[nfb-db] OT: AADB DB Definition Fwd: [AADB-L] Digest

Sat Mar 8 00:39:42 UTC 2014

This has nothing to do with anything we've talked about; but the message below will be useful to us whenever we turn our thoughts to the topic of what, exactly, we mean when we identify our DB community.  Most of us have seen variations on the definition, including medical models and so forth.  The one that appears below is the most humane and respectful definition I have ever read.  I hope that some of you will save it somewhere and refer to it when we turn our attention to what it means to be a member of the DB community.

Cathy Miller

Sent from my iPad

Begin forwarded message:

> From: aadb-l at googlegroups.com
> Date: March 7, 2014 at 1:35:36 PM CST
> To: Digest Recipients <aadb-l at googlegroups.com>
> Subject: [AADB-L] Digest for aadb-l at googlegroups.com - 4 Messages in 2 Topics
> Reply-To: aadb-l at googlegroups.com
> 
>   Today's Topic Summary
> Group: http://groups.google.com/group/aadb-l/topics
> 
> DeafBlind [1 Update]
> Deafblind [3 Updates]
>  DeafBlind
> "Randy Pope" <randy.pope at aadb.org> Mar 07 06:51AM -0500  
> 
> Janie,
>  
> 
>  
> Some thoughts I would like to share with you.
>  
> 
>  
> AADB definition of DeafBlind person:
>  
> “Deaf-blind, or deafblind, is a combination of hearing and vision loss of any varying degrees that affects a person’s ability to communicate, get environmental information, participate in the community, obtain and keep a job, and maintain independence.”
>  
> 
>  
> A definition of a Deaf-Blind Community as quoted by John Lee Clark:
>  
> “The American DeafBlind community is a network of people who are both deaf and blind to varying degrees. They may participate in local DeafBlind communities and associations or other social venues open to DeafBlind people from various locations, such as camps, retreats, and conferences. A virtual or “long-distance” community space also exists, which was first formed in the nineteenth century via correspondence and has continued to this day in the form of social publications, e-mail listservs, and the Internet. For communication, they use various methods and languages, including American Sign Language and English-syntax-based variants (tactile, visual), English (spoken, fingerspelled, standard print, large print, and Braille), specialized codes (such as Print on Palm, codes written on hands or backs, tactile alphabets, synthesizers) and more. They also often utilize Independent Living Skills; Orientation and Mobility skills, with the use of long white canes, guide dogs, and public transportation; access services such as Support Service Providers; and many services that hearing blind or sighted Deaf people also use, such as transcription services and ASL interpreting services.”
>  
> 
>  
> Lastly Rod Macdonald offer a good definition of a Deaf-Blind Community. It may need a few minor tweaking though.
>  
> "The Deaf-Blind Community (of the United States) refers to a group of individuals experiencing a coexistent, significant loss of vision and hearing; who self-identify as having this dual loss; and who feel some level of togetherness with others in the same circumstances. In a broader sense, this community also includes family members, friends and service providers who serve in a support capacity within this community."
>  
> 
>  
> 
>  
> 
>  
> With regards,
>  
> Randy Pope
>  
> randy.pope at aadb.org
>  
> 
>  
> From: aadb-l at googlegroups.com [mailto:aadb-l at googlegroups.com] On Behalf Of Janie
> Sent: Thursday, March 06, 2014 5:28 PM
> To: aadb-l at googlegroups.com
> Subject: Re: [AADB-L] Deafblind
>  
> 
>  
> Yes, please send me the important info. I am trying to show the council on deaf, deafblind, and hard of hearing to understand the differences. Yes, I am the first DB person to be chosen by the governor so it is going to be busy for next 3 years.
>  
> Thanks in advance!
>  
> Janie
>  
> ----- Original Message -----
> From: Adrienne Haugen <richadehaugen at mchsi.com>
> To: aadb-l at googlegroups.com
> Sent: Thu, 06 Mar 2014 20:19:19 -0000 (UTC)
> Subject: Re: [AADB-L] Deafblind
>  
> Janie:
>  
> The definition of deafblind is basic; however, it tends to have variations depending where it comes from. Are you thinking of the HKNC definition? Or, from one of the states; such as, from Minnesota? I really don't think that Bryen or any one person is the expert or has the right to say what is actually the definition is.
>  
> So, perhaps, are you lopking for some samples? If so, can we send them to you privately rather than clogging up AADB-L? I'd rather see less volume going into this list if you are just trying to collect sample of definitions for the word deafblind or deaf-blind or DeafBlind. Really, this has since become a sensitive issue as the spelling is very important to consider. I might post an explanation from someone who has expertise on Deafblind History.
>  
> Would this list like to read it? If so,, then I can post it. Otherwise, I'd just be wasting my time with it.
>  
> Thanks,
>  
> Ade
>  
> On Mar 6, 2014, at 10:07 AM, Janie <jneal46 at comcast.net> wrote:
>  
> Bryen or anyone else
>  
> Could you please give the definition of deafblind and DeafBlind. I like your description and want to include in a Senate bill.
>  
> Thank you in advance. 
> Janie
>  
> -- 
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>  
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>  
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>  
> -- 
> You received this message because you are subscribed to the Google
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> 
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> Randall Pope - randy.pope at aadb.org
> 
> To post to this group, send email to aadb-l at googlegroups.com
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>  
> 
>  Deafblind
> Adrienne Haugen <richadehaugen at mchsi.com> Mar 06 02:19PM -0600  
> 
> Janie:
>  
> The definition of deafblind is basic; however, it tends to have variations depending where it comes from. Are you thinking of the HKNC definition? Or, from one of the states; such as, from Minnesota? I really don't think that Bryen or any one person is the expert or has the right to say what is actually the definition is.
>  
> So, perhaps, are you lopking for some samples? If so, can we send them to you privately rather than clogging up AADB-L? I'd rather see less volume going into this list if you are just trying to collect sample of definitions for the word deafblind or deaf-blind or DeafBlind. Really, this has since become a sensitive issue as the spelling is very important to consider. I might post an explanation from someone who has expertise on Deafblind History.
>  
> Would this list like to read it? If so,, then I can post it. Otherwise, I'd just be wasting my time with it.
>  
> Thanks,
>  
> Ade
> 
>  
> On Mar 6, 2014, at 10:07 AM, Janie <jneal46 at comcast.net> wrote:
>  
> Bryen or anyone else
> 
> Could you please give the definition of deafblind and DeafBlind. I like your description and want to include in a Senate bill.
> 
> Thank you in advance. 
> Janie
>  
> -- 
> You received this message because you are subscribed to the Google
> Groups "AADB-L" group.
> 
> Moderators: 
> Aimee Bader - aadbaimee at gmail.com
> Randall Pope - randy.pope at aadb.org
> 
> To post to this group, send email to aadb-l at googlegroups.com
> To review the group guidelines, visit this page:
> http://www.aadb.org/aadb/AADB-L%20List_Guideline%20_Rules.html
> 
> To subscribe to this group, send an email to:
> aadb-l+subscribe at googlegroups.com
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>  
> 
> Janie <jneal46 at comcast.net> Mar 06 10:27PM  
> 
> Yes, please send me the important info. I am trying to show the council on deaf, deafblind, and hard of hearing to understand the differences. Yes, I am the first DB person to be chosen by the governor so it is going to be busy for next 3 years.
> Thanks in advance!
> Janie
>  
> ----- Original Message -----From: Adrienne Haugen <richadehaugen at mchsi.com>To: aadb-l at googlegroups.comSent: Thu, 06 Mar 2014 20:19:19 -0000 (UTC)Subject: Re: [AADB-L] Deafblind
>  
> Janie:
>  
> The definition of deafblind is basic; however, it tends to have variations depending where it comes from. Are you thinking of the HKNC definition? Or, from one of the states; such as, from Minnesota? I really don't think that Bryen or any one person is the expert or has the right to say what is actually the definition is.
>  
> So, perhaps, are you lopking for some samples? If so, can we send them to you privately rather than clogging up AADB-L? I'd rather see less volume going into this list if you are just trying to collect sample of definitions for the word deafblind or deaf-blind or DeafBlind. Really, this has since become a sensitive issue as the spelling is very important to consider. I might post an explanation from someone who has expertise on Deafblind History.
>  
> Would this list like to read it? If so,, then I can post it. Otherwise, I'd just be wasting my time with it.
>  
> Thanks,
>  
> Ade
>  
> On Mar 6, 2014, at 10:07 AM, Janie <jneal46 at comcast.net> wrote:
>  
> Bryen or anyone elseCould you please give the definition of deafblind and DeafBlind. I like your description and want to include in a Senate bill.Thank you in advance. Janie
>  
> -- You received this message because you are subscribed to the GoogleGroups "AADB-L" group.Moderators: Aimee Bader - aadbaimee at gmail.comRandall Pope - randy.pope at aadb.orgTo post to this group, send email to aadb-l at googlegroups.comTo review the group guidelines, visit this page:http://www.aadb.org/aadb/AADB-L%20List_Guideline%20_Rules.htmlTo subscribe to this group, send an email to:aadb-l+subscribe at googlegroups.com--- You received this message because you are subscribed to the Google Groups "AADB-L" group.To unsubscribe from this group and stop receiving emails from it, send an email to aadb-l+unsubscribe at googlegroups.com.For more options, visit https://groups.google.com/groups/opt_out.
>  
> -- You received this message because you are subscribed to the GoogleGroups "AADB-L" group.
>  
> Moderators: Aimee Bader - aadbaimee at gmail.comRandall Pope - randy.pope at aadb.org
>  
> To post to this group, send email to aadb-l at googlegroups.comTo review the group guidelines, visit this page:http://www.aadb.org/aadb/AADB-L%20List_Guideline%20_Rules.html
>  
> To subscribe to this group, send an email to:aadb-l+subscribe at googlegroups.com--- You received this message because you are subscribed to the Google Groups "AADB-L" group.To unsubscribe from this group and stop receiving emails from it, send an email to aadb-l+unsubscribe at googlegroups.com.For more options, visit https://groups.google.com/groups/opt_out.
>  
> 
> Adrienne Haugen <richadehaugen at mchsi.com> Mar 06 07:53PM -0600  
> 
> On Mar 6, 2014, at 4:27 PM, Janie <jneal46 at comcast.net> wrote:
>  
> Yes, please send me the important info. I am trying to show the council on deaf, deafblind, and hard of hearing to understand the differences. Yes, I am the first DB person to be chosen by the governor so it is going to be busy for next 3 years.
> Thanks in advance!
> Janie
> ----- Original Message -----
> From: Adrienne Haugen <richadehaugen at mchsi.com>
> To: aadb-l at googlegroups.com
> Sent: Thu, 06 Mar 2014 20:19:19 -0000 (UTC)
> Subject: Re: [AADB-L] Deafblind
> Janie:
> The definition of deafblind is basic; however, it tends to have variations depending where it comes from. Are you thinking of the HKNC definition? Or, from one of the states; such as, from Minnesota? I really don't think that Bryen or any one person is the expert or has the right to say what is actually the definition is.
> So, perhaps, are you lopking for some samples? If so, can we send them to you privately rather than clogging up AADB-L? I'd rather see less volume going into this list if you are just trying to collect sample of definitions for the word deafblind or deaf-blind or DeafBlind. Really, this has since become a sensitive issue as the spelling is very important to consider. I might post an explanation from someone who has expertise on Deafblind History.
> Would this list like to read it? If so,, then I can post it. Otherwise, I'd just be wasting my time with it.
> Thanks,
> Ade
>  
> On Mar 6, 2014, at 10:07 AM, Janie <jneal46 at comcast.net> wrote:
> Bryen or anyone else
>  
> Could you please give the definition of deafblind and DeafBlind. I like your description and want to include in a Senate bill.
>  
> Thank you in advance. 
> Janie
> -- 
> You received this message because you are subscribed to the Google
> Groups "AADB-L" group.
>  
> Moderators: 
> Aimee Bader - aadbaimee at gmail.com
> Randall Pope - randy.pope at aadb.org
>  
> To post to this group, send email to aadb-l at googlegroups.com
> To review the group guidelines, visit this page:
> http://www.aadb.org/aadb/AADB-L%20List_Guideline%20_Rules.html
>  
> To subscribe to this group, send an email to:
> aadb-l+subscribe at googlegroups.com
> --- 
> You received this message because you are subscribed to the Google Groups "AADB-L" group.
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> Randall Pope - randy.pope at aadb.org
> To post to this group, send email to aadb-l at googlegroups.com
> To review the group guidelines, visit this page:
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> To subscribe to this group, send an email to:
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>  
> -- 
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> Randall Pope - randy.pope at aadb.org
> 
> To post to this group, send email to aadb-l at googlegroups.com
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>  
> 
> -- 
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> Randall Pope - randy.pope at aadb.org
>  
> To post to this group, send email to aadb-l at googlegroups.com
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