[blindkid] Hello

[Amber Hall]

Thank u very much 
I just sent u am email off list


Sent from my iPhone

> On Aug 20, 2016, at 7:44 PM, Rene Harrell via blindkid <blindkid at nfbnet.org> wrote:
> 
> This is a very rare condition, but I have a friend from church whose
> daughter has EB and is well connected. If you want to contact me off list
> we can trade contact information. Otherwise, have her contact dEBra, the
> parent advocacy group for EB and they will put her in touch with all kinds
> of resources
> 
> On Saturday, August 20, 2016, Amber Hall via blindkid <blindkid at nfbnet.org>
> wrote:
> 
>> I had a parent contact me about finding someone who has dealt with
>> epidermolysis bullosa. She just had twins, they are 7 weeks old, and her
>> son is blind but also has this condition. I'm trying to connect her with
>> someone who has dealt with this. Thanks
>> 
>> Sent from my iPhone
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> 
> 
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