[Diabetes-talk] Wow!!! Guess everyone is awake now???
cheryl echevarria
cherylandmaxx at hotmail.com
Thu Oct 20 14:25:52 UTC 2011
Of course, each one is different, and I am sorry you went through all of that, I do not wish you any pain or aggravation with it all.
So, please do not take offense. Yes I am strong on my wording, but many of us do use the pump, and it is working for myself and others.
Leading the Way in Independent Travel!
Cheryl Echevarria
http://www.echevarriatravel.com<http://www.echevarriatravel.com/>
631-456-5394
reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com>
Affiliated as an Independent Contractor with Superior Travel, located in Baldwin, NY. www.superiortravel.com<http://www.superiortravel.com/>
----- Original Message -----
From: Dr. Denise M Robinson<mailto:deniserob at gmail.com>
To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org>
Sent: Thursday, October 20, 2011 10:22 AM
Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???
Cheryl
I believe I am just one of those very sensitive people and there is/was
nothing that could be done about the damage the pump inserts were doing to
my body (my abs looked like I was in a perpetual car accident due to all the
bruising--had been switched to different inserts also..nothing worked)...we
are all unique and I think silly in my own silly body issues. Just points to
be aware of. I did love the convenience of it but that did not overcome the
incredible pain of wearing it.
Denise
On Thu, Oct 20, 2011 at 6:40 AM, cheryl echevarria <
cherylandmaxx at hotmail.com<mailto:cherylandmaxx at hotmail.com>> wrote:
> Dr. Robinson:
>
> Are you an endocrinologist?
>
> I have had Type 1 since I was a child, and in 2001 lost my vision, as an
> adult.
>
>
> My question to you is, there are many of us on the pump here, and we know
> the ups and downs, and that is why you need to work with your diabetic
> educators and physicians more closely when you pump or not pump.
>
> I have lost 10 pounds since being on the pump.
>
> Have had a kidney transplant in 2005 from losing my eyesight and kidneys to
> diabetes, the doctors had fought for me to get the pump, as of Feb 2011 I
> have been on it, they only thing dear hubby helps with is filling of the
> part that takes the insulin.
>
> Have had no issues with the tubing, and I put it in a little pocket that I
> wear in my bra so the tubing is out of the way.
>
> My sugars have gone down from being over 300 when I wake up in the morning
> to, 160 in the morning, yes sometimes I have lows, but so do many who are
> using the syringes or pens.
>
> No bruising no pains, I have neropathy, in my hands and feet so it doesn't
> bother me when I attach it to my stomach area, I don't use my thighs, I
> tried that but it kept coming off.
>
> Plenty of room on my abdomen area
> Leading the Way in Independent Travel!
>
> Cheryl Echevarria
> http://www.echevarriatravel.com<http://www.echevarriatravel.com/<http://www.echevarriatravel.com%3chttp//www.echevarriatravel.com/>>
> 631-456-5394
> reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com%3Cmailto:reservations at echevarriatravel.com>
> >
>
> Affiliated as an Independent Contractor with Superior Travel, located in
> Baldwin, NY. www.superiortravel.com<http://www.superiortravel.com/<http://www.superiortravel.com%3chttp//www.superiortravel.com/>>
>
>
> ----- Original Message -----
> From: Dr. Denise M Robinson<mailto:deniserob at gmail.com<mailto:deniserob at gmail.com>>
> To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org<mailto:diabetes-talk at nfbnet.org>>
> Sent: Thursday, October 20, 2011 9:11 AM
> Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???
>
>
> Just a quick note on pump using...They are painful to use and cause
> brusing...at least on me and I have asked on others...so if you have a
> tendency to be sensitive, well...you know. Yes the convenience is nice to
> just pump insulin in at any time, but it needs to be working well all the
> time and it does not.
>
> If you have lots of neropathy, the pain of it might not bother you as
> much,
> but here are some issues. The tubing, gets clogged or bubbles are in the
> tube and it won't deliver the insulin well and thus your blood sugar goes
> sky high. At night you can get severe lows...I have been down to 30s and
> 40s, this happens during the day too even if I am a bit late on eating--I
> experience more severe lows with the pump and many many too many highs
> because of the delivery system issues. I had to go off it because of these
> issues BUT, what I did learn is how to control my blood sugar even better
> with needle injections...ok, I take about 7-10 shots a day. I use lantus,
> long acting insulin in morning and small amount at night to get me through
> the night to keep my blood sugar in check and humlog for my fast
> acting...just lots of little shots throughout the day to go with what I
> eat.
> My A1C is 6.5...I am considered a severe diabetic...absolutely no function
> in the pancreas since I was 16.
>
> I actually load my needle for the whole day. I am a 15 cc unit user for 1
> day--I can't eat much, so it is easy to keep track. I know exactly how
> much
> 2 cc units of delivery is so injection is easy and that is about how much
> food I eat at a time, due to stomach cancer issues and almost no stomach
> now. So it is easy to do delivery and I have the best A1C I have ever had.
> So if you know how much you take for the day, load that needle and it is
> easy to keep track of what is going on. At first you have to be VERY
> deligent in checking blood sugar to go with how much insulin you gave, but
> you get very good it this.
> Anyway...some side notes--Oh yes, just joined you all...HI
> Denise Robinson
>
>
> On Thu, Oct 20, 2011 at 5:28 AM, William and Bernadette Jacobs <
> bandbjacobs at verizon.net<mailto:bandbjacobs at verizon.net<mailto:bandbjacobs at verizon.net%3Cmailto:bandbjacobs at verizon.net>>> wrote:
>
> > Greetings Veronica!
> >
> > So glad to hear from you! Thank you also for your perception/comment
> here!
> > Great contribution to this!! We've all got something here in that no
> matter
> > what Prodigy might or might not be guilty of, there are a whole lot of
> hands
> > in this charade: Prodigy, solo, Roch, all the other meter/pump makers
> out
> > there, all under the rule of the "almighty" FDA??? And unfortunately,
> we
> > still don't have a pump that we were promised from any of them. Yet,
> they
> > don't seem to give a rip because they aren't the consumers waiting for
> it.
> > We're the ones chomping at the bit for it. I, myself am not a pumper
> but
> > I'm not sure I wouldn't be if there wasn't something out there worth my
> time
> > and energy.
> >
> > At this point Gang, I'd really like to take this time to thank you
> again.
> > I've learned so much from all of you; pumpers/non-pumpers alike. I have
> > really enjoyed the comradory here from everyone! Guess that's why I
> > consider us family here!
> >
> > Have a great day gang!
> >
> > Bern
> > ----- Original Message ----- From: "Veronica Elsea" <
> > veronica at laurelcreekmusic.com<mailto:veronica at laurelcreekmusic.com<mailto:veronica at laurelcreekmusic.com%3Cmailto:veronica at laurelcreekmusic.com>>**>
> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org<mailto<mailto:diabetes-talk at nfbnet.org%3Cmailto>:
> diabetes-talk at nfbnet.org<mailto:diabetes-talk at nfbnet.org>>>
> > Sent: Wednesday, October 19, 2011 11:31 PM
> > Subject: Re: [Diabetes-talk] VoiceRx is Prodigy
> >
> >
> > Well, I have no connection to Prodigy or anyone else, but from the
> >> conversations I had in August with Prodigy, other pump companies who
> were
> >> also held up, and the FDA representative, at this point I do believe
> that
> >> the FDA backlog is playing a part in the delay. There are several
> stages in
> >> which the FDA comes into play, some very early on in the pre-marketing
> >> approval. And given that nothing new is appearing anywhere right now,
> I'm
> >> willing to cut them some slack until I learn something different.
> >> But I'm not in the inner circle, just waiting like the rest of you.
> >> <grin.>
> >>
> >> Veronica
> >> We Woof You A Merry Christmas! Diabetes Melodious! And more!
> >> Music CDs that will impact and entertain you forever!
> >> http://www.laurelcreekmusic.**com<http://www.laurelcreekmusic.**com/<http://www.laurelcreekmusic.**com%3chttp//www.laurelcreekmusic.**com/>>
> <http://www.laurelcreekmusic.com<http://www.laurelcreekmusic.com/<http://www.laurelcreekmusic.com%3chttp//www.laurelcreekmusic.com/>>>
> >> Veronica Elsea, Owner
> >> Laurel Creek Music Designs
> >> Santa Cruz, California
> >> 877-607-6407
> >>
> >>
> >> ______________________________**_________________
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> >>
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> http://nfbnet.org/mailman/**options/diabetes-talk_nfbnet<http://nfbnet.org/mailman/**options/diabetes-talk_nfbnet>>.**
> >> org/bandbjacobs%40verizon.net<
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bandbjacobs%40verizon.net<http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bandbjacobs%40verizon.net>
> <
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bandbjacobs%40verizon.net<http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bandbjacobs%40verizon.net>
> >>
> >>
> >>
> >
> > ______________________________**_________________
> > Diabetes-talk mailing list
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> > http://nfbnet.org/mailman/**listinfo/diabetes-talk_nfbnet.**org<http://nfbnet.org/mailman/**listinfo/diabetes-talk_nfbnet.**org><
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org<http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org><
> http://nfbnet.org/mailman/**listinfo/diabetes-talk_nfbnet.**org%3Chttp://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org<http://nfbnet.org/mailman/**listinfo/diabetes-talk_nfbnet.**org%3Chttp://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org>
> >>
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> > org/deniserob%40gmail.com<
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/deniserob%40gmail.com<http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/deniserob%40gmail.com>
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> >>
> >
>
>
>
> --
> Denise
>
> Denise M. Robinson, TVI, Ph.D.
> CEO, TechVision
> Specialist in blind technology/teaching/training
> Email: yourtechvision at gmail.com<mailto:yourtechvision at gmail.com<mailto:yourtechvision at gmail.com%3Cmailto:yourtechvision at gmail.com>> <
> deniserob at gmail.com<mailto:deniserob at gmail.com<mailto:deniserob at gmail.com%3Cmailto:deniserob at gmail.com>>>
> Website with hundreds of lessons: yourtechvision.com
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> <
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com<http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com>
> >
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>
--
Denise
Denise M. Robinson, TVI, Ph.D.
CEO, TechVision
Specialist in blind technology/teaching/training
Email: yourtechvision at gmail.com<mailto:yourtechvision at gmail.com> <deniserob at gmail.com<mailto:deniserob at gmail.com>>
Website with hundreds of lessons: yourtechvision.com
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