[nfb-db] DeafBlind in Flushing

[Bdummette]

HI Scott,
Thank you for your response,yes! I would like to start a group ssp here in flushing because there is a need here,I have a few that live near, and I would like to have one as well, I am setting up a small business, and I would like for an ssp program to be part of it.
I would like to explain what I meant, when I said HKNC doe's not understand the full meaning of DeafBlindness,, I have a rare disorder that is leading to my loosing my sight and hearing( NARP) neuropathy retenitis 
primatosa, and I have nerve damage, and that is the reason for my nerve Deafness, and I am legally Blind, I present this to HKNC and I"m told that
we cannot serve you, and my Doctors wrote letters for me, and prescription
In order to understand DeafBlind, you must think outside the box, and what
else can be causing it, it is an invisable disability and you will be amazed at
the way a person functions if they lived with it all their lives.





-----Original Message-----
From: Scott Davert <scottdavert at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Sent: Sun, Sep 4, 2011 10:26 pm
Subject: Re: [nfb-db] DeafBlind in Flushing


No, there aren't any extensive SSP services in New York. We don't even really have an active consumer organization. There is the deaf-blind group of NYC and Long Island, but they don't have formal gatherings. It's more a social group than anything. I agree, HK should be more actively involved in forming an SSP program. I don't set something more up myself because of my active involvement with AADB, my job, and I'm considering going back for another masters.
When you say accepting what it means to be deaf-blind, what do you mean?
 
Scott
  
----- Original Message ----- 
  
From:   Bdummette 
  
To: nfb-db at nfbnet.org 
  
Sent: Sunday, September 04, 2011 6:47   PM
  
Subject: [nfb-db] DeafBlind in   Flushing
  


I was reading your   post and I am just a little confused, there arent ssp's here in new york If 'm   wrong, please tell me, and also, I am DeafBlind myself and having an extremely   hard time with the HKNC accepting what it means to be deafblind, I would like   to converrsate with you further on this matter.

  
  
  
  
_______________________________________________
nfb-db mailing   list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

 
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org

 
-------------- next part --------------
An HTML attachment was scrubbed...
URL: <http://nfbnet.org/pipermail/nfb-db_nfbnet.org/attachments/20110907/8f62c8b2/attachment.html>