[blindkid] Hello

Rene Harrell rjharrell at gmail.com
Sat Aug 20 23:44:44 UTC 2016

This is a very rare condition, but I have a friend from church whose
daughter has EB and is well connected. If you want to contact me off list
we can trade contact information. Otherwise, have her contact dEBra, the
parent advocacy group for EB and they will put her in touch with all kinds
of resources

On Saturday, August 20, 2016, Amber Hall via blindkid <blindkid at nfbnet.org>

> I had a parent contact me about finding someone who has dealt with
> epidermolysis bullosa. She just had twins, they are 7 weeks old, and her
> son is blind but also has this condition. I'm trying to connect her with
> someone who has dealt with this. Thanks
> Sent from my iPhone
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