[Diabetes-talk] What can we do?

catdancing catdancing at sbcglobal.net
Wed Feb 11 14:33:21 UTC 2009 

i guess you could say i am not a "medicaly friendly" person in the 42 years 
i've had diabetes never once has anyone in the medical field done a thing to 
help with this disease all they have done is tell me what i need to do to 
live wit it. i pay them but i do all the work that just seems very crooked 
to me.
Debbie
----- Original Message ----- 
From: "David Anspach" <danspach at tampabay.rr.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Sent: Tuesday, February 10, 2009 8:34 PM
Subject: Re: [Diabetes-talk] What can we do?


> Hi Debbie,
> My experience with the Voice has been just the opposite.  I was surprised 
> to
> find that the Joslin center here in our area in Florida had copies of the
> Voice. They were very pleased with the publication and at the time, made
> sure that anyone  who was newly diagnosed, or, was needing any info
> regarding diabetes took a look at the Voice.
>
> So, I have to disagree with you in regard to the medical profession not
> wanting to have anything to do with something that won't make them a few
> extra dollars. I'm still amazed at how bitter you seem to be towards the
> medical profession as a whole. I know you have told us all why you feel as
> you do, but I have forgotten the exact reasons why.
>
> I have found several wonderful doctors here in Largo and have been very
> happy with their level of care.  They are in no way out to just make a 
> buck.
> Instead, they show compassion and truly care about their patients. The 
> folks
> that I have worked with at Minimed, the maker of my insulin pump, are much
> the same. Sure they are always discussing the new capabilities of the 
> pump,
> but they take the time to listen to my concerns and are not out just for 
> the
> all mighty dollar. In fact, they will be meeting with me at my next 
> doctor's
> appointment to help me determine if I need to change basal rates and so
> forth to get my A1C back to the level it was before I ended up in the
> hospital.
>
> I just don't think it's fair to lump all people in the medical profession
> into one category simply based on your experiences with a few unscrupulous
> companies or doctors. I think there are far more people in the field that
> are truly concerned with the health of their patients instead of being out
> there just to make as much money as possible. For example, I think Anne
> Williams, who posts to this list on a regular basis, is a shining example 
> of
> what I'm trying to say about the good people in the medical field. She 
> truly
> cares about the patients she sees and it shows by the message she posts 
> here
> on this list and in the articles she has written for the Voice.
>
> I know I won't be able to sway your opinion, but I always try to keep in
> mind that a positive attitude goes a long way in managing your diabetes. 
> It
> has worked for me over the years and has kept me out of the hospital and
> helped me manage my diabetes successfully and I won't trade a positive
> attitude, or view of the medical profession as a whole as being made up of
> good people, for anything. .
>
> Thanks for reading my rather lengthy post,
>
> Dave
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of catdancing
> Sent: Tuesday, February 10, 2009 6:46 PM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] What can we do?
>
> Eileen
> All i am saying is that if the medical field can't make money off of
> anything that concerns diabetes they will have nothing to do with it.
> i once asked a doctor i saw here anemdo if he would like to have the voice
> in his office.his response "i see no need for it?
> oh well!
> Debbie
> ----- Original Message -----
> From: "Eileen Scrivani" <etscrivani at verizon.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Tuesday, February 10, 2009 12:10 PM
> Subject: Re: [Diabetes-talk] What can we do?
>
>
>> Debbie:
>>
>> This raises a few more questions.  I understand that people who are
>> blind are on limited incomes and may not be able to afford to pay for
>> a subscription to the Voice, but what about Doctor's, hospital's &
>> other medical professionals?  Certainly, they can afford to pay a
>> subscription fee.  Out of the circulation numbers, how many go to
>> people who are blind and may not be able to cover the cost of a
>> subscription & how many go to medical professionals?  Do doctor's give
>> away services for free?  I think not.
>>
>> And, why increase the cost of the publication with color pictures?
>> Isn't the mag primarily for those who are blind?  Perhaps the focus
>> has changed somewhere along the line from presenting good information
>> to the blind/vi community to trying to attract sighted readers?
>>
>> Eileen
>>
>> ----- Original Message -----
>> From: "catdancing" <catdancing at sbcglobal.net>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Sent: Tuesday, February 10, 2009 12:11 PM
>> Subject: Re: [Diabetes-talk] What can we do?
>>
>>
>>> this just seems to figure as far as diabetes and anything related to
>>> the disease that doesn't bring in a lot of money to support the
>>> disease. The Voice is a great magazine the reason it is being
>>> eliminated is because it is helpful and no one in the medical field
>>> is making a huge profit from it.
>>> Debbie
>>> ----- Original Message -----
>>> From: "Elizabeth Lunt " <boo.lunt at verizon.net>
>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>> Sent: Monday, February 09, 2009 4:49 PM
>>> Subject: Re: [Diabetes-talk] What can we do?
>>>
>>>
>>>> Hello All,
>>>> I feel I must finally write in here. The cost of the Voice of the
>>>> Diabetic has not "skyrocketed" and I'm not sure where this
>>>> information is coming from. Even with the much-improved design and
>>>> full color, the costs were controlled, and money was coming in from
>>>> ads and sponsorships. However, it simply costs a lot to print and
>>>> ship so many copies -- our circulation for Voice of the Diabetic is
>>>> over 300 thousand copies per quarter. It was very popular among
>>>> readers and diabetes educators and demand was high.
>>>> Gathering
>>>> the information, selling advertisements and getting education
>>>> grants, and writing and editing the publication accounted for staff
>>>> members' time, as well as other diabetes advocacy activities such as
>>>> pushing for accessible diabetes technology. Dr. Maurer has made a
>>>> decision to cut the entire Diabetes Initiatives project, which
>>>> included publishing Voice of the Diabetic. He has said that some
>>>> diabetes activities will be folded into the duties of existing staff
>>>> at the NFB, but the rest of us have been let go. We did the best we
>>>> could to present up-to-date, helpful and inspiring information about
>>>> both diabetes and coping with diabetes with limited or no vision.
>>>> There will not be another issue of the magazine, because Dr.
>>>> Maurer
>>>> made his decision after the Winter issue went out, and he is folding
>>>> the project now, before another would have gone out in the spring.
>>>> Thank you for your support over the years. I have enjoyed working on
>>>> this publication. I hope you will get the full story, or try to,
>>>> before continuing this conversation with NFB leadership.
>>>> All the best,
>>>> Elizabeth Lunt
>>>> Editor, Voice of the Diabetic
>>>>
>>>> -----Original Message-----
>>>> From: diabetes-talk-bounces at nfbnet.org
>>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>>> Blindhands at aol.com
>>>> Sent: Monday, February 09, 2009 1:17 PM
>>>> To: diabetes-talk at nfbnet.org
>>>> Subject: [Diabetes-talk] What can we do?
>>>>
>>>> Diabetes is the number 1 cause of blindness in the USA.  It ranks up
>>>> there throughout the world.  What can we do to stop or have them at
>>>> least consider another  way of continuing the Voice of the Diabetic
>>>> publication.
>>>>
>>>> NFB is always asking us to contact our Senators and House of
>>>> Representative
>>>>
>>>> members, how about calling or emailing our President of NFB  to "Voice"
>>>> our
>>>> opinion and thoughts on this?
>>>>
>>>> The blind depend on word of mouth to learn about things, that is why
>>>> we are
>>>>
>>>> encouraged to talk about NFB to everyone blind and sighted.
>>>>
>>>> I understand that the cost of the publication has sky rocketed, but
>>>> do we need color photos and the new look of the Voice?  I am sure
>>>> those are some of the reasons that caused the price  to soar.
>>>>
>>>> I am disappointed with this decision.  I do know that there has been
>>>> concerns in the past years about the  money going  out for this
>>>> publication and the
>>>> NFB covering the  cost.          the circulation of  this publication 
>>>> is
>>>> over
>>>> three hundred thousand .
>>>>
>>>> Mike, do you know if there will be a notice put into the Voice and
>>>> will there be a final Voice sent out or is it just over like that ?
>>>>
>>>> Joyce
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>>>>
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>>>
>>>
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>>
>>
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>
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