[nfb-db] DeafBlind in Flushing

[Scott Davert]

Hello again.
Why did they say they couldn't serve you? I mean, if you have a combination of hearing and vision loss, on what grounds would they say they can't help you? Something doesn't seem right.
As I understand it, HKNC did have an SSP program in the area until funding to help run it  fell apart, and then the program had to be discontinued.

Scott

  ----- Original Message ----- 
  From: Bdummette 
  To: scottdavert at gmail.com ; nfb-db at nfbnet.org 
  Sent: Wednesday, September 07, 2011 9:35 PM
  Subject: Re: [nfb-db] DeafBlind in Flushing



  HI Scott,
  Thank you for your response,yes! I would like to start a group ssp here in flushing because there is a need here,I have a few that live near, and I would like to have one as well, I am setting up a small business, and I would like for an ssp program to be part of it.
  I would like to explain what I meant, when I said HKNC doe's not understand the full meaning of DeafBlindness,, I have a rare disorder that is leading to my loosing my sight and hearing( NARP) neuropathy retenitis 
  primatosa, and I have nerve damage, and that is the reason for my nerve Deafness, and I am legally Blind, I present this to HKNC and I"m told that
  we cannot serve you, and my Doctors wrote letters for me, and prescription
  In order to understand DeafBlind, you must think outside the box, and what
  else can be causing it, it is an invisable disability and you will be amazed at
  the way a person functions if they lived with it all their lives.




  -----Original Message-----
  From: Scott Davert <scottdavert at gmail.com>
  To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
  Sent: Sun, Sep 4, 2011 10:26 pm
  Subject: Re: [nfb-db] DeafBlind in Flushing


  No, there aren't any extensive SSP services in New York. We don't even really have an active consumer organization. There is the deaf-blind group of NYC and Long Island, but they don't have formal gatherings. It's more a social group than anything. I agree, HK should be more actively involved in forming an SSP program. I don't set something more up myself because of my active involvement with AADB, my job, and I'm considering going back for another masters.
  When you say accepting what it means to be deaf-blind, what do you mean?

  Scott
    ----- Original Message ----- 
    From: Bdummette 
    To: nfb-db at nfbnet.org 
    Sent: Sunday, September 04, 2011 6:47 PM
    Subject: [nfb-db] DeafBlind in Flushing


    I was reading your post and I am just a little confused, there arent ssp's here in new york If 'm wrong, please tell me, and also, I am DeafBlind myself and having an extremely hard time with the HKNC accepting what it means to be deafblind, I would like to converrsate with you further on this matter.



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