don't say Darling!! Hurts your heart.  Huh???  I don't wish this
>> hurt on my worst enemy Darling!!  Believe me, I don't!!  Between a group
>> of us, we "thought" we had everything sewed up with a very competent
>> caregiver who, I'm sure, tried to lovingly care for our son and there
>> was an episode which took place at our state convention and when my
>> husband and I both inquired, people in charge, refused to give us any
>> information.  I didn't feel I was out of place trying to find out what
>> happened.  After all, I'm only his mother???  When I inquired the day
>> after state convention was over, there was only a lame effort to sweep
>> it under the rug with a "TEXT."  This upset me even worse.  From that
>> moment on, I spent the rest of the day writing a letter which I have in
>> the bowels of my computer which I never yet sent out.  Yes, it's a
>> resignation letter from our state NOPC board.  I never sent it out yet.
>> But, might as well now.
>> 
>> I have another very, very good friend who keeps telling me she'll never
>> come to any activities because she's so afraid of the very same things
>> we've encountered here.  She keeps telling me, "I just don't know how
>> you do it...  I couldn't bear that hurt in my heart for my son.  I
>> couldn't stand my heart being crushed like that.  How do you do it???"
>> Truth is, Darling, there some days I truly do feel absolutely crushed.
>> Yes, my only cleansing is to cry.  Believe me!!  Because if anyone wants
>> to participate and  be in the middle of activity it's him.  If only you
>> could see him jump up and down with that huge round grin across that
>> little round face and hear that infectious belly-laugh!!  Squealing,
>> laughing, jumping up and down?  The whole scenario is absolutely
>> infectiously unforgetable!! What a perfect picture!!  Guess ya have to
>> be there to get it.  But believe me.  It's there.  We have one friend
>> who sat next to him, the last morning of our state convention and he
>> spent almost the entire time kissing her hands because he knows how much
>> she just loves him.  And he loves her that much and more.  It was
>> absolutely priceless.
>> 
>> Whoever you are, you're most welcome to write me "offlist" and we can
>> engage in further dialog.  It just warms my heart to know that my
>> husband and I are not alone.  If only you knew!!
>> 
>> Bernie
>>> On 7/7/2014 2:07 AM, Ashley Bramlett via blindkid wrote:
>>> Lalena,
>>> I've been lurking a little while and will intro myself soon after most
>>> of the list get back from convention.
>>> I'm actually the child; grown now and career exploring, and my parents
>>> are sighted.
>>> 
>>> 
>>> I agree with you. There are not enough resources for addressing the
>>> needs of multiple disabled kids and yes the NFB focusses on bright
>>> normal developing kids. But many blind kids have multiple disabilities.
>>> 
>>> You raise some concerns which I'm sure others deal with. So your kid
>>> is completely blind? like no vision even of close up objects?
>>> How far delayed is he? how old? Where do you live? is bay area ca?
>>> 
>>> What are the issues with braille reading? Perhaps with more info
>>> someone may be able to help.
>>> 
>>> I've seen those communication devices with pictures. Will he ever
>>> speak with intervention, or is this permanent?
>>> Does your TVI not have ideas? I mean, surely she or he has encountered
>>> nonverbal blind kids before.
>>> Maybe he can hold up objects to communicate to start with. For
>>> instance, toy food can mean hungry and a common bathroom object like a
>>> towel can mean needs to go to the bathroom.
>>> 
>>> I'll also write off list with some more thoughts.
>>> 
>>> Ashley
>>> -----Original Message----- From: Lalena Fayre via blindkid
>>> Sent: Monday, June 30, 2014 10:19 AM
>>> To: blindkid at nfbnet.org
>>> Subject: [blindkid] More than just blindness
>>> 
>>> As I read through my latest issue of Future Reflections, I was struck
>>> with
>>> a further sense of isolation. The same holds true when I read this
>>> listserv
>>> and review the agenda of the upcoming national conference.
>>> 
>>> My son is totally blind with multiple other disabilities - nonverbal and
>>> global developmental delays that impact every area. I'm fortunate to
>>> have a
>>> good foundation and understanding of blindness education. But when you
>>> add
>>> the other issues to the blindness, one is struck with how much blindness
>>> complicates things. For example, typical adaptive communication
>>> devices are
>>> vision based. Another, pre-Braille work is important but after 3 years of
>>> it and no significant progress made, you are forced to deal with
>>> functional
>>> skill development which the therapist don't know how to do with a blind
>>> child, let allow a blind cognitively delayed child.
>>> 
>>> I turn to the NFB for support and resources, yet publications are full of
>>> typically developed children who happen to be blind. I call my local
>>> organizations here in the bay area (which I know are inline with NFB
>>> philosophy) looking for social opportunities for my son, but he can't
>>> participate because of his developmental delays.
>>> 
>>> At the end of the day I'm left wondering......am I the only parent of a
>>> child with multiple disabilities, developmental delays, AND blindness?
>>> Are
>>> the majority of blind child typically developed? And where do I turn
>>> for a
>>> network of parents who may understand?
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bookwormahb%40earthlink.net
>>> 
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Wed, 9 Jul 2014 09:01:48 -0500
>> From: "Barbara Hammel" <poetlori8 at msn.com>
>> To: "Bernadette Jacobs" <bernienfb75 at gmail.com>, "Blind Kid Mailing
>>        List,   \(for parents of blind children\)" <blindkid at nfbnet.org>
>> Subject: Re: [blindkid] More than just blindness
>> Message-ID: <SNT148-DS7B33297FE31F99A4FF55BEB0F0 at phx.gbl>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>>        reply-type=response
>> 
>> Bernie, you make me want to cry.  You have aptly worded the same feelings I
>> have.  Imagine the only time you feel like a "normal" parent is when your
>> kids are the only ones in the hotel pool and you and your husband are in
>> the
>> hot tub watching them jump around and spin around and laugh with no one
>> there to ignore them or goo on the sympathy.  Everyone is afraid of your
>> child(ren) like they are monsters or something.
>> Barbara
>> 
>> 
>> 
>> 
>> Writing free verse is like playing tennis with the net down.--Robert Frost
>> -----Original Message-----
>> From: Bernadette Jacobs via blindkid
>> Sent: Wednesday, July 09, 2014 8:46 AM
>> To: Ashley Bramlett ; Blind Kid Mailing List,(for parents of blind
>> children)
>> Subject: Re: [blindkid] More than just blindness
>> 
>> Dear Blind Parent!!!
>> 
>> I have no idea who you are.  But if only you knew how I feel your
>> pain!!!  I feel your pain to the very depth of my very soul!!! Can't
>> very well keep myself a secret though.  Everyone here who knows me is
>> going to know who's the culprit for these words here, so I might just as
>> well let it all out now!!
>> 
>> My husband and I, too, have a blind, autistic, non-verbal son with
>> multiple delays whom we adopted from China.  We also have an
>> eleven-year-old daughter who was adopted from Thailand.  Seeing this
>> post, I simply can't hold back any longer. The world waits in line for
>> whenever it's their turn to take our daughter for an an afternoon, day,
>> weekend, week, or whatever.  Yet, when we bring both our children
>> somewhere, she's welcome with open arms.  As for our son, nobody ever
>> breathes a word.  But, the implication speaks louder than words ever
>> will.  I can pick out the people, in fact. "Too bad we can't find some
>> place for the family dog..."  Believe me, Darling.  Nobody knows your
>> pain better than my husband and I. It's never what they say, because
>> they try as hard as they might to be discrete.  Believe me!!  It's what
>> they don't say Darling!! Hurts your heart.  Huh???  I don't wish this
>> hurt on my worst enemy Darling!!  Believe me, I don't!!  Between a group
>> of us, we "thought" we had everything sewed up with a very competent
>> caregiver who, I'm sure, tried to lovingly care for our son and there
>> was an episode which took place at our state convention and when my
>> husband and I both inquired, people in charge, refused to give us any
>> information.  I didn't feel I was out of place trying to find out what
>> happened.  After all, I'm only his mother???  When I inquired the day
>> after state convention was over, there was only a lame effort to sweep
>> it under the rug with a "TEXT."  This upset me even worse.  From that
>> moment on, I spent the rest of the day writing a letter which I have in
>> the bowels of my computer which I never yet sent out.  Yes, it's a
>> resignation letter from our state NOPC board.  I never sent it out yet.
>> But, might as well now.
>> 
>> I have another very, very good friend who keeps telling me she'll never
>> come to any activities because she's so afraid of the very same things
>> we've encountered here.  She keeps telling me, "I just don't know how
>> you do it...  I couldn't bear that hurt in my heart for my son.  I
>> couldn't stand my heart being crushed like that.  How do you do it???"
>> Truth is, Darling, there some days I truly do feel absolutely crushed.
>> Yes, my only cleansing is to cry.  Believe me!!  Because if anyone wants
>> to participate and  be in the middle of activity it's him.  If only you
>> could see him jump up and down with that huge round grin across that
>> little round face and hear that infectious belly-laugh!!  Squealing,
>> laughing, jumping up and down?  The whole scenario is absolutely
>> infectiously unforgetable!! What a perfect picture!!  Guess ya have to
>> be there to get it.  But believe me.  It's there.  We have one friend
>> who sat next to him, the last morning of our state convention and he
>> spent almost the entire time kissing her hands because he knows how much
>> she just loves him.  And he loves her that much and more.  It was
>> absolutely priceless.
>> 
>> Whoever you are, you're most welcome to write me "offlist" and we can
>> engage in further dialog.  It just warms my heart to know that my
>> husband and I are not alone.  If only you knew!!
>> 
>> Bernie
>>> On 7/7/2014 2:07 AM, Ashley Bramlett via blindkid wrote:
>>> Lalena,
>>> I've been lurking a little while and will intro myself soon after most of
>>> the list get back from convention.
>>> I'm actually the child; grown now and career exploring, and my parents
>> are
>>> sighted.
>>> 
>>> 
>>> I agree with you. There are not enough resources for addressing the needs
>>> of multiple disabled kids and yes the NFB focusses on bright normal
>>> developing kids. But many blind kids have multiple disabilities.
>>> 
>>> You raise some concerns which I'm sure others deal with. So your kid is
>>> completely blind? like no vision even of close up objects?
>>> How far delayed is he? how old? Where do you live? is bay area ca?
>>> 
>>> What are the issues with braille reading? Perhaps with more info someone
>>> may be able to help.
>>> 
>>> I've seen those communication devices with pictures. Will he ever speak
>>> with intervention, or is this permanent?
>>> Does your TVI not have ideas? I mean, surely she or he has encountered
>>> nonverbal blind kids before.
>>> Maybe he can hold up objects to communicate to start with. For instance,
>>> toy food can mean hungry and a common bathroom object like a towel can
>>> mean needs to go to the bathroom.
>>> 
>>> I'll also write off list with some more thoughts.
>>> 
>>> Ashley
>>> -----Original Message----- From: Lalena Fayre via blindkid
>>> Sent: Monday, June 30, 2014 10:19 AM
>>> To: blindkid at nfbnet.org
>>> Subject: [blindkid] More than just blindness
>>> 
>>> As I read through my latest issue of Future Reflections, I was struck
>> with
>>> a further sense of isolation. The same holds true when I read this
>>> listserv
>>> and review the agenda of the upcoming national conference.
>>> 
>>> My son is totally blind with multiple other disabilities - nonverbal and
>>> global developmental delays that impact every area. I'm fortunate to have
>>> a
>>> good foundation and understanding of blindness education. But when you
>> add
>>> the other issues to the blindness, one is struck with how much blindness
>>> complicates things. For example, typical adaptive communication devices
>>> are
>>> vision based. Another, pre-Braille work is important but after 3 years of
>>> it and no significant progress made, you are forced to deal with
>>> functional
>>> skill development which the therapist don't know how to do with a blind
>>> child, let allow a blind cognitively delayed child.
>>> 
>>> I turn to the NFB for support and resources, yet publications are full of
>>> typically developed children who happen to be blind. I call my local
>>> organizations here in the bay area (which I know are inline with NFB
>>> philosophy) looking for social opportunities for my son, but he can't
>>> participate because of his developmental delays.
>>> 
>>> At the end of the day I'm left wondering......am I the only parent of a
>>> child with multiple disabilities, developmental delays, AND blindness?
>> Are
>>> the majority of blind child typically developed? And where do I turn for
>> a
>>> network of parents who may understand?
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bookwormahb%40earthlink.net
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
>> 
>> 
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/poetlori8%40msn.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Wed, 9 Jul 2014 14:48:50 -0400
>> From: Penny Duffy <pennyduffy at gmail.com>
>> To: Lalena Fayre <lalenas at gmail.com>, "Blind Kid Mailing List,  (for
>>        parents of blind children)" <blindkid at nfbnet.org>
>> Subject: Re: [blindkid] More than just blindness
>> Message-ID:
>>        <CABb_=
>> QeBK9g5cfasfgb7T5p62p06heqcM5SmnrrJ8+fxgZkBbQ at mail.gmail.com>
>> Content-Type: text/plain; charset=UTF-8
>> 
>> Lelena,
>> 
>> I read through what you said. If i missed anything please let me know.
>> Many of the parents i assist in my state experiance more than one
>> disability not just blindness.  I believe strongly that these children
>> heavily discriminated against in educational settings.  Very few educators
>> feel a child with more than one disability including blindness should be
>> taught braille at all which is extremely wrong considering they would never
>> say the same thing about  a child with non blindness related disabilities.
>> Its an understanding that literacy is important to all.
>> 
>> The NOPBC always works hard at trying to build program that will benefit
>> all kinds of different kids and different learners. I hope you never feel
>> we are are not trying to serve your needs.
>> 
>> Below is the NOPBC works shops from this years conference.  there was two
>> workshops which were geared directly for parents of children with multiple
>> disabilities.   I would challenge that ALL the rest of the workshops would
>> benefit parents with children with multiple disabilities. also. including
>> the college one.  The NOPBC programming is primarily our parent conference
>> and we sponsor Future Reflections which regularly  feature stores about all
>> kids of different kids.
>> 
>> Also if you are talking about NFB direct programming like the great STEM
>> programs I am sure Natalie Shaheen, Director of Education at the NFB
>> Jernigan Institute would love to hear some ideas.  I happen to know this
>> area is VERY important to her.
>> Let me know if I can be have anymore help.  I am very passionate in this
>> area.
>> -Penny Duffy
>> 
>> --
>> 
>> Independence in the Classroom
>> Tools, tips, and techniques for setting up the classroom and training the
>> student for independent functioning. Instructor: Jackie Anderson, Teacher
>> of Blind Students
>> 
>> Independent Movement & Travel for Children with Additional Disabilities
>> Working toward maximum independence and self-determination for the child
>> with additional disabilities. Instructor: Denise Mackenstadt, NOMC
>> 
>> Low Vision Toolbox
>> Useful items for low vision students and how to determine the most
>> efficient method for the task. Instructor: TBA
>> 
>> First Steps
>> Exploration and independent movement and travel in early childhood.
>> Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
>> 
>> Accessible Technology
>> Using accessible technology for meaningful participation in school, at
>> home, and in the community. Instructor: Eric Guillory, Director, Youth
>> Services, LA Center for the Blind
>> 
>> Independence Skills at Home & in the Community
>> Teaching and supporting the development of independence skills for full
>> participation in home and community life. Instructor: Mary Jo Hartle, NOMC,
>> TBS
>> 
>> Hands Off!
>> Honoring the child's right to personal space and control over his/her body.
>> Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
>> 
>> Independent Movement & Travel for the School-Age Student
>> High expectations, real-life goals, and how to achieve them in the area of
>> independent movement and travel. Instructor: TBA
>> 
>> Tactile Graphics?The Good, the Bad, & the Ugly
>> The basics of creating a good tactile graphic that will really work for the
>> blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
>> 
>> I Get Around
>> Getting around independently when you do not drive. Instructors: Pam Allen,
>> Director, LA Center for the Blind; Roland Allen, NOMC
>> 
>> Low Vision Technology
>>> From low tech to high tech, learn about the many options for the low
>> vision
>> student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
>> 
>> Saying It My Way
>> Encouraging communication, learning, and play in children with
>> communication needs. Instructor: Natalie Shaheen, Director of Education,
>> NFB Jernigan Institute
>> 
>> Social Skills for the School-Age Child
>> Encouraging appropriate social interaction and play. Instructor: Sheena
>> Manuel, Outreach Specialist, Professional Development and Research
>> Institute on Blindness
>> 
>> How to Set Up a Saturday School
>> Empowering families to learn and teach the skills of independence.
>> Instructor: Jackie Anderson, Teacher of Blind Students
>> 
>> College Checklist: Is Your Blind Child Ready? Are YOU Ready?
>> Preparing for heading off to college?what parents and students need to
>> know, with a special visit from one of "the roommates from hell."
>> Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh Joiner,
>> Student; Arielle Silverman, Fellow, University of WA; Debbie Kent Stein,
>> Editor, Future Reflections
>> 
>> Unified English Braille (UEB)
>> It's new. It's coming. What is it, how will the transition be made, and
>> what will it mean to your child? Instructor: Casey Robertson, Teacher of
>> Blind Students
>> 
>> IEP Basics for Parents of Blind/VI Students
>> The sections of the IEP, essential assessments, how assessment information
>> is used, how to be an active and effective participant. Instructor: Carlton
>> Walker, Attorney, Teacher of Blind Students
>> 
>> IEP Development and Legal Process Overview
>> Do's & Don'ts for the IEP meeting; preparing for possible mediation, due
>> process, appeal, etc; overview of the legal process; how to prepare for a
>> due process hearing so you don't have to have one! Instructor: Carlton
>> Walker, Attorney, Teacher of Blind Students
>> 
>> 
>> Spanish Language Session
>> This session will cover a range of subjects of interest to parents of blind
>> children. Instructor: Conchita Hernandez, Special Educator
>> 
>> 
>> On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
>> blindkid at nfbnet.org> wrote:
>> 
>>> As I read through my latest issue of Future Reflections, I was struck
>> with
>>> a further sense of isolation. The same holds true when I read this
>> listserv
>>> and review the agenda of the upcoming national conference.
>>> 
>>> My son is totally blind with multiple other disabilities - nonverbal and
>>> global developmental delays that impact every area. I'm fortunate to
>> have a
>>> good foundation and understanding of blindness education. But when you
>> add
>>> the other issues to the blindness, one is struck with how much blindness
>>> complicates things. For example, typical adaptive communication devices
>> are
>>> vision based. Another, pre-Braille work is important but after 3 years of
>>> it and no significant progress made, you are forced to deal with
>> functional
>>> skill development which the therapist don't know how to do with a blind
>>> child, let allow a blind cognitively delayed child.
>>> 
>>> I turn to the NFB for support and resources, yet publications are full of
>>> typically developed children who happen to be blind. I call my local
>>> organizations here in the bay area (which I know are inline with NFB
>>> philosophy) looking for social opportunities for my son, but he can't
>>> participate because of his developmental delays.
>>> 
>>> At the end of the day I'm left wondering......am I the only parent of a
>>> child with multiple disabilities, developmental delays, AND blindness?
>> Are
>>> the majority of blind child typically developed? And where do I turn for
>> a
>>> network of parents who may understand?
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Wed, 9 Jul 2014 16:26:43 -0700
>> From: "Robert Jaquiss" <rjaquiss at earthlink.net>
>> To: "'Penny Duffy'" <pennyduffy at gmail.com>, "'Blind Kid Mailing List,
>>        \(for parents of blind children\)'" <blindkid at nfbnet.org>,
>> "'Lalena
>>        Fayre'" <lalenas at gmail.com>
>> Subject: Re: [blindkid] More than just blindness
>> Message-ID: <000201cf9bcd$3f19cc50$bd4d64f0$@earthlink.net>
>> Content-Type: text/plain;       charset="UTF-8"
>> 
>> Hello:
>> 
>>     I thought I would pass on this link for the Active Learning
>> Foundation in case it is useful:
>> http://www.lilliworks.org/
>> The Active Learning Foundation (ALF) promotes the work of Dr. Lilli
>> Nielsen. Four of her books are available from BookShare. The materials
>> developed by Dr. Nielsen are specifically intended for use with
>> multihandicapped blind children.
>> 
>>     Some years ago, I knew a lady who made tactile versions of Bliss
>> Symbolics. The system allows a person to communicate their wants or needs
>> by selecting a "symbol" from a board. The symbols consist of ovals,
>> circles, squares, hearts etc. Each of the shapes is movified by gluing
>> something to the surface. There are for instance shapes for requesting
>> people. Each shape has something on it to indicate the particular person of
>> interest.
>> 
>>     There is also intelitools which can be produced using tactile
>> overlays. Hope this is useful.
>> 
>> Regards,
>> 
>> Robert
>> 
>> Robert Jaquiss
>> Tactile Graphics Solutions LLC.
>> Email: rjaquiss at earthlink.net
>> *** Specializing in computerized production of tactile graphics, ALT
>> development, technology assessments, product evaluations and web site
>> certification. ***
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 5
>> Date: Wed, 09 Jul 2014 19:39:40 -0400
>> From: Bernadette Jacobs <bernienfb75 at gmail.com>
>> To: Penny Duffy <pennyduffy at gmail.com>, "Blind Kid Mailing List,
>> \(for
>>        parents of blind children\)" <blindkid at nfbnet.org>
>> Subject: Re: [blindkid] More than just blindness
>> Message-ID: <53BDD2BC.9080502 at gmail.com>
>> Content-Type: text/plain; charset=UTF-8; format=flowed
>> 
>> God Bless you Penny.  Ya just don't get it do ya Darling?  All the books
>> in the world and all the human instruction can be a wonderful thing?
>> But Honey, I ask you.  What about these kids who actually exist?  When
>> we bring our children with these multiple handicaps/issues along with us
>> because they're actually part of our families, The activities and
>> childcare that are provided for the families is Okay for the typical
>> children.  But what about these children with other issues are left to
>> fall through the cracks? But, that's Okay?  Hmmm.
>> 
>> As for Natalie, I can't think of a dearer lady.  I have the utmost
>> respect for her experteese and advice.  I feel it such an honor and
>> privilege to know her and call her a very dear friend to me and my
>> husband.  She's spent time with David and has struck up a nice little
>> friendship with David.  She is one very caring lady and she's one of the
>> hardest, profficient people I know.  As for Carlton Walker, she's
>> another very bright, dear lady.  Her daughter and our daughter have also
>> struck up a good friendship.  But, as Barbara has said, where David is
>> concerned, David appears to scare the tar out of the rest of the world.
>> That's putting it nicely.  But this, does at times, forces me to
>> consider when and where we go as a family and sometimes, I do stay back
>> and let Bill take Virginia.  For, sometimes, I just don't think my heart
>> can stand anymore hurt.  Some days I can let it roll off.  But there are
>> others, I simply can't. After all, I might actually be human and have
>> feelings too?  And they're not in a book or in some training???
>> 
>> Bernie
>>> On 7/9/2014 2:48 PM, Penny Duffy via blindkid wrote:
>>> Lelena,
>>> 
>>> I read through what you said. If i missed anything please let me know.
>>>  Many of the parents i assist in my state experiance more than one
>>> disability not just blindness.  I believe strongly that these children
>>> heavily discriminated against in educational settings.  Very few
>> educators
>>> feel a child with more than one disability including blindness should be
>>> taught braille at all which is extremely wrong considering they would
>> never
>>> say the same thing about  a child with non blindness related
>> disabilities.
>>>  Its an understanding that literacy is important to all.
>>> 
>>> The NOPBC always works hard at trying to build program that will benefit
>>> all kinds of different kids and different learners. I hope you never feel
>>> we are are not trying to serve your needs.
>>> 
>>> Below is the NOPBC works shops from this years conference.  there was two
>>> workshops which were geared directly for parents of children with
>> multiple
>>> disabilities.   I would challenge that ALL the rest of the workshops
>> would
>>> benefit parents with children with multiple disabilities. also. including
>>> the college one.  The NOPBC programming is primarily our parent
>> conference
>>> and we sponsor Future Reflections which regularly  feature stores about
>> all
>>> kids of different kids.
>>> 
>>>  Also if you are talking about NFB direct programming like the great
>> STEM
>>> programs I am sure Natalie Shaheen, Director of Education at the NFB
>>> Jernigan Institute would love to hear some ideas.  I happen to know this
>>> area is VERY important to her.
>>> Let me know if I can be have anymore help.  I am very passionate in this
>>> area.
>>> -Penny Duffy
>>> 
>>> --
>>> 
>>> Independence in the Classroom
>>> Tools, tips, and techniques for setting up the classroom and training the
>>> student for independent functioning. Instructor: Jackie Anderson, Teacher
>>> of Blind Students
>>> 
>>> Independent Movement & Travel for Children with Additional Disabilities
>>> Working toward maximum independence and self-determination for the child
>>> with additional disabilities. Instructor: Denise Mackenstadt, NOMC
>>> 
>>> Low Vision Toolbox
>>> Useful items for low vision students and how to determine the most
>>> efficient method for the task. Instructor: TBA
>>> 
>>> First Steps
>>> Exploration and independent movement and travel in early childhood.
>>> Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
>>> 
>>> Accessible Technology
>>> Using accessible technology for meaningful participation in school, at
>>> home, and in the community. Instructor: Eric Guillory, Director, Youth
>>> Services, LA Center for the Blind
>>> 
>>> Independence Skills at Home & in the Community
>>> Teaching and supporting the development of independence skills for full
>>> participation in home and community life. Instructor: Mary Jo Hartle,
>> NOMC,
>>> TBS
>>> 
>>> Hands Off!
>>> Honoring the child's right to personal space and control over his/her
>> body.
>>> Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
>>> 
>>> Independent Movement & Travel for the School-Age Student
>>> High expectations, real-life goals, and how to achieve them in the area
>> of
>>> independent movement and travel. Instructor: TBA
>>> 
>>> Tactile Graphics?The Good, the Bad, & the Ugly
>>> The basics of creating a good tactile graphic that will really work for
>> the
>>> blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
>>> 
>>> I Get Around
>>> Getting around independently when you do not drive. Instructors: Pam
>> Allen,
>>> Director, LA Center for the Blind; Roland Allen, NOMC
>>> 
>>> Low Vision Technology
>>> From low tech to high tech, learn about the many options for the low
>> vision
>>> student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
>>> 
>>> Saying It My Way
>>> Encouraging communication, learning, and play in children with
>>> communication needs. Instructor: Natalie Shaheen, Director of Education,
>>> NFB Jernigan Institute
>>> 
>>> Social Skills for the School-Age Child
>>> Encouraging appropriate social interaction and play. Instructor: Sheena
>>> Manuel, Outreach Specialist, Professional Development and Research
>>> Institute on Blindness
>>> 
>>> How to Set Up a Saturday School
>>> Empowering families to learn and teach the skills of independence.
>>> Instructor: Jackie Anderson, Teacher of Blind Students
>>> 
>>> College Checklist: Is Your Blind Child Ready? Are YOU Ready?
>>> Preparing for heading off to college?what parents and students need to
>>> know, with a special visit from one of "the roommates from hell."
>>> Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
>> Joiner,
>>> Student; Arielle Silverman, Fellow, University of WA; Debbie Kent Stein,
>>> Editor, Future Reflections
>>> 
>>> Unified English Braille (UEB)
>>> It's new. It's coming. What is it, how will the transition be made, and
>>> what will it mean to your child? Instructor: Casey Robertson, Teacher of
>>> Blind Students
>>> 
>>> IEP Basics for Parents of Blind/VI Students
>>> The sections of the IEP, essential assessments, how assessment
>> information
>>> is used, how to be an active and effective participant. Instructor:
>> Carlton
>>> Walker, Attorney, Teacher of Blind Students
>>> 
>>> IEP Development and Legal Process Overview
>>> Do's & Don'ts for the IEP meeting; preparing for possible mediation, due
>>> process, appeal, etc; overview of the legal process; how to prepare for a
>>> due process hearing so you don't have to have one! Instructor: Carlton
>>> Walker, Attorney, Teacher of Blind Students
>>> 
>>> 
>>> Spanish Language Session
>>> This session will cover a range of subjects of interest to parents of
>> blind
>>> children. Instructor: Conchita Hernandez, Special Educator
>>> 
>>> 
>>> On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
>>> blindkid at nfbnet.org> wrote:
>>> 
>>>> As I read through my latest issue of Future Reflections, I was struck
>> with
>>>> a further sense of isolation. The same holds true when I read this
>> listserv
>>>> and review the agenda of the upcoming national conference.
>>>> 
>>>> My son is totally blind with multiple other disabilities - nonverbal and
>>>> global developmental delays that impact every area. I'm fortunate to
>> have a
>>>> good foundation and understanding of blindness education. But when you
>> add
>>>> the other issues to the blindness, one is struck with how much blindness
>>>> complicates things. For example, typical adaptive communication devices
>> are
>>>> vision based. Another, pre-Braille work is important but after 3 years
>> of
>>>> it and no significant progress made, you are forced to deal with
>> functional
>>>> skill development which the therapist don't know how to do with a blind
>>>> child, let allow a blind cognitively delayed child.
>>>> 
>>>> I turn to the NFB for support and resources, yet publications are full
>> of
>>>> typically developed children who happen to be blind. I call my local
>>>> organizations here in the bay area (which I know are inline with NFB
>>>> philosophy) looking for social opportunities for my son, but he can't
>>>> participate because of his developmental delays.
>>>> 
>>>> At the end of the day I'm left wondering......am I the only parent of a
>>>> child with multiple disabilities, developmental delays, AND blindness?
>> Are
>>>> the majority of blind child typically developed? And where do I turn
>> for a
>>>> network of parents who may understand?
>>>> _______________________________________________
>>>> blindkid mailing list
>>>> blindkid at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 6
>> Date: Wed, 9 Jul 2014 18:53:55 -0500
>> From: Barbara HAMMEL <poetlori8 at msn.com>
>> To: Bernadette Jacobs <bernienfb75 at gmail.com>, "Blind Kid Mailing
>>        List, (for      parents of blind children)" <blindkid at nfbnet.org>
>> Subject: Re: [blindkid] More than just blindness
>> Message-ID: <SNT407-EAS162535AB58E67A24690ABECEB0F0 at phx.gbl>
>> Content-Type: text/plain; charset="utf-8"
>> 
>> I have a thought and wonder who to present it to. I'd even be willing to
>> be a worker full-time. My thought is, could we have a room in child-care
>> just for the Pauls, Jesses and Davids of the world? A room where the
>> parents don't have to worry about how many toys will be eaten or chairs
>> tipped over. A room where spinning in circles or rocking on your head all
>> day is okay. Aroom where a tantrum isn't going to clear the room and leave
>> the rest of the kids crying. A room where no activities really need to be
>> planned because the kids won't want to do them any way.
>> Barbara
>> 
>> Sent from my iPhone
>> 
>>>> On Jul 9, 2014, at 6:40 PM, "Bernadette Jacobs via blindkid" <
>>> blindkid at nfbnet.org> wrote:
>>> 
>>> God Bless you Penny.  Ya just don't get it do ya Darling?  All the books
>> in the world and all the human instruction can be a wonderful thing?  But
>> Honey, I ask you.  What about these kids who actually exist?  When we bring
>> our children with these multiple handicaps/issues along with us because
>> they're actually part of our families, The activities and childcare that
>> are provided for the families is Okay for the typical children.  But what
>> about these children with other issues are left to fall through the cracks?
>> But, that's Okay?  Hmmm.
>>> 
>>> As for Natalie, I can't think of a dearer lady.  I have the utmost
>> respect for her experteese and advice.  I feel it such an honor and
>> privilege to know her and call her a very dear friend to me and my husband.
>> She's spent time with David and has struck up a nice little friendship
>> with David.  She is one very caring lady and she's one of the hardest,
>> profficient people I know.  As for Carlton Walker, she's another very
>> bright, dear lady.  Her daughter and our daughter have also struck up a
>> good friendship.  But, as Barbara has said, where David is concerned, David
>> appears to scare the tar out of the rest of the world.  That's putting it
>> nicely.  But this, does at times, forces me to consider when and where we
>> go as a family and sometimes, I do stay back and let Bill take Virginia.
>> For, sometimes, I just don't think my heart can stand anymore hurt.  Some
>> days I can let it roll off.  But there are others, I simply can't. After
>> all, I might actually be human and have feelings too?  And they're not in a
>> book or in some training???
>>> 
>>> Bernie
>>>> On 7/9/2014 2:48 PM, Penny Duffy via blindkid wrote:
>>>> Lelena,
>>>> 
>>>> I read through what you said. If i missed anything please let me know.
>>>> Many of the parents i assist in my state experiance more than one
>>>> disability not just blindness.  I believe strongly that these children
>>>> heavily discriminated against in educational settings.  Very few
>> educators
>>>> feel a child with more than one disability including blindness should be
>>>> taught braille at all which is extremely wrong considering they would
>> never
>>>> say the same thing about  a child with non blindness related
>> disabilities.
>>>> Its an understanding that literacy is important to all.
>>>> 
>>>> The NOPBC always works hard at trying to build program that will benefit
>>>> all kinds of different kids and different learners. I hope you never
>> feel
>>>> we are are not trying to serve your needs.
>>>> 
>>>> Below is the NOPBC works shops from this years conference.  there was
>> two
>>>> workshops which were geared directly for parents of children with
>> multiple
>>>> disabilities.   I would challenge that ALL the rest of the workshops
>> would
>>>> benefit parents with children with multiple disabilities. also.
>> including
>>>> the college one.  The NOPBC programming is primarily our parent
>> conference
>>>> and we sponsor Future Reflections which regularly  feature stores about
>> all
>>>> kids of different kids.
>>>> 
>>>> Also if you are talking about NFB direct programming like the great
>> STEM
>>>> programs I am sure Natalie Shaheen, Director of Education at the NFB
>>>> Jernigan Institute would love to hear some ideas.  I happen to know this
>>>> area is VERY important to her.
>>>> Let me know if I can be have anymore help.  I am very passionate in this
>>>> area.
>>>> -Penny Duffy
>>>> 
>>>> --
>>>> 
>>>> Independence in the Classroom
>>>> Tools, tips, and techniques for setting up the classroom and training
>> the
>>>> student for independent functioning. Instructor: Jackie Anderson,
>> Teacher
>>>> of Blind Students
>>>> 
>>>> Independent Movement & Travel for Children with Additional Disabilities
>>>> Working toward maximum independence and self-determination for the child
>>>> with additional disabilities. Instructor: Denise Mackenstadt, NOMC
>>>> 
>>>> Low Vision Toolbox
>>>> Useful items for low vision students and how to determine the most
>>>> efficient method for the task. Instructor: TBA
>>>> 
>>>> First Steps
>>>> Exploration and independent movement and travel in early childhood.
>>>> Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
>>>> 
>>>> Accessible Technology
>>>> Using accessible technology for meaningful participation in school, at
>>>> home, and in the community. Instructor: Eric Guillory, Director, Youth
>>>> Services, LA Center for the Blind
>>>> 
>>>> Independence Skills at Home & in the Community
>>>> Teaching and supporting the development of independence skills for full
>>>> participation in home and community life. Instructor: Mary Jo Hartle,
>> NOMC,
>>>> TBS
>>>> 
>>>> Hands Off!
>>>> Honoring the child's right to personal space and control over his/her
>> body.
>>>> Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
>>>> 
>>>> Independent Movement & Travel for the School-Age Student
>>>> High expectations, real-life goals, and how to achieve them in the area
>> of
>>>> independent movement and travel. Instructor: TBA
>>>> 
>>>> Tactile Graphics?The Good, the Bad, & the Ugly
>>>> The basics of creating a good tactile graphic that will really work for
>> the
>>>> blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
>>>> 
>>>> I Get Around
>>>> Getting around independently when you do not drive. Instructors: Pam
>> Allen,
>>>> Director, LA Center for the Blind; Roland Allen, NOMC
>>>> 
>>>> Low Vision Technology
>>>> From low tech to high tech, learn about the many options for the low
>> vision
>>>> student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
>>>> 
>>>> Saying It My Way
>>>> Encouraging communication, learning, and play in children with
>>>> communication needs. Instructor: Natalie Shaheen, Director of Education,
>>>> NFB Jernigan Institute
>>>> 
>>>> Social Skills for the School-Age Child
>>>> Encouraging appropriate social interaction and play. Instructor: Sheena
>>>> Manuel, Outreach Specialist, Professional Development and Research
>>>> Institute on Blindness
>>>> 
>>>> How to Set Up a Saturday School
>>>> Empowering families to learn and teach the skills of independence.
>>>> Instructor: Jackie Anderson, Teacher of Blind Students
>>>> 
>>>> College Checklist: Is Your Blind Child Ready? Are YOU Ready?
>>>> Preparing for heading off to college?what parents and students need to
>>>> know, with a special visit from one of "the roommates from hell."
>>>> Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
>> Joiner,
>>>> Student; Arielle Silverman, Fellow, University of WA; Debbie Kent Stein,
>>>> Editor, Future Reflections
>>>> 
>>>> Unified English Braille (UEB)
>>>> It's new. It's coming. What is it, how will the transition be made, and
>>>> what will it mean to your child? Instructor: Casey Robertson, Teacher of
>>>> Blind Students
>>>> 
>>>> IEP Basics for Parents of Blind/VI Students
>>>> The sections of the IEP, essential assessments, how assessment
>> information
>>>> is used, how to be an active and effective participant. Instructor:
>> Carlton
>>>> Walker, Attorney, Teacher of Blind Students
>>>> 
>>>> IEP Development and Legal Process Overview
>>>> Do's & Don'ts for the IEP meeting; preparing for possible mediation, due
>>>> process, appeal, etc; overview of the legal process; how to prepare for
>> a
>>>> due process hearing so you don't have to have one! Instructor: Carlton
>>>> Walker, Attorney, Teacher of Blind Students
>>>> 
>>>> 
>>>> Spanish Language Session
>>>> This session will cover a range of subjects of interest to parents of
>> blind
>>>> children. Instructor: Conchita Hernandez, Special Educator
>>>> 
>>>> 
>>>> On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
>>>> blindkid at nfbnet.org> wrote:
>>>> 
>>>>> As I read through my latest issue of Future Reflections, I was struck
>> with
>>>>> a further sense of isolation. The same holds true when I read this
>> listserv
>>>>> and review the agenda of the upcoming national conference.
>>>>> 
>>>>> My son is totally blind with multiple other disabilities - nonverbal
>> and
>>>>> global developmental delays that impact every area. I'm fortunate to
>> have a
>>>>> good foundation and understanding of blindness education. But when you
>> add
>>>>> the other issues to the blindness, one is struck with how much
>> blindness
>>>>> complicates things. For example, typical adaptive communication
>> devices are
>>>>> vision based. Another, pre-Braille work is important but after 3 years
>> of
>>>>> it and no significant progress made, you are forced to deal with
>> functional
>>>>> skill development which the therapist don't know how to do with a blind
>>>>> child, let allow a blind cognitively delayed child.
>>>>> 
>>>>> I turn to the NFB for support and resources, yet publications are full
>> of
>>>>> typically developed children who happen to be blind. I call my local
>>>>> organizations here in the bay area (which I know are inline with NFB
>>>>> philosophy) looking for social opportunities for my son, but he can't
>>>>> participate because of his developmental delays.
>>>>> 
>>>>> At the end of the day I'm left wondering......am I the only parent of a
>>>>> child with multiple disabilities, developmental delays, AND blindness?
>> Are
>>>>> the majority of blind child typically developed? And where do I turn
>> for a
>>>>> network of parents who may understand?
>>>>> _______________________________________________
>>>>> blindkid mailing list
>>>>> blindkid at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
>>>> _______________________________________________
>>>> blindkid mailing list
>>>> blindkid at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
>>> 
>>> 
>>> _______________________________________________
>>> blindkid mailing list
>>> blindkid at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>> blindkid:
>> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/poetlori8%40msn.com
>> 
>> ------------------------------
>> 
>> Subject: Digest Footer
>> 
>> _______________________________________________
>> blindkid mailing list
>> blindkid at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>> 
>> 
>> ------------------------------
>> 
>> End of blindkid Digest, Vol 123, Issue 9
>> ****************************************
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for blindkid:
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/lyndaz918%40gmail.com




More information about the BlindKid mailing list