[humanser] marfans in San antonio?

[Quinto Sanchez]

Hello Mary well it's nice to meet another person with VI due to Marfan. It's 
funny I was meaning to send that last e-mail to the marfan list and I guess 
I chose the wrong list but, it's good I did though. Well I've had several 
operations aswell to fix my retinas. The weird thing is that my Retina is 
attached but, I still can't see. I was seeing and then everything began to 
seem as though I was walking in fog and eventually I couldn't see anymore. 
It's been about 10 years now since that happened. You are choosing a good 
field stick with the Social Work because you would be able to do everything 
a counselor does and more. There are far more opportunities with a SW 
degree. Good Luck.
----- Original Message ----- 
From: "Merry Schoch" <merrys at verizon.net>
To: "Human Services Mailing List" <humanser at nfbnet.org>
Sent: Saturday, August 22, 2009 4:23 AM
Subject: Re: [humanser] marfans in San antonio?


> Hi Quinto,
>
> My name is Merry and I, too, have Marfan Syndrome.  Like you, my problems 
> have been with my eyes.  I have had the retina tear and detach 6 times, 3 
> cornea transplants, and other surgeries with the eyes due to complications 
> of Marfan Syndrome.  My daughter and grandchild have both had surgery on 
> their eyes; however, they have had great success.  I attribute this to 
> advances in medicine as well as them both having the surgeries when very 
> young.  My grandchild will have another surgery in the near future and I 
> pray for great success.  I am blessed to say that I have had no ill 
> effects on my heart and do not take beta blockers.
>
> Good luck with your internship.  I am starting the MSW at the University 
> of South Florida (Tampa campus) on Monday.  I am very excited and am 
> looking forward to the challenge.
>
> I receive a newsletter from the National Marfan Foundation, you may find a 
> chapter or listserv from them  Here's their website:
> http://www.marfan.org/marfan/
> Hope it helps,
> Merry Schoch
>
>
> ----- Original Message ----- 
> From: "Quinto Sanchez" <sanchezq at prodigy.net>
> To: "Human Services Mailing List" <humanser at nfbnet.org>
> Sent: Friday, August 21, 2009 11:17 PM
> Subject: [humanser] marfans in San antonio?
>
>
>> Hello everyone this is my first time posting as I am a new member. I 
>> write from San Antonio TX. is anyone from SA? A little about myself: is 
>> that I am 30 yrs. old Aortic root replacement and Aortic  valve inserted; 
>> have lost my vision due to Retinal detachment. I am a Licensed 
>> professional counselor intern. I haven't associated much with the Marfan 
>> community but rather, I tend to have associated more with the blind 
>> community only because blindness has given me more immediate troubles 
>> than what Marfan has. Ofcourse, Marfan is the underlying reason for my 
>> blindness but, thanks to God I have adapted really well to having Marfans 
>> and I have been pretty stable other than the year of 1998. However, I 
>> would like to begin associating more with the Marfan community. I have 
>> learned a lot from reading you alls posts. I learned I have what you all 
>> call "brain fog". A Neurologist named them seizures and put me on 
>> tegretol a Seizure med but, no one ever associated my dream like state 
>> with B
>> Blockers or Marfan.
>>
>> kindly,
>> Quinto
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>
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