[blparent] surgury

Tue Nov 29 06:19:26 UTC 2011

Gerald's friend, who was flown to the States for life-saving angioplasty, is 
very well off.  Most people couldn't do that, unfortunately.

Jo Elizabeth

"How far you go in life depends on you being tender with the young, 
compassionate with the aged, sympathetic with the striving, and tolerant of 
the weak and the strong.  Because someday in life you will have been all of 
these."--George Washington Carver, 1864-1943, American scientist

--------------------------------------------------
From: "Veronica Smith" <madison_tewe at spinn.net>
Sent: Monday, November 28, 2011 9:23 PM
To: "'NFBnet Blind Parents Mailing List'" <blparent at nfbnet.org>
Subject: Re: [blparent] surgury

> It probably depends on insurance.
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of Pickrell, Rebecca M (TASC)
> Sent: Monday, November 28, 2011 9:36 AM
> To: 'NFBnet Blind Parents Mailing List'
> Subject: Re: [blparent] surgury
>
> wow.
> So next question, if they can medivac people out of Canada, like they did
> for your friend, can't they do this for Shannon?
>
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of Jo Elizabeth Pinto
> Sent: Monday, November 28, 2011 11:21 AM
> To: NFBnet Blind Parents Mailing List
> Subject: Re: [blparent] surgury
>
> I understand that the medical system in Canada, where Shannon lives, moves
> considerably more slowly than it does here in the U.S.  I have a friend in
> Canada who waited almost two years to have her gallbladder out, and 
> several
> months for a hernia surgery she needed.  Gerald knows a guy who was 
> expected
> to wait twelve days in Canada for angioplasty.  He was flown by helicopter
> to Seattle instead.
>
> Jo Elizabeth
>
> "How far you go in life depends on you being tender with the young,
> compassionate with the aged, sympathetic with the striving, and tolerant 
> of
> the weak and the strong.  Because someday in life you will have been all 
> of
> these."--George Washington Carver, 1864-1943, American scientist
>
> --------------------------------------------------
> From: "Pickrell, Rebecca M (TASC)" <REBECCA.PICKRELL at tasc.com>
> Sent: Monday, November 28, 2011 9:04 AM
> To: <blparent at nfbnet.org>
> Subject: Re: [blparent] surgury
>
>> If it's an emergency surgery, why isn't it being done right now or like 
>> in
>> a week.
>> I'd push back on this answer given the pain you seem to be in.
>> What kind of patch do you need and where is "here"? Again, push back with
>> your health care provider. You may want to even think about ordering one
>> yourself that is comfortable and asthetically pleasing if that is your
>> goal.
>> And, do talk to your health provider about the drops, my understanding is
>> they should not be causing the pressure in your eyes to rise, they should
>> be making it fall or keeping at its current level.
>> Do you have anybody who can advocate for you? Sounds like you really need
>> it.
>> Go to your health provider, outline the impact not having the surgery is
>> having on your life and make it happen. This is no way for you or your 
>> son
>> to live.
>> As for recovery time, again, talk to them about this. If it will be a 
>> long
>> time, could you have someone or several someones from your church help
>> you? Or could you put your son in full day or half day preschool so you
>> can rest during the day?
>>
>> You do have many many options here.
>> Also, where is Papa Bear? If he can't advocate for you froma medical
>> perspective (my husband can't) he can and should parent the little one.
>> So long as you show interest in your son and are kind to him, he'll be
>> okay. Play music with him, draw, talk about stuff you guys like, play
>> dough, go outside and watch stuff you guys like, the sky, airplanes,
>> people with their dogs, whatever.
>>
>>
>> -----Original Message-----
>> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
>> Behalf Of Shannan Zinck
>> Sent: Sunday, November 27, 2011 1:50 PM
>> To: blparent at nfbnet.org
>> Subject: [blparent] surgury
>>
>> Hey everyone been a long time. This has been a pretty rough year for me.
>> Wondering If anyone here has had an eye removed while parenting a 2 year
>> old.  I'm supposed to have emergency surgury which could take anywhere
>> from
>> 2 weeks to 3 months to happen though the sooner the better. My son
>> understands enough to be careful not to touch my face (extremely painful
>> if
>> he does) but, he is a toddler and a super active one at that. Also
>> wondering what if anything I can to to ease the headaches and nasuea 
>> until
>> they get around to taking the eye out. Is there a patch that is more
>> comfortable or something. I've tried the soft concave ones but, they put
>> too much pressure on my eye, the eye itself is so pressured that it 
>> sticks
>> out past the bone above it. Not pretty for sure. The plastic ones are 
>> near
>> impossible to get here and sunglasses are too dark for me. Not having 
>> much
>> luck. I discovered that the drops they put me on for pain raise the
>> pressure in my eye so concerned about using them. Also what's the 
>> recovery
>> like length discomfort and all that. Haven't had surgury in 20 years so a
>> lot has changed since then.  I haven't been able to do much with my son
>> for
>> the past few months because I'm alway feeling lousey. He's being a great
>> sport about all this but, I'd like to find creative ways to spend time
>> with
>> him that don't require much physical activety. Sorry I haven't been 
>> around
>> much just doing the bare min until things calm down. The computer hurts 
>> my
>> eyes if on too long so don't get to read much anymore. thanks.
>>
>> --
>> Shannan Zinck
>> Survival is letting GOD take over!!!
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