[Blind-rollers] New Member

dianesapiro at bellsouth.net dianesapiro at bellsouth.net
Wed Jun 17 19:18:24 UTC 2009 

 
 Thanks, Jennifer for the advice!   Diane
 -------------- Original message from "Jennifer Aberdeen" <freespirit328 at gmail.com>: --------------


> Hi Diane,
> 
> I managed to get the state to buy me one. I was evaluated by a physical 
> therapist, who was very impressed, and after about a month of repeatedly 
> showing her that I could do it, she ordered the chair. I think it would help 
> even more if a mobility instructor was also present at the PT appointments 
> if you are able to set this up. Of course, it may be very different in 
> Florida than it is in Rhode Island. I did it though, and so it can be done.
> 
> Jen
> 
> Shop my AVON online store
> http://jaberdeen.avonrepresentative.com
> 
> Get healthy!
> http://jaberdeen.qhealthbeauty.com
> 
> Contact me:
> 
> Jennifer Aberdeen
> PO Box 1184
> Woonsocket, RI 02895
> 401-762-3258 (home)
> 401-644-5607 (cell)
> freespirit328 at gmail.com
> SKYPE: J.Aberdeen
> ----- Original Message ----- 
> From: 
> To: "Blind wheelchair users list" 
> Sent: Wednesday, June 17, 2009 8:26 AM
> Subject: Re: [Blind-rollers] New Member
> 
> 
> >
> > I have calls out to EVERYONE!   However, there are no blind persons in our 
> > area that use a power chair---except my son ----but he is only legally 
> > blind!
> >
> > ADvocacy Center is involved, but the attorney just cannot  understand how 
> > a blind person can get around anywhere safely with only a "stick" or dog!!
> >
> > I will not stop pushing for a power chair until she has one!!
> >
> > Thanks for  replying....Sincerely, Diane
> >
> >  -------------- Original message from TYGH HALES 
> > : --------------
> >
> >
> >>
> >> Hi Diane!
> >>
> >> My mom's name is Dianne, and it is also my middle name!
> >>
> >>
> >> I can't even begin to fathom how someone could possibly 'fix' a video 
> >> like that,
> >> but anyways...
> >>
> >>
> >> Is there any possibility that the people at the rehab center advocacy 
> >> groups/ blind serivces could actually meet her and WITNESS FOR THEIR OWN 
> >> EYES her using
> >> a power chair?
> >>
> >>
> >>
> >> Have you written your congressmen/ state Legislators?
> >>
> >> > From: dianesapiro at bellsouth.net
> >> > To: blind-rollers at nfbnet.org
> >> > Date: Mon, 15 Jun 2009 22:56:55 +0000
> >> > Subject: Re: [Blind-rollers] New Member
> >> >
> >> >
> >> >
> >> > Hi Becky and Tygh!!
> >> > > My name is Diane and I have a daughter,Dani---she is 24 years old 
> >> > > with spina bifida and totally blind. She just went blind about 2 
> >> > > years ago......so she has alot of catch-up learning braille and JAWS! 
> >> > > Now her shoulders are having problems. She has always been in a 
> >> > > manual wheelchair but now we are trying to get her into a power 
> >> > > chair........she has great cane skills, but Fl State
> >> medicaid willl not approve one for her...I am SO frustrated!!
> >> >
> >> > I have contacted blind serv ices, advocasy groups and everyone thinks 
> >> > it is
> >> impossible for her to handle a power chair!! We sent a video of her using 
> >> one
> >> all round her own apartment and the rehab center and they thought it was
> >> "fixed"!! She has very good "awareness". We are hoping to get her a 
> >> service dog
> >> as well========and they require a power chair !!!
> >> >
> >> > If you don"t mind, would you please send a letter of support. Thanks so
> >> much.......
> >> >
> >> > Diane Sapiro
> >> > -------------- Original message from TYGH HALES :
> >> --------------
> >> >
> >> >
> >> > >
> >> > > Welcome back, Holly!
> >> > >
> >> > >
> >> > > My name is Becky, and my husband Tygh (pronouced Ty) is a legally 
> >> > > blind
> >> electric wheelchair user. He has used an electric wheelchair for a good 
> >> 15 years
> >> now, since high school, and he's 35 now. He has had a variety of 
> >> different
> >> electric wheelchairs, and not only one to get to high school, but has 
> >> also used
> >> them on oh, about 6 different college campuses, and travelling to 
> >> conventions &
> >> whatnot, as well as getting around whatever towns we have lived in. Trust 
> >> me, he
> >> wears
> >> > > his chairs out! lol.
> >> > > In all his 15+ years of using an electric scooter or wheelchair, he 
> >> > > has only
> >> tipped his chair twice, I believe. The first time was as a freshman 
> >> college
> >> student, he was driving down a sidewalk in a couple inches of freshly 
> >> fallen
> >> snow and wasn't able to tell that he was going off the sidewalk. The 
> >> second
> >> time, he was going down a street and was too far over and on a steep 
> >> grade. Both
> >> times, the chair just tipped on its side. Yes, he was stuck there until 
> >> someone
> >> > > came to help him, but neither time was he injured.
> >> > >
> >> > > > From: mommaholly at gmail.com
> >> > > > To: blind-rollers at nfbnet.org
> >> > > > Date: Sun, 14 Jun 2009 00:06:23 -0400
> >> > > > Subject: [Blind-rollers] New Member
> >> > > >
> >> > > > Hello everyone. I was on this list once before, but got off of it 
> >> > > > for
> >> > > > whatever reason. Now I am back with more questions and needing 
> >> > > > support.
> >> > > >
> >> > > > I am totally blind and while I was pregnant with my son 2 years ago 
> >> > > > I
> >> > > > started losing my hearing. Now I have lost one hear completely and 
> >> > > > the
> >> > > > other ear mostly. Since the tuor that I have is an acoustic neuroma 
> >> > > > on
> >> > > > the 8th nerve which controls not only hearing, but also balance, 
> >> > > > well
> >> > > > I'm vertually drunk all day every day.
> >> > > >
> >> > > > With each day that passes my balance get worse and worse. I have 
> >> > > > fallen
> >> > > > countless times. I am afraid that oone of these day I'm going to 
> >> > > > fall
> >> > > > and break my nec or something very very dangerous. Right now I live 
> >> > > > in
> >> > > > Asheville, NC which is in the mountains. That is like even worse 
> >> > > > with
> >> > > > the balance. Right now I use a walker, but it still can't make me 
> >> > > > catch
> >> > > > myself whenever I'm already falling. My vistibular system is wack.
> >> > > >
> >> > > > So I'm leaning more to a power chair. I have tumors in my spine and
> >> > > > don't think I would be strong enough to push myself, especially up 
> >> > > > all
> >> > > > these sloping sidewalks, driveways, etc of the mountains of 
> >> > > > Asheville.
> >> > > > I am going to be moving back to Arkansas, flat land, soon though 
> >> > > > just
> >> > > > because these mountains are killing me. I'm afraid to go out of my
> >> > > > house alone afraid of falling. I always feel like crying when I go 
> >> > > > out.
> >> > > > It's so hard and I have to concentrate so intently not to lose my
> >> > > > balance and thinking about it only make the balance worse and I 
> >> > > > have to
> >> > > > go sooooo slow.
> >> > > >
> >> > > > So I think really a chair would be best for me. I just am suck 
> >> > > > because
> >> > > > balance is terrible now, but being in a chair, will that make it 
> >> > > > worse?
> >> > > > My right leg is already weak. The quads are basically non existant 
> >> > > > and
> >> > > > PT never could get it back. There's nerve damage and really not way 
> >> > > > to
> >> > > > get it back. I have nothing to lock my knees so it can buckle very
> >> > > > easily. And since that leg is not strong I have trouble keepingthe
> >> > > > balance, then throw in all the other vistibular problems.
> >> > > >
> >> > > > How does mobility in a chair work? Is it hard? One thing I was
> >> > > > thinkingabout, I know I'm paranoid. I know there are seat belts, 
> >> > > > but
> >> > > > what if the chair tips overand you're strapped in then that heavy 
> >> > > > chairs
> >> > > > falls on you. What would you do? How likely is it to tip? Have any 
> >> > > > of
> >> > > > you tipped it?
> >> > > >
> >> > > > Also what would be the best type of chair to get considering I'm 
> >> > > > blind
> >> > > > and don't have my own car to adapt and also won't have public
> >> > > > transportation in Arkansas to call a Van and make surethey have a 
> >> > > > lift
> >> > > > and those little wheel locks like paratranset. Would a folding
> >> > > > powerchair be good? Do any of you have one of those?
> >> > > >
> >> > > > Help, I'm full of question. Smiles.
> >> > > >
> >> > > > Holly
> >> > > >
> >> > > >
> >> > > > _______________________________________________
> >> > > > Blind-rollers mailing list
> >> > > > Blind-rollers at nfbnet.org
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> >> > >
> >> 
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> >> > >
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