[Diabetes-Talk] 2019 NFB Legislative Priority

[d m gina]

I am the backward one on the list ha,
where I am in contact with our reps here in Montana.
I do write in and ask questions.
I would be glad to send this to the state of Montana, letting them know 
we also have problems need to be looked at it.
Do you want a bundle looked at first, or do you want pumps, then dex com.
Guide my way and I will do my best.

Original message:
> Right or wrong, then we need to flood the national office and make this 
> clear. And I mean flood it. We and other members and even our family 
> and friends need to contact Riccobono and national and state how 
> important it is to have a separate bill for medical tech, and make sure 
> people with actual medical conditions be a part of the entire process. 
> Five of us, 10 of us is not enough. I'm guilty of this a lot of the 
> time too, but ranting is good and necessary at times, but at some 
> point, we need to actually do something. How many here are contacting 
> the NFB national office? How many are contacting state and federal 
> reps? We need a concentrated effort on all fronts. And let's keep in 
> mind; it's not just one person (s) or group (s) fault. There are a lot 
> of variables that go into crafting legislation like this. So, I say we 
> send our angry emails to President Riccobono and national and keep 
> doing it until they get the point.

> BTW, I was a part of another outside group that assisted in the NFB 
> finally agreeing to the code of conduct that has recently happened, but 
> it took a lot of concentrated effort on our outside group and a lot of 
> communication with national to make it happen. Several people, 
> Federationist and non-Federationist were a part of the group, and we 
> finally made a loud enough noise. It's not changed everything or gone 
> as far as we like, but it's a start. Perhaps those of us here and other 
> blind people with medical conditions need to band together and force 
> some hands too.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Amber Wallenstein via Diabetes-Talk
> Sent: Sunday, February 10, 2019 12:20 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Amber Wallenstein <amber.wallens at gmail.com>
> Subject: Re: [Diabetes-Talk] 2019 NFB Legislative Priority

> I agree Veronica. I was aghast when I read how much time… I counted at 
> least seven years, we will have to wait for anything to happen. I also 
> agree the medical devices are going to get lost in the shuffle. I think 
> there needs to be a higher priority  on medical devices and it needs to 
> be a separate bill.


>> On Feb 10, 2019, at 12:57 PM, Veronica Elsea via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Sorry, I am not totally behind this legislation. Nobody is going to
>> die waiting ten years for an accessible dish washer. This process is
>> too slow, and filled with people who know nothing about our lives or
>> the devices we need. Dish washers don't involve the FDA, Medicare and
>> everyone else. I believe medical devices will get lost in the shuffle
>> here because the group of appliances is so large. Not like we heard
>> from the NFB when crafting this potential legislation, did we? Did I
>> miss something? So if even the people supposedly speaking on our
>> behalf don't talk to us, what can we expect from legislators and access 
>> board rule making? I don't think so.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
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>> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Sunday, February 10, 2019 9:25 AM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] 2019 NFB Legislative Priority

>> Yes, this is incredibly important. We've been sending out these
>> notices in several places. We need support of the Federationist around
>> the country, the blind community in general and our allies to make
>> this happen. Contact your reps on capitol hill and get your family and 
>> friends to do so as well.
>> Working together is how we will get this pushed forward.

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Milton Ota via Diabetes-Talk
>> Sent: Sunday, February 10, 2019 10:02 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Milton Ota <mota1252 at samobile.net>
>> Subject: [Diabetes-Talk] 2019 NFB Legislative Priority

>> Hello All:

>> Here, attached is one of the Legislative Priorities that the National
>> Federation of the Blind took to Capitol Hill to present to congress. I
>> suggest that as many of you get on board with this by contacting your
>> congressman and asking him/her to support this bill once it drops and
>> get a bill number and assigned to a committee. The more of us
>> diabetics let congress know of the seriourness of accessibility of
>> medical home equipment it will get them to get the U.S. Access Board
>> to work on developing guidelines for manufacturers to design 
>> accessibility into their products.

>> As many of you are aware, diabetes is one of the highest and leading
>> causes of blindness.

>> If you have more questions about this legislative priority, I suggest
>> that you contact someone in the Government Affairs Section in the
>> National Office of the National Federation of the Blind, (410) 659-9314.


>> _______________________________________________
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>> laurel
>> creekmusic.com


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>> ns%40gmail.com


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