[nfb-db] ALD's and convention
Gerardo Corripio
gera1027 at gmail.com
Sat Nov 2 19:59:58 UTC 2013
What's Ald stand for exactly? the Fm transmitter one uses to hear
people and such where the person wears a mike and the deafblind person
has a receiver?
El 02/11/2013 01:55 p.m., Scott Davert escribió:
> Hi Tracie.
> Would you say that using an ALD this year was more challenging than
> before? I had to return mine once, but that was all when I was in
> Dallas last year. I was not in Orlando during this convention, as I
> had just returned from running a seminar in California and and work
> wouldn't give me 2 weeks in a row off. I had also been in Michigan
> earlier in June, so I could understand there point.
>
> Scott
>
> Sent from my iPhone
>
> On Nov 2, 2013, at 3:28 PM, Tracie Inman <tracieinman at yahoo.com
> <mailto:tracieinman at yahoo.com>> wrote:
>
>> Heather, Marsha, Janice, and All:
>> You are not alone. I, too struggled with the ALD's. I took them
>> back several times and told Curtis they weren't working properly. I
>> was told to change the setting on my C.I. and to hold the cord out on
>> the ALD . That was unsuccessful. We heard from many others who were
>> struggling with the ALD's. In short, the ALD situation at the 2013
>> convention was not a good one. President Naulty has written to Mark
>> Riccobono and requested a meeting. The situation with the ALD's is
>> one of the subjects on the agenda for that meeting. The Deaf-Blind
>> division plans to work closely with National to improve this
>> situation and others.
>> While there are still many areas that we need to improve to make
>> the conventions fully accessible to all, I do believe that we have
>> made a LOT of improvement int he last few months. Operation Outreach
>> is making a HUGE impact on the federation, the Deaf-Blind is speaking
>> up for their needs, and the federation family as a whole is beginning
>> to accept the Deaf-Blind. Yes, it takes time (and a lot of hard
>> work), but we are getting there slowly but surely.
>> Please keep advocating for your needs, keep working towards the
>> goal of changing what it means to be Deaf-Blind, and keep overcoming
>> your obstacles. Together we can make a difference.
>>
>> Sincerely,
>> Tracie Inman
>> NFB Deaf-Blind Division
>> First Vice President
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> On Saturday, November 2, 2013 8:01 AM, "nfb-db-request at nfbnet.org
>> <mailto:nfb-db-request at nfbnet.org>" <nfb-db-request at nfbnet.org
>> <mailto:nfb-db-request at nfbnet.org>> wrote:
>> Send nfb-db mailing list submissions to
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>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of nfb-db digest..."
>>
>>
>> Today's Topics:
>>
>> 1. Re: nfb-db Digest, Vol 57, Issue 12 (Marsha Drenth)
>> 2. Re: nfb-db Digest, Adjusting and A Few Questions (Marsha Drenth)
>> 3. Re: un believable (Marsha Drenth)
>> 4. Re: nfb-db Digest, Adjusting and A Few Questions (Marsha Drenth)
>> 5. anyone on this list at hknc? (Gene Richburg)
>> 6. Re: anyone on this list at hknc? (Marsha Drenth)
>> 7. Re: anyone on this list at hknc? (Scott Davert)
>> 8. Re: un believable (heather albright)
>> 9. humh just wondering (heather albright)
>> 10. Re: anyone on this list at honk? (Gene Richburg)
>> 11. Re: anyone on this list at hknc? (Gene Richburg)
>> 12. Re: anyone on this list at hknc? (Patricia Hubschman)
>> 13. Re: anyone on this list at hknc? (Scott Davert)
>> 14. fm systems and flying (Sheila Leigland)
>> 15. Trying to use the computer with just a Keyboard (April Brown)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Fri, 1 Nov 2013 11:41:06 -0400
>> From: Marsha Drenth <marsha.drenth at gmail.com
>> <mailto:marsha.drenth at gmail.com>>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
>> Message-ID: <6EA06295-9C20-4487-BD4A-6D47F15CF708 at gmail.com
>> <mailto:6EA06295-9C20-4487-BD4A-6D47F15CF708 at gmail.com>>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> Janice and All,
>> I completely agree with you in this regard. Although the NFB for many
>> years had a deafblind division, still we haven't until recently been
>> accepted. Not that we are completely now, but as we have all seen,
>> that trend is changing. Its the same with the guide dog division, for
>> many years persons who use guides dogs were brushed off for their
>> choice. No longer, NAGDU has worked hard to change that thinking. We
>> as deafblind people are starting to stand up for our rights, we have
>> a long way to go but will get there. I suppose if I have anything to
>> do with it..
>>
>> I have also used the assistive listening devices at convention, two
>> years ago. We came to convention with my own batteries, with my own
>> ear buds and other related equipment that would connect it to my
>> hearing aids. In the long run it still did not work. Its incredibly
>> frustrating. Two years ago, when the ALD worked, I could hear, today
>> if I tried to use one, that would probably not be the case.
>>
>> Does anyone know anything about the ALD's used at conventions? Whose
>> are they? When were they purchased? And would there be a better
>> options now? And is this something that the deafblind division should
>> look at taking over?
>>
>> Just some thoughts...
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>> On Oct 31, 2013, at 8:25 PM, Janice Toothman
>> <janice.toothman at verizon.net <mailto:janice.toothman at verizon.net>> wrote:
>>
>> > Hi Heather I think a common problem with DB people willingness to
>> come to Conventions (apart from finances) is whether their will have
>> the accommodations they need to get the benefits of the convention.
>> It is sad that many feel they do not have adequate support (e.g. SSP,
>> alternative to listening devices) and people who are appreciative of
>> their difficulties and willing to work with them rather than brush
>> them off as a minority, who has to fend for themselves. I know that
>> not everyone is rude but their are many people who do not understand
>> our unique needs. National seems to think that they can offer
>> listening devices and expect that they will work for the DB. I
>> complained three times that I could not hear last July; they
>> exchanged the listening device-with no improvement. They said try
>> changing adjust my hearing aids but that was also unsuccessful. I
>> gave up. I really needed to listening because of the resolutions
>> that the DB Division had to have passed. It was frustrating. It
>> costs money to invest in technology that will assist the greater
>> needs of the DB rather than someone perhaps with mild hearing loss.
>> > Janice
>> > On 10/31/2013 2:28 PM, heather albright wrote:
>> >> I think I know 3 here in Austin! But the DB program in austin is
>> a joke! I wish I knew someone who could make it better! Our state
>> convention is next week, and I have not heard from any DB persons who
>> are going to be there! Heather
>> >>
>> >>
>> >> _______________________________________________
>> >> nfb-db mailing list
>> >> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> >> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> >
>> > _______________________________________________
>> > nfb-db mailing list
>> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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>> ------------------------------
>>
>> Message: 2
>> Date: Fri, 1 Nov 2013 12:12:09 -0400
>> From: Marsha Drenth <marsha.drenth at gmail.com
>> <mailto:marsha.drenth at gmail.com>>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] nfb-db Digest, Adjusting and A Few Questions
>> Message-ID: <8CBD8D05-0201-4CCD-BB4C-7FFD6BD8ABC0 at gmail.com
>> <mailto:8CBD8D05-0201-4CCD-BB4C-7FFD6BD8ABC0 at gmail.com>>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> April,
>> Doing all you can is good, keep on doing that. I understand what you
>> mean by lossing your vision. Most of the time its out of our control,
>> in which we lose first or last.
>>
>> Like others have said, keep on posting, these are all things as
>> deafblind persons need to discuss and think about..
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>> On Oct 31, 2013, at 12:18 PM, April Brown <aprilbrownwrite at gmail.com
>> <mailto:aprilbrownwrite at gmail.com>> wrote:
>>
>> > I am sorry I haven't responded. It isn't easy for me to figure out
>> how to respond easily.
>> >
>> > heather albright - That is a great idea. My regular doctor finally
>> developed an online system a year ago. The specialists don't appear
>> to have one. I think I need to request one. Though I generally get
>> blank stares when I request anything.
>> >
>> > Marsha Drenth- I've always ignored my hearing loss. As long
>> sight, that was what mattered. Now, with my sight undependeable,
>> it's not easy. One thing that often isn't covered, is denial is as
>> much about those around us, as ourselves. As a society, we're so set
>> on everyone being the same, and if you aren't, you almost don't
>> exist. It's as if people are scared to admit that someone can live
>> differently than they do. Some days, those around us deny our needs
>> to meet theirs, and it's sad. I would rather lose my hearing than my
>> eye. I think my vision will be gone first though. With all my other
>> disabilities, it's not easy. I keep going as best I can. Some days,
>> it feels as if my eye is filling in for me, even though I'm not
>> really seeing. As if that makes any sense.
>> >
>> > DELCINA M BROWN - I'm hoping to get the specialists to work through
>> emails. It would help. I will keep posting, and reading every day.
>> I don't want to ask questions that have been answered hundreds of
>> times. I still have a little time, though how much, I can't
>> guarantee. I have set a date to start seriously learning Braille
>> though, so I can eventually learn refreshable Braille.
>> >
>> > Catherine Miller- Thanks! I think I need a stronger advocate than
>> my husband. He sits there and trusts every word they say. He's been
>> in the military too long. He lets them brush it off, and disappear
>> as if that's normal. Twice now, a specialist has said what they had
>> to say, and been gone from the room before I had even figured out the
>> first sentence they said. I hear blind people complain about people
>> speaking slower and louder to them, and yet, that's often just what I
>> need to be able to comprehend people, especially males with low
>> voices. He says I don't respond fast enough. And yet, I can't
>> respond till I fully hear it. Listening to most people talk is like
>> listening to a VHS tape played at double speed. I can never catch
>> up! That's why I spend more time online. I can think, process, and
>> then reply.
>> >
>> > I do not look forward to the day I have to learn how to use only
>> keyboard commands to use a computer. As often as weird things show
>> up as I type now, that will be a disaster. I will have to keep
>> writing and publishing though.
>> >
>> > Thanks,
>> >
>> >
>> >
>> >
>> >
>> > April Brown
>> >
>> > Writing dramatic adventure novels uncovering the myths we hide behind.
>> >
>> >
>> >
>> >
>> > This email is free from viruses and malware because avast!
>> Antivirus protection is active.
>> >
>> >
>> > _______________________________________________
>> > nfb-db mailing list
>> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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>> ------------------------------
>>
>> Message: 3
>> Date: Fri, 1 Nov 2013 12:16:04 -0400
>> From: Marsha Drenth <marsha.drenth at gmail.com
>> <mailto:marsha.drenth at gmail.com>>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] un believable
>> Message-ID: <50D271A0-F414-44E0-B389-67A4CECC7D26 at gmail.com
>> <mailto:50D271A0-F414-44E0-B389-67A4CECC7D26 at gmail.com>>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> I've never heard of a deafblind program in Dallas, but I haven't
>> lived their for a few years. Again this might be something for NAD.
>> Do you have an update?
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>> On Oct 30, 2013, at 5:44 PM, "heather albright" <kd5cbl at gmail.com
>> <mailto:kd5cbl at gmail.com>> wrote:
>>
>> > I finally have contact with the fokes who know the individual and I
>> told them I would ask on this list, is there a DB program in Dallas?
>> There trying to find him a place to live and I don't know yet weather
>> or not he is out of the nursing home! I suspect, they cant get him
>> released till he has a place to stay! That is all I know for now!
>> Heather
>> > _______________________________________________
>> > nfb-db mailing list
>> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
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>> ------------------------------
>>
>> Message: 4
>> Date: Fri, 1 Nov 2013 12:29:09 -0400
>> From: Marsha Drenth <marsha.drenth at gmail.com
>> <mailto:marsha.drenth at gmail.com>>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] nfb-db Digest, Adjusting and A Few Questions
>> Message-ID: <31A578D8-F9B5-46F8-AB20-682239358A0F at gmail.com
>> <mailto:31A578D8-F9B5-46F8-AB20-682239358A0F at gmail.com>>
>> Content-Type: text/plain; charset=us-ascii
>>
>> Cathy,
>> Thanks for the backing. I like to think that some of my social work
>> classes are soaking in. LOL
>>
>>
>>
>> I am interested in hearing more about the total immersion program you
>> attended to learn ASL. Where was this program? How long were you
>> there? Any details you would like to share, would be interesting.
>>
>> Thanks,
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>> On Oct 31, 2013, at 10:37 AM, Catherine Miller <guillcat at gmail.com
>> <mailto:guillcat at gmail.com>> wrote:
>>
>> > Doctors' staff are busy, and if they don't truly undeerstand what
>> you need, they will brushhhhh you off. They are accustomed to
>> knowing everything health-wise, but it will be up to you to teachh
>> them about deaf-blindness. this is a tall order given your weakened
>> emotionaal state brought on by the stresses of accepting the
>> tremendous changes demanded by your senses during this time. An idea
>> might be to send a letter explaining what your needs will be, making
>> sure your dooctor reads it before your scheduled appointment.
>> >
>> > Congratulations on your decision to learn braille. I'm sure you
>> knoow that it will open many new avenues of communication to you. It
>> can be an arduous process, but try to read, learn, and practice
>> everry single day to hasten the process. It will bring many rewards.
>> >
>> > I attended a total immersion program to learn ASL. All my teachers
>> were Deaf.. Based on their prior experience, they urged me to learn
>> the signs first, and to use tactile methods after I learned the
>> signs. April, this waas a profound waste of time for three months of
>> my life. I felt so stupiddbecause I could not follow the signs.
>> They ddid not seem to realize I could see only movement. Finally I
>> switched to tactile reception, and my learning rate became airborne.
>> I had been standing on my head to see the signs, when all Ireally
>> needed was a light touch of the fingers to assist my residual
>> vision. Today I have lost more vision and mut rely totally on
>> tactile; but my message is that no one knows better than you what you
>> can and cannot see or hear.
>> >
>> > Finally, I want to address Marsha's disclaimer. I am a trained
>> counselor, and everything she said is accu April: First I
>> want to comment on your need to coommunicate optimally with your
>> doctors. I urge you to embark on a new paradigm based in the
>> assurance that you are totally within your rights to demand andd
>> expect that your health care proffessionals are obligated to provide
>> the form of communication that accommodates your individual needs.
>> Visit your doctors with an advocate until you are strong enough to do
>> it alone. Your advocate can be a good friend, a family member, or
>> someone who understandds what your needs are, as long as it's someone
>> you believe can stand behind you and not back down
>> >
>> > I'm sorry, but my software needs updating. It has switcheed the
>> position of the first and last part of this email, and if I try to
>> repair it, this email won't get sent. Know that we care, and that we
>> are very glad you have found us here. We gain strength from your
>> experience, April.. We hope you will continue to share with us.
>> >
>> > Cathy Miller.
>> >
>> > Sent from my iPad
>> >
>> >> On Oct 30, 2013, at 7:00 AM, nfb-db-request at nfbnet.org
>> <mailto:nfb-db-request at nfbnet.org> wrote:
>> >>
>> >> Send nfb-db mailing list submissions to
>> >> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> >>
>> >> To subscribe or unsubscribe via the World Wide Web, visit
>> >> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> >> or, via email, send a message with subject or body 'help' to
>> >> nfb-db-request at nfbnet.org <mailto:nfb-db-request at nfbnet.org>
>> >>
>> >> You can reach the person managing the list at
>> >> nfb-db-owner at nfbnet.org <mailto:nfb-db-owner at nfbnet.org>
>> >>
>> >> When replying, please edit your Subject line so it is more specific
>> >> than "Re: Contents of nfb-db digest..."
>> >>
>> >>
>> >> Today's Topics:
>> >>
>> >> 1. Re: montana convention (Marsha Drenth)
>> >> 2. Re: Adjusting, and a few questions (Marsha Drenth)
>> >> 3. Re: montana convention (maurice mines)
>> >> 4. Re: nfb-db Digest, Vol 57, Issue 12 (DELCINA M BROWN)
>> >> 5. Re: Adjusting, and a few questions (DELCINA M BROWN)
>> >> 6. Re: nfb-db Digest, Vol 57, Issue 12 (Sheila Leigland)
>> >> 7. Re: Adjusting, and a few questions (DELCINA M BROWN)
>> >> 8. Re: Adjusting, and a few questions (MemberService)
>> >> 9. un believable (heather albright)
>> >> 10. Re: nfb-db Digest, Vol 57, Issue 12 (DELCINA M BROWN)
>> >> 11. unbelievable (Janice Toothman)
>> >>
>> >>
>> >> ----------------------------------------------------------------------
>> >>
>> >> Message: 1
>> >> Date: Tue, 29 Oct 2013 16:22:05 -0400
>> >> From: Marsha Drenth <marsha.drenth at gmail.com
>> <mailto:marsha.drenth at gmail.com>>
>> >> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> >> Subject: Re: [nfb-db] montana convention
>> >> Message-ID: <A10D0778-4FA7-4972-B92E-CF5258689BBE at gmail.com
>> <mailto:A10D0778-4FA7-4972-B92E-CF5258689BBE at gmail.com>>
>> >> Content-Type: text/plain; charset=us-ascii
>> >>
>> >> Sheila,
>> >> Congradulations on the new board position. I am happy to hear that
>> the ICC presentation went well. But sorry to hear that you didn't get
>> to formally gather a commiitee or division. It will all come in due
>> time. Your on the right track though.
>> >>
>> >> This brings up another very good point, how many deafblind persons
>> are on state boards? This would be an interesting fact to know. Have
>> deafblind persons been excluded from the boards? I would hope not
>> intentionally. And if we as deafblind persons can get on the state
>> boards of affiliate would this increase our efforts. Of course I am
>> not suggesting this just so we can increase the deafblind issues, but
>> in general. Anyone who is elected to a board, must have the greater
>> state affiliate in mind.
>> >>
>> >> Marsha drenth
>> >> Sent with my IPhone
>> >>
>> >>> On Oct 29, 2013, at 2:18 PM, Sheila Leigland
>> <sleigland at bresnan.net <mailto:sleigland at bresnan.net>> wrote:
>> >>>
>> >>> Hi a gentleman from I can connect spoke via skype at our state
>> convention and the presentation was excellent. I have also been
>> elected to the board and am second vice president so I'm hoping to
>> influence and encourage positive feedback in our state concerning
>> deaf blind issues.I didn't get to speak about forming a committee
>> about these issues but hope to be able to bring this before the board
>> sometime in the near distant future.
>> >>>
>> >>> _______________________________________________
>> >>> nfb-db mailing list
>> >>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> >>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> >>
>> >>
>> >>
>> >> ------------------------------
>> >>
>> >> Message: 2
>> >> Date: Tue, 29 Oct 2013 16:40:20 -0400
>> >> From: Marsha Drenth <marsha.drenth at gmail.com
>> <mailto:marsha.drenth at gmail.com>>
>> >> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> >> Subject: Re: [nfb-db] Adjusting, and a few questions
>> >> Message-ID: <C57D6EB0-F39B-4D88-8EA4-A0FBF119E529 at gmail.com
>> <mailto:C57D6EB0-F39B-4D88-8EA4-A0FBF119E529 at gmail.com>>
>> >> Content-Type: text/plain; charset="us-ascii"
>> >>
>> >> April,
>> >> I don't have an answer for the doctor forms part of your post. I
>> do want to responde to your post about your denial of your hearing
>> and vision loss.
>> >> The loss of any sense can be hard, some of us deal with it in
>> different ways. When a person deals with the loss of two senses, it
>> is doubly hard. Its a griving process, and denial is one of those
>> stages.
>> >> In my experience, taking action, getting involved, meeting others,
>> learning, helps the process along. The reason I say this is, again in
>> my experience, over the last two years I have lost 80percent of my
>> hearing. I was blind all of my life. I swing back and forth from
>> being absolutely frustrated to sad to acceptance. Getting involved,
>> learning new skills, talking to others, asking questions, taking
>> action, all give your mind, body and soul something else to work on.
>> And even if that means one or two days you have to force the issue,
>> of just getting out of bed, or getting out of the house, or making a
>> call, or learning a new skill. Of course a counselor who is trained
>> in mental health and the adjustment of disability, can also help.
>> >> Your not the only onw in denial, in lossing your vision or your
>> hearing. I know many other deafblind persons who struggle with this
>> on a daily basis, some shut themselves into a house, others do
>> something about, and then a majority of us, are some where in the
>> middle.
>> >> I wish I had some great words of wisdom, its a one day at time thing.
>> >> I am sure if you keeping on posting about this, you will find that
>> your not alone. Which can help that denial too.
>> >>
>> >> Here is my disclaimer, I am not a counselor, but a social worker.
>> So my advice above is not official.
>> >>
>> >>
>> >>
>> >> Marsha drenth
>> >> Sent with my IPhone
>> >>
>> >>> On Oct 29, 2013, at 3:23 PM, April Brown
>> <aprilbrownwrite at gmail.com <mailto:aprilbrownwrite at gmail.com>> wrote:
>> >>>
>> >>> Hello,
>> >>>
>> >>> Until a year ago, I mostly ignored my low hearing. I've worn a
>> hearing aid for years. A year ago, my vision suddenly failed
>> drastically. Obviously, it was never good to begin with either, and
>> I never did learn to read lips. I still don't have an official
>> diagnosis or prognosis.
>> >>>
>> >>> Both of these issues have caused me issues in the past. Even
>> as my vision fails, and my eye hurts constantly, I still comprehend
>> better by seeing and reading. I intend to learn Braille in January.
>> (Novemeber is a busy month for writers, and December is busy with in
>> laws).
>> >>>
>> >>> Many, many years ago, in college, I attempted to take a sign
>> language course. I didn't learn a thing. All I ever saw was
>> motion, and nothing that made sense. At the time, I blamed it on the
>> stress of my life. Now, I'm not so sure it was just stress.
>> Still, I wish I had learned!
>> >>>
>> >>> In the meantime, and in the future, how do I convince doctors,
>> and other professionals, that an email is better than trying to
>> comprehend a phone conversation?
>> >>>
>> >>> To go along with another thread or two, a few times I asked for
>> help on a blind list I had the "I can call you and talk you though
>> it" response. Which is great, except, I don't really comprehend
>> well on the phone, even from people I know. Especially if there is
>> any background sound. I do appreciate the sentiment.
>> >>>
>> >>> I'm still very new in this situation, and yes, I'm partially
>> still in denial, I'm sure.
>> >>>
>> >>> Thanks,
>> >>>
>> >>> April Brown
>> >>>
>> >>>
>> >>> _______________________________________________
>> >>> nfb-db mailing list
>> >>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> >>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> >> -------------- next part --------------
>> >> An HTML attachment was scrubbed...
>> >> URL:
>> <http://nfbnet.org/pipermail/nfb-db_nfbnet.org/attachments/20131029/05847988/attachment-0001.html>
>> >>
>> >> ------------------------------
>> >>
>> >> Message: 3
>> >> Date: Tue, 29 Oct 2013 14:10:24 -0700
>> >> From: maurice mines <kd0iko at icloud.com <mailto:kd0iko at icloud.com>>
>> >> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> >> Subject: Re: [nfb-db] montana convention
>> >> Message-ID: <2194663A-3DCE-4D37-A143-85D514B81EA8 at icloud.com
>> <mailto:2194663A-3DCE-4D37-A143-85D514B81EA8 at icloud.com>>
>> >> Content-Type: text/plain; charset=us-ascii
>> >>
>> >> Graduations. Hope everything goes well for you in the future.
>> >>
>> >>
>> >> Sincerely Maurice Mines. Phone 360-524-0791. Work/school email,
>> maurice.mines at pcc.edu. <mailto:maurice.mines at pcc.edu.>
>> >>> On Oct 29, 2013, at 11:18 AM, Sheila Leigland
>> <sleigland at bresnan.net <mailto:sleigland at bresnan.net>> wrote:
>> >>>
>> >>> Hi a gentleman from I can connect spoke via skype at our state
>> convention and the presentation was excellent. I have also been
>> elected to the board and am second vice president so I'm hoping to
>> influence and encourage positive feedback in our state concerning
>> deaf blind issues.I didn't get to speak about forming a committee
>> about these issues but hope to be able to bring this before the board
>> sometime in the near distant future.
>> >>>
>> >>> _______________________________________________
>> >>> nfb-db mailing list
>> >>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> >>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> >>
>> >>
>> >>
>> >>
>> >> ------------------------------
>> >>
>> >> Message: 4
>> >> Date: Tue, 29 Oct 2013 21:57:04 -0400
>> >> From: "DELCINA M BROWN" <delcenia at prodigy.net
>> <mailto:delcenia at prodigy.net>>
>> >> To: "Tracie Inman" <tracieinman at yahoo.com
>> <mailto:tracieinman at yahoo.com>>, "NFB Deaf-Blind Division
>> >> Mailing List" <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>>
>> >> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
>> >> Message-ID: <BF7663D5797C4F738B20EA261C31AE88 at johne38069127c
>> <mailto:BF7663D5797C4F738B20EA261C31AE88 at johne38069127c>>
>> >> Content-Type: text/plain; charset="utf-8"
>> >>
>> >> First, let me introduce my self. My name is Delcenia Brown and I
>> am a member of the National Federation of the blind of Cleveland,
>> Ohio. I am new to this mailing list. Therefore alot of you I do not
>> know and alot of abbreviation I do not know. It will be nice if
>> sometimes some of you would spell out what you are talking about and
>> it would be nice to know what state you are in.
>> >>
>> >> ?
>> >>
>> >> Tracy, I understand and appreciate what you are saying, your
>> identity does not change because of your situation or how you handle
>> certain settings. Taking advantage of what you have left is
>> understandable. I am greatful for what little hearing and vision I
>> have left. I also take advantage of that by reading with a CCTV when
>> I can and using a fm system or pocket talker at the appropriate time.
>> >>
>> >> ?
>> >>
>> >> At the same time I wish someone had taken the time to teach me
>> braille, sign language when I was younger. Now as I grow older and
>> have other obstacles it is a struggle to learn braille. I still have
>> no one to teach me sign language. So, yes, reminding Randy, that
>> there are some deafblind that are hard of hearing and do not sign was
>> a gentle response.
>> >>
>> >> ?
>> >>
>> >> Just recently, I have posted a notice asking if anyone in my state
>> share my interests and got no response. However my state president
>> does share my interest and I believe at the state convention which is
>> to be held November 1 thru 3, 2013, the agenda does include
>> information about the I can connect program.
>> >>
>> >> ?
>> >>
>> >> Now, the downside of things. I have completed my application and
>> it was approved. I have had my assessment and I believe all of the
>> equipment has been ordered based on messages that I have received.
>> However, I still have not actually recieve anything as of today. This
>> process started back in March or April. I am grateful for the
>> possibility of obtaining the equipment, it is frustrating that it has
>> taken so long and no one is returning my call.
>> >>
>> >>
>> >>
>> >> I gladly get on board!
>> >>
>> >> Delcenia
>> >>
>> >>
>> >>
>> >> ----- Original Message -----
>> >> From: Tracie Inman
>> >> To: nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> >> Sent: Tuesday, October 29, 2013 9:06 AM
>> >> Subject: Re: [nfb-db] nfb-db Digest, Vol 57, Issue 12
>> >>
>> >>
>> >>
>> >>
>> >> Hi Randy: I hope you're doing well and AADB is growing stronger
>> under your leadership. I wish you all the best always. Just a
>> gentle reminder my friend that many many Deaf - Blind are hard of
>> hearing (non sign speaking) blind folks. Randy, indeed since getting
>> the two C.I.'s I'm guilty of using voice, Assisted listening devices
>> and voice interpreters as opposed to using my signing, using
>> interpreters, etc. I have switched to English. My excuses has been
>> that my vision is going "bye bye" and depending on tactile scares
>> me. In time, that may be my only option but for now I'm surrounded
>> by hearing family and friends so I've gotten into a "comfort zone"
>> with the success of my C.I.'s. What I'm trying to say here is,
>> remember that, just because you might not observe the folks signing
>> doesn't mean they're not Deaf-blind.
>> >> All the folks in the NFB Deaf-Blind division who are promoting
>> ICC are Deaf-Blind. In fact, every one assigned to Operation
>> Outreach (our outreach project to raise awareness of the ICC and the
>> Deaf-Blind community requesting ALL 50 affiliates and the D.C.
>> affiliate to form committees for the Deaf-Blind in their individual
>> committee) - including our mutual friend Marsha drenth are Deaf-Blind.
>> >> Speaking of, hey Scott if you want to help please contact me or
>> Joe Naulty. We could always use more helping hands. We got two
>> projects going on at the moment and probably will start a third. You
>> know about Operation Outreach. We've also started a committee on SSP
>> issues. If you want to help us, we can always use another helping
>> hand. I do believe the Deaf-Blind division is working harder than it
>> ever has before. I dare to say that we've accomplished more in the
>> last few months than we have in many years. The latest announcement
>> we heard was that Scott Labarre (affiliate President of Colorado and
>> a National NFB Board Member) has agreed to set up a Deaf-Blind Issues
>> committee in the Colorado affiliate. We also heard that the
>> President of the Alaska affiliate is Deaf-Blind. So climb abaord the
>> NFB DB Express and lets get chugging along on this exciting adventure
>> raising awareness of Deaf-Blind issues, ICC, and the need for SSP's.
>> All are welcome aboard.
>> >>
>> >>
>> >> Best Wishes,
>> >> Tracie Inman
>> >> NFB Deaf-Blind Division
>> >> First Vice President
>> >> tracieinman at yahoo.com <mailto:tracieinman at yahoo.com>
>> >>
>> >>
>> >>
>> >>
>> >>
>> >>
>> >>
>> >>
>> >>
>> >>
>> >> On Tuesday, October 29, 2013 8:08 AM, "nfb-db-request at nfbnet.org
>> <mailto:nfb-db-request at nfbnet.org>" <nfb-db-request at nfbnet.org
>> <mailto:nfb-db-request at nfbnet.org>> wrote:
>> >>
>> >> Send nfb-db mailing list submissions to
>> >> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> >>
>> >> To subscribe or unsubscribe via th
>>
>>
>>
>> ------------------------------
>>
>> Message: 5
>> Date: Fri, 1 Nov 2013 12:03:24 -0500
>> From: "Gene Richburg" <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>>
>> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: [nfb-db] anyone on this list at hknc?
>> Message-ID: <2DB0B2A56BC84901A8727E672F23B63D at genePC
>> <mailto:2DB0B2A56BC84901A8727E672F23B63D at genePC>>
>> Content-Type: text/plain; charset="utf-8"
>>
>> Hi, I heard that there are people on this list who are at HKNC, I
>> would like to know if anyone knows how there system works in regards
>> to getting hearing aids? I hear that they have an awesome
>> audiologist, and they would be able to get the right technologys
>> together that will allow me to hear in any environment. Now, my
>> hearing loss is severe to profound, I have a very severe to profound
>> loss in my left ear, with 25% hearing, then I believe in my right
>> ear, it?s just very severe, with only 15% hearing left in that ear.
>> What I?m wanting to know, is how the process works, will they let me
>> try aids out before Dars makes a commitment? I am supposed to be
>> going to HKNC at some point, I just have to get my I e p plan
>> developed through Dars, then I gotta get this New york state medical
>> evaluation form done, and do what ever that requires, and all that,
>> I?ll get there some day hopefully soon though, and I can?t wait,
>> cause like Heather said, this db program here in austin tx sucks.
>> For example, they have made so many promices about what they were
>> gonna help me with, then broke them. Last year, I took a business
>> class, and they took notes for me, and they said that when the
>> training was in the halfway period, they would go over the notes, and
>> make sure I understood them, then when the classes wer all finished,
>> we would go over all the notes, well they decided that they didn?t
>> wanna do that, then after it was all over with, then they told me
>> that they couldn?t help me run the business, and I said, I know you
>> can?t help me do that, but you can at leaste help me get the training
>> and everything I needed to get started, and they just kept repeating
>> them selves, so I just told them screw it for now, then I got an
>> opportunity to go to HKNC, and I?m taking it, cause I want enough
>> indipendents to not have to depend on the db program for anything.
>> If anyone wants to hear of anything else the db program didn?t do,
>> I?ll tell you, I just don?t wanna go on and on unless people wanna
>> hear about it Lol.
>> -------------- next part --------------
>> An HTML attachment was scrubbed...
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>> ------------------------------
>>
>> Message: 6
>> Date: Fri, 1 Nov 2013 13:24:03 -0400
>> From: Marsha Drenth <marsha.drenth at gmail.com
>> <mailto:marsha.drenth at gmail.com>>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>> Message-ID: <0E00189B-4739-4D86-9AB5-77B1AB1C47A5 at gmail.com
>> <mailto:0E00189B-4739-4D86-9AB5-77B1AB1C47A5 at gmail.com>>
>> Content-Type: text/plain; charset="utf-8"
>>
>> Gene,
>> I am not yet at HKNC but will be starting my training in 11days. I
>> took a tour first before deciding to do the training. If you can that
>> would be useful for you to see. DARS should pay for the tour.
>> Yes the audiologist is great. What I know is that they will fit you
>> for aids, you try them out. If they do not work, then on to another
>> brand or type. If you go out and need tweeking of something with your
>> aids, then the audi will do so. I have even heard that if needed, the
>> audi will go out to different places to help with the hearing aid
>> equipment fitting and tweeking.
>> When I was looking into going to HKNC, I talked to several people to
>> see what their experience was. I found a few bad experiences, but
>> mostly I found good ones.
>> I have heard that people get frustrated with the long process of
>> fitting and tweeking aids, but its well worth it.
>> Its awesome that you have goals, keep at DARS.
>> Getting into HKNC takes a long time as they have a huge waiting list.
>> I know of several others who are waiting to get into too. I have been
>> waiting 3 months myself, and this is supposedly a short wait.
>>
>> If you have other questions, please do ask...
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>> On Nov 1, 2013, at 1:03 PM, "Gene Richburg" <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>> wrote:
>>
>> > Hi, I heard that there are people on this list who are at HKNC, I
>> would like to know if anyone knows how there system works in regards
>> to getting hearing aids? I hear that they have an awesome
>> audiologist, and they would be able to get the right technologys
>> together that will allow me to hear in any environment. Now, my
>> hearing loss is severe to profound, I have a very severe to profound
>> loss in my left ear, with 25% hearing, then I believe in my right
>> ear, it?s just very severe, with only 15% hearing left in that ear.
>> What I?m wanting to know, is how the process works, will they let me
>> try aids out before Dars makes a commitment? I am supposed to be
>> going to HKNC at some point, I just have to get my I e p plan
>> developed through Dars, then I gotta get this New york state medical
>> evaluation form done, and do what ever that requires, and all that,
>> I?ll get there some day hopefully soon though, and I can?t wait,
>> cause like Heather said, this db program here in austin tx sucks.
>> For example, they have made so many promices about what they were
>> gonna help me with, then broke them. Last year, I took a business
>> class, and they took notes for me, and they said that when the
>> training was in the halfway period, they would go over the notes, and
>> make sure I understood them, then when the classes wer all finished,
>> we would go over all the notes, well they decided that they didn?t
>> wanna do that, then after it was all over with, then they told me
>> that they couldn?t help me run the business, and I said, I know you
>> can?t help me do that, but you can at leaste help me get the training
>> and everything I needed to get started, and they just kept repeating
>> them selves, so I just told them screw it for now, then I got an
>> opportunity to go to HKNC, and I?m taking it, cause I want enough
>> indipendents to not have to depend on the db program for anything.
>> If anyone wants to hear of anything else the db program didn?t do,
>> I?ll tell you, I just don?t wanna go on and on unless people wanna
>> hear about it Lol.
>> > _______________________________________________
>> > nfb-db mailing list
>> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> -------------- next part --------------
>> An HTML attachment was scrubbed...
>> URL:
>> <http://nfbnet.org/pipermail/nfb-db_nfbnet.org/attachments/20131101/6ff39cb7/attachment-0001.html>
>>
>> ------------------------------
>>
>> Message: 7
>> Date: Fri, 1 Nov 2013 13:31:42 -0400
>> From: Scott Davert <scottdavert at gmail.com <mailto:scottdavert at gmail.com>>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>> Message-ID:
>> <CAOHXxEaVwUtuCChpEMBYqEr_2dpZ=e0SNVb-AHiCbLQDhBFXyg at mail.gmail.com
>> <mailto:e0SNVb-AHiCbLQDhBFXyg at mail.gmail.com>>
>> Content-Type: text/plain; charset=windows-1252
>>
>> Hi Gene.
>> I currently work at HKNC. Carol is an awesome audiologist, she is the
>> one who set me up with the hearing aids I currently use. I cannot say
>> for certain, as I'm sure you are aware, how much hearing aids will
>> help you, it's a personal thing where your experience may vary. Also,
>> hearing aids will not allow you, for example, to hear in loud
>> environments under most circumstances. Yes, you can try a pair out for
>> a couple of weeks to see if you like it. However, once you've decided
>> on a pair, HKNC cannot provide you with funding to get them. That
>> would fall back onto Dars, who would hopefully be inclined to include
>> that as an amendment on your IPE. Do you have contact with C C davis?
>> I assume all this work is being done with him? And so you are aware, I
>> do work at HKNC, but don't post messages here in the capacity of
>> someone working here. I'm my own person, and tell people both the
>> positive and negative aspects of things here as I see them. I was a
>> student here in 2006.
>>
>> Hope this helps,
>> Scott
>> Sent from my iPhone
>>
>> On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>> wrote:
>> > Hi, I heard that there are people on this list who are at HKNC, I
>> would like
>> > to know if anyone knows how there system works in regards to
>> getting hearing
>> > aids? I hear that they have an awesome audiologist, and they would
>> be able
>> > to get the right technologys together that will allow me to hear in any
>> > environment. Now, my hearing loss is severe to profound, I have a very
>> > severe to profound loss in my left ear, with 25% hearing, then I
>> believe in
>> > my right ear, it?s just very severe, with only 15% hearing left in
>> that ear.
>> > What I?m wanting to know, is how the process works, will they let
>> me try
>> > aids out before Dars makes a commitment? I am supposed to be going
>> to HKNC
>> > at some point, I just have to get my I e p plan developed through
>> Dars,
>> > then I gotta get this New york state medical evaluation form done,
>> and do
>> > what ever that requires, and all that, I?ll get there some day
>> hopefully
>> > soon though, and I can?t wait, cause like Heather said, this db
>> program here
>> > in austin tx sucks. For example, they have made so many promices
>> about what
>> > they were gonna help me with, then broke them. Last year, I took a
>> business
>> > class, and they took notes for me, and they said that when the
>> training was
>> > in the halfway period, they would go over the notes, and make sure I
>> > understood them, then when the classes wer all finished, we would
>> go over
>> > all the notes, well they decided that they didn?t wanna do that,
>> then after
>> > it was all over with, then they told me that they couldn?t help me
>> run the
>> > business, and I said, I know you can?t help me do that, but you can at
>> > leaste help me get the training and everything I needed to get
>> started, and
>> > they just kept repeating them selves, so I just told them screw it
>> for now,
>> > then I got an opportunity to go to HKNC, and I?m taking it, cause I
>> want
>> > enough indipendents to not have to depend on the db program for
>> anything.
>> > If anyone wants to hear of anything else the db program didn?t do,
>> I?ll tell
>> > you, I just don?t wanna go on and on unless people wanna hear about
>> it Lol.
>>
>>
>>
>> ------------------------------
>>
>> Message: 8
>> Date: Fri, 1 Nov 2013 12:44:37 -0500
>> From: "heather albright" <kd5cbl at gmail.com <mailto:kd5cbl at gmail.com>>
>> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] un believable
>> Message-ID: <DA5AC61CD38A41AA95DEE8F52E51C163 at supersystem
>> <mailto:DA5AC61CD38A41AA95DEE8F52E51C163 at supersystem>>
>> Content-Type: text/plain; charset="iso-8859-1"
>>
>> Yes, the only update is that he is still in the nursing home because, he
>> does not have a place to go that the court deems safe! I think I was
>> brushed off by the NFB of Texas, preparing for the convention was more
>> important than helping someone gain freedom out an isolating place!
>> National has not called back, like they said they would do by today!
>> I did
>> not say drop everything, they could at least look in to it here in
>> Texas!
>> But I am the only one trying to look in to this. I sure do miss
>> tommie's
>> leadership when this type of stuff comes out! Someone suggest to
>> contact
>> NAD do they have the dallas contact to this organization because I
>> live in
>> Austin. I posted it on facebook on my wall and to a deaf
>> organization, no
>> responses at all! I don't know if it is because he is also blind or
>> they
>> cant do anything about it! Heather
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>> ------------------------------
>>
>> Message: 9
>> Date: Fri, 1 Nov 2013 13:00:54 -0500
>> From: "heather albright" <kd5cbl at gmail.com <mailto:kd5cbl at gmail.com>>
>> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: [nfb-db] humh just wondering
>> Message-ID: <BACD6C69E0DD4047AE5DD2FE46E62D54 at supersystem
>> <mailto:BACD6C69E0DD4047AE5DD2FE46E62D54 at supersystem>>
>> Content-Type: text/plain; charset="windows-1252"
>>
>> Has anyone thought about a how to video for signing. They can have
>> audio to
>> tell you how to make the signs. Like at HKC! Heather
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>> ------------------------------
>>
>> Message: 10
>> Date: Fri, 1 Nov 2013 13:10:27 -0500
>> From: "Gene Richburg" <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>>
>> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] anyone on this list at honk?
>> Message-ID: <CFFA93EE23A149A89D52D1C73DA0D4A7 at genePC
>> <mailto:CFFA93EE23A149A89D52D1C73DA0D4A7 at genePC>>
>> Content-Type: text/plain; charset="utf-8"
>>
>> Hi Marsha, yeah, oh don?t I ever know what a time consuming pain it
>> can be tweaking aids, I?ve struggled for the last 3 years trying new
>> aids only to be disappointed, I?m sure others on this list have
>> experienced new aids where they sound like they are turning
>> everything down, then, when some one talks to you they purp up just
>> to let you either miss the first few words they?ve said, or you get
>> the very last part of what was said. As far as I know, all new aids
>> do this, it?s a way, in my opinion for the companies to show off
>> there fancy, and deaf blind people are not the only ones that are
>> frustrated with new aids either. According to this therapist I saw,
>> she said that even sighted people are frustrated, so that tells me,
>> that just because all the hearing specialists, and audiologists say
>> that most people prefer the aids to cut down all the noise in there
>> environment is obviously not entirely true. I can?t even begin to
>> tell you how many times I?ve had to go back for adjustments to some
>> Siemens aids I have, I can?t even use them, because there no longer
>> strong enough for my loss, I?ve had to go back to my resound aids
>> from 2006, and I?m concerned that they might not hold up until I can
>> get them replaced, the multi directional microphone in the right one
>> has gone out, and the feedback calibration feature is failing, so now
>> I can?t put the phone up to my ear with out them squealing, and I
>> can?t hear on a cell phone, so I just use the speaker on my landline
>> cordless phone for now, and aye know, people who talk to people like
>> us that have to use the speaker phone just have to except that.
>>
>> From: Marsha Drenth
>> Sent: Friday, November 01, 2013 12:24 PM
>> To: NFB Deaf-Blind Division Mailing List
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>>
>> Gene,
>> I am not yet at HKNC but will be starting my training in 11days. I
>> took a tour first before deciding to do the training. If you can that
>> would be useful for you to see. DARS should pay for the tour.
>> Yes the audiologist is great. What I know is that they will fit you
>> for aids, you try them out. If they do not work, then on to another
>> brand or type. If you go out and need tweeking of something with your
>> aids, then the audi will do so. I have even heard that if needed, the
>> audi will go out to different places to help with the hearing aid
>> equipment fitting and tweeking.
>> When I was looking into going to HKNC, I talked to several people to
>> see what their experience was. I found a few bad experiences, but
>> mostly I found good ones.
>> I have heard that people get frustrated with the long process of
>> fitting and tweeking aids, but its well worth it.
>> Its awesome that you have goals, keep at DARS.
>> Getting into HKNC takes a long time as they have a huge waiting list.
>> I know of several others who are waiting to get into too. I have been
>> waiting 3 months myself, and this is supposedly a short wait.
>>
>> If you have other questions, please do ask...
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>> On Nov 1, 2013, at 1:03 PM, "Gene Richburg" <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>> wrote:
>>
>>
>> Hi, I heard that there are people on this list who are at HKNC, I
>> would like to know if anyone knows how there system works in regards
>> to getting hearing aids? I hear that they have an awesome
>> audiologist, and they would be able to get the right technologys
>> together that will allow me to hear in any environment. Now, my
>> hearing loss is severe to profound, I have a very severe to profound
>> loss in my left ear, with 25% hearing, then I believe in my right
>> ear, it?s just very severe, with only 15% hearing left in that ear.
>> What I?m wanting to know, is how the process works, will they let me
>> try aids out before Dars makes a commitment? I am supposed to be
>> going to HKNC at some point, I just have to get my I e p plan
>> developed through Dars, then I gotta get this New york state medical
>> evaluation form done, and do what ever that requires, and all that,
>> I?ll get there some day hopefully soon though, and I can?t wait,
>> cause like Heather said, this db program here in austin tx sucks.
>> For example, they have made so many promices about what they were
>> gonna help me with, then broke them. Last year, I took a business
>> class, and they took notes for me, and they said that when the
>> training was in the halfway period, they would go over the notes, and
>> make sure I understood them, then when the classes wer all finished,
>> we would go over all the notes, well they decided that they didn?t
>> wanna do that, then after it was all over with, then they told me
>> that they couldn?t help me run the business, and I said, I know you
>> can?t help me do that, but you can at leaste help me get the training
>> and everything I needed to get started, and they just kept repeating
>> them selves, so I just told them screw it for now, then I got an
>> opportunity to go to HKNC, and I?m taking it, cause I want enough
>> indipendents to not have to depend on the db program for anything.
>> If anyone wants to hear of anything else the db program didn?t do,
>> I?ll tell you, I just don?t wanna go on and on unless people wanna
>> hear about it Lol.
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>>
>> --------------------------------------------------------------------------------
>> _______________________________________________
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>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>>
>> --------------------------------------------------------------------------------
>>
>> No virus found in this message.
>> Checked by AVG - www.avg.com <http://www.avg.com>
>> Version: 2014.0.4158 / Virus Database: 3615/6799 - Release Date: 11/01/13
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>> ------------------------------
>>
>> Message: 11
>> Date: Fri, 1 Nov 2013 13:18:34 -0500
>> From: "Gene Richburg" <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>>
>> To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>> Message-ID: <D0010A580FEA48D1BF89EBFE246CB00C at genePC
>> <mailto:D0010A580FEA48D1BF89EBFE246CB00C at genePC>>
>> Content-Type: text/plain; format=flowed; charset="Windows-1252";
>> reply-type=original
>>
>> Hi Scott, no, actually I'm working with Christine Chan, she is my
>> dars case
>> manager, she has a lot of experience under her belt, she use to work
>> with
>> the deaf consumers back when we had the texas rehave connition, trc,
>> then I
>> have Gail Ploman, who is the team leader of the db apartment program
>> that I
>> live in. Cc Davis is in Dalas, and we have 2 or 3 db specialests
>> here in
>> austin, so things are probably just about as covered as they can, if
>> ya know
>> what I mean! Yes, it is in my plan for dars to get me aids, and
>> that's one
>> of the reasons I'm coming, I'm tired of putting up with local
>> specialests
>> who want to know how to work with a db person, they just don't know
>> how, and
>> some of them don't know all the ends and outs of hearing aids. There
>> telling me that my expectations are to high, but what doesn't make
>> since, is
>> that I seem to hear better with older aids then I do with new ones,
>> like go
>> figure.
>>
>> -----Original Message-----
>> From: Scott Davert
>> Sent: Friday, November 01, 2013 12:31 PM
>> To: NFB Deaf-Blind Division Mailing List
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>>
>> Hi Gene.
>> I currently work at HKNC. Carol is an awesome audiologist, she is the
>> one who set me up with the hearing aids I currently use. I cannot say
>> for certain, as I'm sure you are aware, how much hearing aids will
>> help you, it's a personal thing where your experience may vary. Also,
>> hearing aids will not allow you, for example, to hear in loud
>> environments under most circumstances. Yes, you can try a pair out for
>> a couple of weeks to see if you like it. However, once you've decided
>> on a pair, HKNC cannot provide you with funding to get them. That
>> would fall back onto Dars, who would hopefully be inclined to include
>> that as an amendment on your IPE. Do you have contact with C C davis?
>> I assume all this work is being done with him? And so you are aware, I
>> do work at HKNC, but don't post messages here in the capacity of
>> someone working here. I'm my own person, and tell people both the
>> positive and negative aspects of things here as I see them. I was a
>> student here in 2006.
>>
>> Hope this helps,
>> Scott
>> Sent from my iPhone
>>
>> On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>> wrote:
>> > Hi, I heard that there are people on this list who are at HKNC, I
>> would
>> > like
>> > to know if anyone knows how there system works in regards to getting
>> > hearing
>> > aids? I hear that they have an awesome audiologist, and they would be
>> > able
>> > to get the right technologys together that will allow me to hear in any
>> > environment. Now, my hearing loss is severe to profound, I have a very
>> > severe to profound loss in my left ear, with 25% hearing, then I
>> believe
>> > in
>> > my right ear, it?s just very severe, with only 15% hearing left in
>> that
>> > ear.
>> > What I?m wanting to know, is how the process works, will they let
>> me try
>> > aids out before Dars makes a commitment? I am supposed to be going to
>> > HKNC
>> > at some point, I just have to get my I e p plan developed through
>> Dars,
>> > then I gotta get this New york state medical evaluation form done,
>> and do
>> > what ever that requires, and all that, I?ll get there some day
>> hopefully
>> > soon though, and I can?t wait, cause like Heather said, this db
>> program
>> > here
>> > in austin tx sucks. For example, they have made so many promices
>> about
>> > what
>> > they were gonna help me with, then broke them. Last year, I took a
>> > business
>> > class, and they took notes for me, and they said that when the
>> training
>> > was
>> > in the halfway period, they would go over the notes, and make sure I
>> > understood them, then when the classes wer all finished, we would
>> go over
>> > all the notes, well they decided that they didn?t wanna do that, then
>> > after
>> > it was all over with, then they told me that they couldn?t help me
>> run the
>> > business, and I said, I know you can?t help me do that, but you can at
>> > leaste help me get the training and everything I needed to get
>> started,
>> > and
>> > they just kept repeating them selves, so I just told them screw it for
>> > now,
>> > then I got an opportunity to go to HKNC, and I?m taking it, cause I
>> want
>> > enough indipendents to not have to depend on the db program for
>> anything.
>> > If anyone wants to hear of anything else the db program didn?t do,
>> I?ll
>> > tell
>> > you, I just don?t wanna go on and on unless people wanna hear about it
>> > Lol.
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>> -----
>> No virus found in this message.
>> Checked by AVG - www.avg.com <http://www.avg.com>
>> Version: 2014.0.4158 / Virus Database: 3615/6799 - Release Date: 11/01/13
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 12
>> Date: Fri, 01 Nov 2013 14:32:00 -0400
>> From: Patricia Hubschman <palhub at optonline.net
>> <mailto:palhub at optonline.net>>
>> To: 'NFB Deaf-Blind Division Mailing List' <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>> Message-ID: <004801ced730$a74349d0$f5c9dd70$@net>
>> Content-Type: text/plain; charset=us-ascii
>>
>> Thank you, Scott. YYou just answered my question - where you do
>> Outreach.
>> I'm not sure what that is though.
>> I'm seeing Carol H on Thursday to try a hearing aid on my non ci
>> ear. My
>> CI audi wants to balance me out.
>> I was told too that they don't help with funding, but Carol said that
>> sometimes the state will help out.
>>
>>
>> Trish
>>
>> -----Original Message-----
>> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org
>> <mailto:nfb-db-bounces at nfbnet.org>] On Behalf Of Scott Davert
>> Sent: Friday, November 01, 2013 1:32 PM
>> To: NFB Deaf-Blind Division Mailing List
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>>
>> Hi Gene.
>> I currently work at HKNC. Carol is an awesome audiologist, she is the one
>> who set me up with the hearing aids I currently use. I cannot say for
>> certain, as I'm sure you are aware, how much hearing aids will help you,
>> it's a personal thing where your experience may vary. Also, hearing aids
>> will not allow you, for example, to hear in loud environments under most
>> circumstances. Yes, you can try a pair out for a couple of weeks to
>> see if
>> you like it. However, once you've decided on a pair, HKNC cannot
>> provide you
>> with funding to get them. That would fall back onto Dars, who would
>> hopefully be inclined to include that as an amendment on your IPE. Do you
>> have contact with C C davis?
>> I assume all this work is being done with him? And so you are aware, I do
>> work at HKNC, but don't post messages here in the capacity of someone
>> working here. I'm my own person, and tell people both the positive and
>> negative aspects of things here as I see them. I was a student here
>> in 2006.
>>
>> Hope this helps,
>> Scott
>> Sent from my iPhone
>>
>> On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>> wrote:
>> > Hi, I heard that there are people on this list who are at HKNC, I
>> > would like to know if anyone knows how there system works in regards
>> > to getting hearing aids? I hear that they have an awesome
>> > audiologist, and they would be able to get the right technologys
>> > together that will allow me to hear in any environment. Now, my
>> > hearing loss is severe to profound, I have a very severe to profound
>> > loss in my left ear, with 25% hearing, then I believe in my right ear,
>> it's just very severe, with only 15% hearing left in that ear.
>> > What I'm wanting to know, is how the process works, will they let me
>> > try aids out before Dars makes a commitment? I am supposed to be
>> > going to HKNC at some point, I just have to get my I e p plan
>> > developed through Dars, then I gotta get this New york state medical
>> > evaluation form done, and do what ever that requires, and all that,
>> > I'll get there some day hopefully soon though, and I can't wait, cause
>> > like Heather said, this db program here in austin tx sucks. For
>> > example, they have made so many promices about what they were gonna
>> > help me with, then broke them. Last year, I took a business class,
>> > and they took notes for me, and they said that when the training was
>> > in the halfway period, they would go over the notes, and make sure I
>> > understood them, then when the classes wer all finished, we would go
>> > over all the notes, well they decided that they didn't wanna do that,
>> > then after it was all over with, then they told me that they couldn't
>> > help me run the business, and I said, I know you can't help me do
>> > that, but you can at leaste help me get the training and everything I
>> > needed to get started, and they just kept repeating them selves, so I
>> > just told them screw it for now, then I got an opportunity to go to
>> HKNC,
>> and I'm taking it, cause I want enough indipendents to not have to
>> depend on
>> the db program for anything.
>> > If anyone wants to hear of anything else the db program didn't do,
>> > I'll tell you, I just don't wanna go on and on unless people wanna hear
>> about it Lol.
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 13
>> Date: Fri, 1 Nov 2013 16:38:05 -0400
>> From: Scott Davert <scottdavert at gmail.com <mailto:scottdavert at gmail.com>>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org
>> <mailto:nfb-db at nfbnet.org>>
>> Subject: Re: [nfb-db] anyone on this list at hknc?
>> Message-ID: <8745D59D-79B1-4C04-B288-6E693D1E588C at gmail.com
>> <mailto:8745D59D-79B1-4C04-B288-6E693D1E588C at gmail.com>>
>> Content-Type: text/plain; charset=utf-8
>>
>> Hi Gene.
>> Actually, it makes perfect sense that you can hear better with older
>> hearing aids. The digital side of things is very different from that
>> of the older analogue side of things. Until your ears get used to
>> thesound of the digital processing, you will struggle with digital
>> hearing aids. It's interesting that your preference is also Resound.
>> I also always liked the analogue sound best, and resound is what I
>> prefer. I've tried Seamons, Phonak, and a couple of others, but they
>> just didn't do it for me. Other people sware by each of these brands,
>> but I love the Resound hearing aids.
>> I wish you theest of luck getting your paper work completed and hope
>> to meet you at some point.
>>
>> Scott
>>
>> Sent from my iPhone
>>
>> On Nov 1, 2013, at 2:18 PM, "Gene Richburg" <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>> wrote:
>>
>> > Hi Scott, no, actually I'm working with Christine Chan, she is my
>> dars case manager, she has a lot of experience under her belt, she
>> use to work with the deaf consumers back when we had the texas rehave
>> connition, trc, then I have Gail Ploman, who is the team leader of
>> the db apartment program that I live in. Cc Davis is in Dalas, and
>> we have 2 or 3 db specialests here in austin, so things are probably
>> just about as covered as they can, if ya know what I mean! Yes, it
>> is in my plan for dars to get me aids, and that's one of the reasons
>> I'm coming, I'm tired of putting up with local specialests who want
>> to know how to work with a db person, they just don't know how, and
>> some of them don't know all the ends and outs of hearing aids. There
>> telling me that my expectations are to high, but what doesn't make
>> since, is that I seem to hear better with older aids then I do with
>> new ones, like go figure.
>> >
>> > -----Original Message----- From: Scott Davert
>> > Sent: Friday, November 01, 2013 12:31 PM
>> > To: NFB Deaf-Blind Division Mailing List
>> > Subject: Re: [nfb-db] anyone on this list at hknc?
>> >
>> > Hi Gene.
>> > I currently work at HKNC. Carol is an awesome audiologist, she is the
>> > one who set me up with the hearing aids I currently use. I cannot say
>> > for certain, as I'm sure you are aware, how much hearing aids will
>> > help you, it's a personal thing where your experience may vary. Also,
>> > hearing aids will not allow you, for example, to hear in loud
>> > environments under most circumstances. Yes, you can try a pair out for
>> > a couple of weeks to see if you like it. However, once you've decided
>> > on a pair, HKNC cannot provide you with funding to get them. That
>> > would fall back onto Dars, who would hopefully be inclined to include
>> > that as an amendment on your IPE. Do you have contact with C C davis?
>> > I assume all this work is being done with him? And so you are aware, I
>> > do work at HKNC, but don't post messages here in the capacity of
>> > someone working here. I'm my own person, and tell people both the
>> > positive and negative aspects of things here as I see them. I was a
>> > student here in 2006.
>> >
>> > Hope this helps,
>> > Scott
>> > Sent from my iPhone
>> >
>> > On 11/1/13, Gene Richburg <gene5402 at austin.rr.com
>> <mailto:gene5402 at austin.rr.com>> wrote:
>> >> Hi, I heard that there are people on this list who are at HKNC, I
>> would like
>> >> to know if anyone knows how there system works in regards to
>> getting hearing
>> >> aids? I hear that they have an awesome audiologist, and they
>> would be able
>> >> to get the right technologys together that will allow me to hear
>> in any
>> >> environment. Now, my hearing loss is severe to profound, I have a
>> very
>> >> severe to profound loss in my left ear, with 25% hearing, then I
>> believe in
>> >> my right ear, it?s just very severe, with only 15% hearing left in
>> that ear.
>> >> What I?m wanting to know, is how the process works, will they let
>> me try
>> >> aids out before Dars makes a commitment? I am supposed to be
>> going to HKNC
>> >> at some point, I just have to get my I e p plan developed through
>> Dars,
>> >> then I gotta get this New york state medical evaluation form done,
>> and do
>> >> what ever that requires, and all that, I?ll get there some day
>> hopefully
>> >> soon though, and I can?t wait, cause like Heather said, this db
>> program here
>> >> in austin tx sucks. For example, they have made so many promices
>> about what
>> >> they were gonna help me with, then broke them. Last year, I took
>> a business
>> >> class, and they took notes for me, and they said that when the
>> training was
>> >> in the halfway period, they would go over the notes, and make sure I
>> >> understood them, then when the classes wer all finished, we would
>> go over
>> >> all the notes, well they decided that they didn?t wanna do that,
>> then after
>> >> it was all over with, then they told me that they couldn?t help me
>> run the
>> >> business, and I said, I know you can?t help me do that, but you can at
>> >> leaste help me get the training and everything I needed to get
>> started, and
>> >> they just kept repeating them selves, so I just told them screw it
>> for now,
>> >> then I got an opportunity to go to HKNC, and I?m taking it, cause
>> I want
>> >> enough indipendents to not have to depend on the db program for
>> anything.
>> >> If anyone wants to hear of anything else the db program didn?t do,
>> I?ll tell
>> >> you, I just don?t wanna go on and on unless people wanna hear
>> about it Lol.
>> >
>> > _______________________________________________
>> > nfb-db mailing list
>> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> >
>> >
>> > -----
>> > No virus found in this message.
>> > Checked by AVG - www.avg.com <http://www.avg.com>
>> > Version: 2014.0.4158 / Virus Database: 3615/6799 - Release Date:
>> 11/01/13
>> >
>> >
>> > _______________________________________________
>> > nfb-db mailing list
>> > nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> > http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>>
>> ------------------------------
>>
>> Message: 14
>> Date: Sat, 02 Nov 2013 01:28:22 -0600
>> From: Sheila Leigland <sleigland at bresnan.net
>> <mailto:sleigland at bresnan.net>>
>> Cc: db <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>>
>> Subject: [nfb-db] fm systems and flying
>> Message-ID: <5274A996.1020600 at bresnan.net
>> <mailto:5274A996.1020600 at bresnan.net>>
>> Content-Type: text/plain; charset=ISO-8859-1; format=flowed
>>
>> hi I understand that we are screened and posibly have our hands checked
>> for materials and explosive making items if we have medical devices.
>> Does this include hearing aides andd fm systems? I will be flying to
>> Baltimore with a small deligation from Montana for Maryland's convention
>> so was wondering what would be involved in getting through airport
>> security. thanks in advance.
>>
>>
>>
>> ------------------------------
>>
>> Message: 15
>> Date: Sat, 2 Nov 2013 07:56:41 -0400
>> From: April Brown <aprilbrownwrite at gmail.com
>> <mailto:aprilbrownwrite at gmail.com>>
>> To: <nfbktad at nfbnet.org <mailto:nfbktad at nfbnet.org>>,
>> <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>>
>> Subject: [nfb-db] Trying to use the computer with just a Keyboard
>> Message-ID: <003a01ced7c2$99051f00$cb0f5d00$@com>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> Following advice, I've tried to learn to use a computer with just a
>> keyboard. I don't get it. I can't open or close anything.
>>
>>
>>
>> With the trial JAWs program, I tried to use both Firefox and Safari with
>> just the keyboard. I had the 11 page keyboard guide open. And none
>> of the
>> commands worked on either browser. They worked in Word and PDF.
>>
>>
>>
>> I have no idea what "key" I am missing. I am sure it is some silly
>> something that I'm supposed to toggle on or off to do it, and
>> everyone else
>> in the world knows how without being told.
>>
>>
>>
>> So far, the biggest problem I can see with JAWs, other than not being
>> able
>> to configure it for the browsers, is the volume. With my massive hearing
>> loss as well, and the volume at 100%, it sounds like a whisper. Is
>> it worth
>> my time to learn this program, if I can't hear the speakers? My
>> hearing and
>> comprehension is rapidly decreasing. I'm going to ask on the deaf blind
>> group what they use.
>>
>>
>>
>> April Brown
>>
>>
>>
>> Writing dramatic adventure novels uncovering the myths we hide behind.
>>
>>
>>
>>
>>
>>
>>
>> ---
>> This email is free from viruses and malware because avast! Antivirus
>> protection is active.
>> http://www.avast.com <http://www.avast.com/>
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>>
>> Subject: Digest Footer
>>
>> _______________________________________________
>> nfb-db mailing list
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>>
>> End of nfb-db Digest, Vol 58, Issue 2
>> *************************************
>>
>>
>> _______________________________________________
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>> nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
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>
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