[Diabetes-talk] Wow!!! Guess everyone is awake now???
Dr. Denise M Robinson
deniserob at gmail.com
Thu Oct 20 14:58:12 UTC 2011
Oh yes, I get that Cheryl. No offense taken
Denise
On Thu, Oct 20, 2011 at 7:25 AM, cheryl echevarria <
cherylandmaxx at hotmail.com> wrote:
> Of course, each one is different, and I am sorry you went through all of
> that, I do not wish you any pain or aggravation with it all.
>
> So, please do not take offense. Yes I am strong on my wording, but many of
> us do use the pump, and it is working for myself and others.
>
> Leading the Way in Independent Travel!
>
> Cheryl Echevarria
> http://www.echevarriatravel.com<http://www.echevarriatravel.com/>
> 631-456-5394
> reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com
> >
>
> Affiliated as an Independent Contractor with Superior Travel, located in
> Baldwin, NY. www.superiortravel.com<http://www.superiortravel.com/>
>
>
> ----- Original Message -----
> From: Dr. Denise M Robinson<mailto:deniserob at gmail.com>
> To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org>
> Sent: Thursday, October 20, 2011 10:22 AM
> Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???
>
>
> Cheryl
>
> I believe I am just one of those very sensitive people and there is/was
> nothing that could be done about the damage the pump inserts were doing to
> my body (my abs looked like I was in a perpetual car accident due to all
> the
> bruising--had been switched to different inserts also..nothing
> worked)...we
> are all unique and I think silly in my own silly body issues. Just points
> to
> be aware of. I did love the convenience of it but that did not overcome
> the
> incredible pain of wearing it.
> Denise
>
> On Thu, Oct 20, 2011 at 6:40 AM, cheryl echevarria <
> cherylandmaxx at hotmail.com<mailto:cherylandmaxx at hotmail.com>> wrote:
>
> > Dr. Robinson:
> >
> > Are you an endocrinologist?
> >
> > I have had Type 1 since I was a child, and in 2001 lost my vision, as an
> > adult.
> >
> >
> > My question to you is, there are many of us on the pump here, and we
> know
> > the ups and downs, and that is why you need to work with your diabetic
> > educators and physicians more closely when you pump or not pump.
> >
> > I have lost 10 pounds since being on the pump.
> >
> > Have had a kidney transplant in 2005 from losing my eyesight and kidneys
> to
> > diabetes, the doctors had fought for me to get the pump, as of Feb 2011
> I
> > have been on it, they only thing dear hubby helps with is filling of the
> > part that takes the insulin.
> >
> > Have had no issues with the tubing, and I put it in a little pocket that
> I
> > wear in my bra so the tubing is out of the way.
> >
> > My sugars have gone down from being over 300 when I wake up in the
> morning
> > to, 160 in the morning, yes sometimes I have lows, but so do many who
> are
> > using the syringes or pens.
> >
> > No bruising no pains, I have neropathy, in my hands and feet so it
> doesn't
> > bother me when I attach it to my stomach area, I don't use my thighs, I
> > tried that but it kept coming off.
> >
> > Plenty of room on my abdomen area
> > Leading the Way in Independent Travel!
> >
> > Cheryl Echevarria
> > http://www.echevarriatravel.com<http://www.echevarriatravel.com/<
> http://www.echevarriatravel.com%3chttp//www.echevarriatravel.com/>>
> > 631-456-5394
> > reservations at echevarriatravel.com<mailto:
> reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com
> %3Cmailto:reservations at echevarriatravel.com>
> > >
> >
> > Affiliated as an Independent Contractor with Superior Travel, located in
> > Baldwin, NY. www.superiortravel.com<http://www.superiortravel.com/<
> http://www.superiortravel.com%3chttp//www.superiortravel.com/>>
> >
> >
> > ----- Original Message -----
> > From: Dr. Denise M Robinson<mailto:deniserob at gmail.com<mailto:
> deniserob at gmail.com>>
> > To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org
> <mailto:diabetes-talk at nfbnet.org>>
> > Sent: Thursday, October 20, 2011 9:11 AM
> > Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???
> >
> >
> > Just a quick note on pump using...They are painful to use and cause
> > brusing...at least on me and I have asked on others...so if you have a
> > tendency to be sensitive, well...you know. Yes the convenience is nice
> to
> > just pump insulin in at any time, but it needs to be working well all
> the
> > time and it does not.
> >
> > If you have lots of neropathy, the pain of it might not bother you as
> > much,
> > but here are some issues. The tubing, gets clogged or bubbles are in
> the
> > tube and it won't deliver the insulin well and thus your blood sugar
> goes
> > sky high. At night you can get severe lows...I have been down to 30s
> and
> > 40s, this happens during the day too even if I am a bit late on
> eating--I
> > experience more severe lows with the pump and many many too many highs
> > because of the delivery system issues. I had to go off it because of
> these
> > issues BUT, what I did learn is how to control my blood sugar even
> better
> > with needle injections...ok, I take about 7-10 shots a day. I use
> lantus,
> > long acting insulin in morning and small amount at night to get me
> through
> > the night to keep my blood sugar in check and humlog for my fast
> > acting...just lots of little shots throughout the day to go with what I
> > eat.
> > My A1C is 6.5...I am considered a severe diabetic...absolutely no
> function
> > in the pancreas since I was 16.
> >
> > I actually load my needle for the whole day. I am a 15 cc unit user for
> 1
> > day--I can't eat much, so it is easy to keep track. I know exactly how
> > much
> > 2 cc units of delivery is so injection is easy and that is about how
> much
> > food I eat at a time, due to stomach cancer issues and almost no
> stomach
> > now. So it is easy to do delivery and I have the best A1C I have ever
> had.
> > So if you know how much you take for the day, load that needle and it
> is
> > easy to keep track of what is going on. At first you have to be VERY
> > deligent in checking blood sugar to go with how much insulin you gave,
> but
> > you get very good it this.
> > Anyway...some side notes--Oh yes, just joined you all...HI
> > Denise Robinson
> >
> >
> > On Thu, Oct 20, 2011 at 5:28 AM, William and Bernadette Jacobs <
> > bandbjacobs at verizon.net<mailto:bandbjacobs at verizon.net<mailto:
> bandbjacobs at verizon.net%3Cmailto:bandbjacobs at verizon.net>>> wrote:
> >
> > > Greetings Veronica!
> > >
> > > So glad to hear from you! Thank you also for your perception/comment
> > here!
> > > Great contribution to this!! We've all got something here in that no
> > matter
> > > what Prodigy might or might not be guilty of, there are a whole lot
> of
> > hands
> > > in this charade: Prodigy, solo, Roch, all the other meter/pump
> makers
> > out
> > > there, all under the rule of the "almighty" FDA??? And
> unfortunately,
> > we
> > > still don't have a pump that we were promised from any of them. Yet,
> > they
> > > don't seem to give a rip because they aren't the consumers waiting
> for
> > it.
> > > We're the ones chomping at the bit for it. I, myself am not a pumper
> > but
> > > I'm not sure I wouldn't be if there wasn't something out there worth
> my
> > time
> > > and energy.
> > >
> > > At this point Gang, I'd really like to take this time to thank you
> > again.
> > > I've learned so much from all of you; pumpers/non-pumpers alike. I
> have
> > > really enjoyed the comradory here from everyone! Guess that's why I
> > > consider us family here!
> > >
> > > Have a great day gang!
> > >
> > > Bern
> > > ----- Original Message ----- From: "Veronica Elsea" <
> > > veronica at laurelcreekmusic.com<mailto:veronica at laurelcreekmusic.com
> <mailto:veronica at laurelcreekmusic.com%
> 3Cmailto:veronica at laurelcreekmusic.com>>**>
> > > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org
> <mailto<mailto:diabetes-talk at nfbnet.org%3Cmailto>:
> > diabetes-talk at nfbnet.org<mailto:diabetes-talk at nfbnet.org>>>
> > > Sent: Wednesday, October 19, 2011 11:31 PM
> > > Subject: Re: [Diabetes-talk] VoiceRx is Prodigy
> > >
> > >
> > > Well, I have no connection to Prodigy or anyone else, but from the
> > >> conversations I had in August with Prodigy, other pump companies who
> > were
> > >> also held up, and the FDA representative, at this point I do believe
> > that
> > >> the FDA backlog is playing a part in the delay. There are several
> > stages in
> > >> which the FDA comes into play, some very early on in the
> pre-marketing
> > >> approval. And given that nothing new is appearing anywhere right
> now,
> > I'm
> > >> willing to cut them some slack until I learn something different.
> > >> But I'm not in the inner circle, just waiting like the rest of you.
> > >> <grin.>
> > >>
> > >> Veronica
> > >> We Woof You A Merry Christmas! Diabetes Melodious! And more!
> > >> Music CDs that will impact and entertain you forever!
> > >> http://www.laurelcreekmusic.**com<http://www.laurelcreekmusic.
> **com/<http://www.laurelcreekmusic.
> **com%3chttp//www.laurelcreekmusic.**com/>>
> > <http://www.laurelcreekmusic.com<http://www.laurelcreekmusic.com/<
> http://www.laurelcreekmusic.com%3chttp//www.laurelcreekmusic.com/>>>
> > >> Veronica Elsea, Owner
> > >> Laurel Creek Music Designs
> > >> Santa Cruz, California
> > >> 877-607-6407
> > >>
> > >>
> > >> ______________________________**_________________
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> <
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> >
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> > >> org/bandbjacobs%40verizon.net<
> >
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> <
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> >
> > >>
> > >>
> > >>
> > >
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> >
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> >
> > <
> >
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> <
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> >
> > >>
> > >
> >
> >
> >
> > --
> > Denise
> >
> > Denise M. Robinson, TVI, Ph.D.
> > CEO, TechVision
> > Specialist in blind technology/teaching/training
> > Email: yourtechvision at gmail.com<mailto:yourtechvision at gmail.com
> <mailto:yourtechvision at gmail.com%3Cmailto:yourtechvision at gmail.com>> <
> > deniserob at gmail.com<mailto:deniserob at gmail.com<mailto:
> deniserob at gmail.com%3Cmailto:deniserob at gmail.com>>>
> > Website with hundreds of lessons: yourtechvision.com
> > _______________________________________________
> > Diabetes-talk mailing list
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> Diabetes-talk at nfbnet.org%3Cmailto:Diabetes-talk at nfbnet.org>>
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> <
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> >
> > <
> >
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> <
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx%40hotmail.com
> >
> > >
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> >
> >
>
>
>
> --
> Denise
>
> Denise M. Robinson, TVI, Ph.D.
> CEO, TechVision
> Specialist in blind technology/teaching/training
> Email: yourtechvision at gmail.com<mailto:yourtechvision at gmail.com> <
> deniserob at gmail.com<mailto:deniserob at gmail.com>>
> Website with hundreds of lessons: yourtechvision.com
> _______________________________________________
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--
Denise
Denise M. Robinson, TVI, Ph.D.
CEO, TechVision
Specialist in blind technology/teaching/training
Email: yourtechvision at gmail.com <deniserob at gmail.com>
Website with hundreds of lessons: yourtechvision.com
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