[Nfbf-l] latest Caring Bridge entry for Jim Ellsworth

[Kirk Harmon]

Thank you Sherry for the information!

Sent from my iPhone

On Oct 15, 2013, at 11:30 PM, "Sherri" <flmom2006 at gmail.com> wrote:

> I am passing along this update. If you guys would like to post, please go to 
> the mobile site. It's easier. http://m.caringbridge.org/
> 
> Here's the update.
> 
> a.. Moffitt Update
> Written 4 hours ago
> 
> Hi friends and family,
> 
> Sorry for the delay in updating. We had labs and a visit with Dr. Sotomayor 
> when we received the unsurprising news of admittance last night. We were 
> told that we would receive a phone call when our room was ready so we opted 
> to go have dinner at Chili's and found dad a new Otterbox case for his 
> iPhone at University Mall. We came back to Moffitt since we hadn't heard 
> from them and waited around for another good 4 hours before finally 
> receiving word that the room is ready. We got up here and settled around 
> 930-10pm and were told chemo would begin at midnight. This is our first stay 
> at Moffitt so Kim and I decided to stay here until all was underway and we 
> could meet his tech and nurse for the evening. Kim and I left around 12:30 
> this morning and were back around 11.
> 
> Dad had a touch of nausea in which the nurse gave an extra dose of 
> medication this morning. His color is a bit rough and his hemoglobin level 
> is at 8.7. Usually by this point we are headed to the infusion center for a 
> transfusion so it's a bit odd for us to not have heard one was going to 
> happen. The nurse last night estimated he would be able to be discharged 
> either late Thursday night or Friday depending on what works better for us. 
> Dad seems to like the food better than at St. A's and overall is in fairly 
> good spirits although very tired. It's so funny the different protocols here 
> vs FL Cancer. There are some things they get up in arms about that the team 
> in St. Pete doesn't, but I digress.
> 
> The chemo is given every 12 hours and on the last day he will be given the 
> other two drugs prior to discharge. It's been midnight and noon and we are 
> about to go into bag 3 of cyclophosphamide tonight. It does look like we are 
> back into having to go to appointments three or so times per week. They very 
> heavily monitor blood counts here and we will have to go in twice a week on 
> top of the Rituxan regiment and Neulasta injections.
> 
> He just finished dinner and Kim and I showered him with Moon Pie's today 
> from Cracker Barrel so he was one happy camper. For anyone looking, he is in 
> room 418, but he has mentioned that it is hard to text or talk because there 
> is always someone coming in to change a bag or take vitals.
> 
> Jennifer
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