[Nfbf-l] latest Caring Bridge entry for Jim Ellsworth

[Sherri]

You are most welcome.
----- Original Message ----- 
From: "Kirk Harmon" <kvharmon54 at gmail.com>
To: "NFB of Florida Internet Mailing List" <nfbf-l at nfbnet.org>
Cc: <nfbf-l at nfbnet.org>
Sent: Tuesday, October 15, 2013 11:35 PM
Subject: Re: [Nfbf-l] latest Caring Bridge entry for Jim Ellsworth


Thank you Sherry for the information!

Sent from my iPhone

On Oct 15, 2013, at 11:30 PM, "Sherri" <flmom2006 at gmail.com> wrote:

> I am passing along this update. If you guys would like to post, please go 
> to
> the mobile site. It's easier. http://m.caringbridge.org/
>
> Here's the update.
>
> a.. Moffitt Update
> Written 4 hours ago
>
> Hi friends and family,
>
> Sorry for the delay in updating. We had labs and a visit with Dr. 
> Sotomayor
> when we received the unsurprising news of admittance last night. We were
> told that we would receive a phone call when our room was ready so we 
> opted
> to go have dinner at Chili's and found dad a new Otterbox case for his
> iPhone at University Mall. We came back to Moffitt since we hadn't heard
> from them and waited around for another good 4 hours before finally
> receiving word that the room is ready. We got up here and settled around
> 930-10pm and were told chemo would begin at midnight. This is our first 
> stay
> at Moffitt so Kim and I decided to stay here until all was underway and we
> could meet his tech and nurse for the evening. Kim and I left around 12:30
> this morning and were back around 11.
>
> Dad had a touch of nausea in which the nurse gave an extra dose of
> medication this morning. His color is a bit rough and his hemoglobin level
> is at 8.7. Usually by this point we are headed to the infusion center for 
> a
> transfusion so it's a bit odd for us to not have heard one was going to
> happen. The nurse last night estimated he would be able to be discharged
> either late Thursday night or Friday depending on what works better for 
> us.
> Dad seems to like the food better than at St. A's and overall is in fairly
> good spirits although very tired. It's so funny the different protocols 
> here
> vs FL Cancer. There are some things they get up in arms about that the 
> team
> in St. Pete doesn't, but I digress.
>
> The chemo is given every 12 hours and on the last day he will be given the
> other two drugs prior to discharge. It's been midnight and noon and we are
> about to go into bag 3 of cyclophosphamide tonight. It does look like we 
> are
> back into having to go to appointments three or so times per week. They 
> very
> heavily monitor blood counts here and we will have to go in twice a week 
> on
> top of the Rituxan regiment and Neulasta injections.
>
> He just finished dinner and Kim and I showered him with Moon Pie's today
> from Cracker Barrel so he was one happy camper. For anyone looking, he is 
> in
> room 418, but he has mentioned that it is hard to text or talk because 
> there
> is always someone coming in to change a bag or take vitals.
>
> Jennifer
> _______________________________________________
> Nfbf-l mailing list
> Nfbf-l at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfbf-l_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Nfbf-l:
> http://nfbnet.org/mailman/options/nfbf-l_nfbnet.org/kvharmon54%40gmail.com

_______________________________________________
Nfbf-l mailing list
Nfbf-l at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfbf-l_nfbnet.org
To unsubscribe, change your list options or get your account info for 
Nfbf-l:
http://nfbnet.org/mailman/options/nfbf-l_nfbnet.org/flmom2006%40gmail.com